35 research outputs found

    Impact of food insecurity on the health and well-being of college students

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    Objective: To assess the impact of food insecurity on college student health and wellbeing. Participants: Sample of self-identified, food-insecure college students from a large midwestern university. Methods: a qualitative study utilizing interviews and photovoice measured the impacts of food insecurity. Results: Findings demonstrate that college students experience a large variety of negative health impacts among various dimensions of well-being because of food insecurity. Additionally, various barriers impact the effectiveness of university and community efforts to support food-insecure students. Conclusions: Future work addressing nutrition and food security on college campuses should focus on exploring effective policy-level and organizational-level interventions that decrease the occurrence of food insecurity among students, address each dimension of health affected by food insecurity, and decrease the occurrence of barriers that impact the effectiveness of university and community efforts

    Health related quality of life in ANCA associated vasculitis and item generation for a disease specific patient reported outcome measure

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    ABSTRACTObjective: The anti-neutrophil cytoplasmic antibody (ANCA)-associated vasculitides (AAVs) are multisystem diseases of the small blood vessels. Patients experience irreversible damage and psychological effects from AAV and its treatment. An international collaboration was created to investigate the impact of AAV on health-related quality of life (HRQoL), and develop a disease-specific patient-reported outcome measure to assess outcomes of importance to patients.Methods: Patients with AAV from the UK, US, and Canada were interviewed to identify salient aspects of HRQoL affected by AAV. The study was overseen by a steering committee including four patient research partners. Purposive sampling of interviewees ensured representation of a range of disease manifestations and demographics. Inductive analysis was used to identify themes of importance to patients; these were further confirmed by a free-listing exercise in the US. Individual themes were recast into candidate items, which were scrutinized by patients, piloted through cognitive interviews and received a linguistic and translatability evaluation. Results: Fifty interviews, conducted to saturation, with patients from the UK, US and Canada, identified 55 individual themes of interest within seven broad domains: general health perceptions, impact on function, psychological perceptions, social perceptions, social contact, social role and symptoms. Individual themes were constructed into >100 candidate questionnaire items which were then reduced and refined to 35 candidate items.Conclusion: This is the largest international qualitative analysis of health related quality of life in ANCA associated vasculitis to date, the results have underpinned the development of 35 candidate items for a disease-specific, patient-reported outcome questionnaire

    Everyone on Radio

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    This adaptation of Everyman was scheduled for production on the main stage in the Kline Theatre of Gettysburg College. With the onset of COVID-19 and the ensuing advent of distance-learning, that could no longer happen, and originally that was a crushing disappointment. But the show must go on, especially when that show is “Everyman,” an especially apt theatrical choice for a pestilential year. Everyman offers exciting possibilities for audio drama, especially considering the play’s emphasis on the internal struggle of the individual facing death; Everyone on Radio attempts to make the most of these aspects of the play. Never willing to blink in the face of doom, the students in this class rose to the occasion with incredible pluck, optimism, and good humor. In particular, Lauren “Helping” Hand, the peer associate for this year’s course, led the pivot to the podcast platform, and this production is as much hers as anyone’s: She was chief cheerleader, coordinator, and executive producer, in tandem with Joey “Magic Fingers” Maguschak, who acted as senior sound engineer and producer

    Patient perceptions of glucocorticoids in anti-neutrophil cytoplasmic antibody-associated vasculitis

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    © 2017, The Author(s). Granulomatosis with polyangiitis (GPA), microscopic polyangiitis (MPA), and eosinophilic granulomatosis with polyangiitis (EGPA) are multisystem diseases of small blood vessels, collectively known as the anti-neutrophil cytoplasmic antibody (ANCA)-associated vasculitides (AAV). This study explores the patient’s perspective on the use of glucocorticoids, which are still a mainstay of treatment in AAV. Patients with AAV from the UK, USA, and Canada were interviewed, using purposive sampling to include a range of disease manifestations and demographics. The project steering committee, including patient partners, designed the interview prompts and cues about AAV, its treatment, and impact on health-related quality of life. Interviews were transcribed and analysed to establish themes grounded in the data. A treatment-related code was used to focus analysis of salient themes related to glucocorticoid therapy. Fifty interviews were conducted. Individual themes related to therapy with glucocorticoids emerged from the data and were analysed. Three overarching themes emerged: (1) Glucocorticoids are effective at the time of diagnosis and during relapse, and withdrawal can potentiate a flare, (2) glucocorticoids are associated with salient emotional, physical, and social effects (depression, anxiety, irritation, weight gain and change in appearance, diabetes mellitus, effect on family and work); and (3) patient perceptions of balancing the risks and benefits of glucocorticoids. Patients identified the positive aspects of treatment with glucocorticoids; they are fast-acting and effective, but, they voiced concerns about adverse effects and the uncertainty of the dose-reduction process. These results may be informative in the development of novel glucocorticoid-sparing regimens

    Using a standardized sound set to help characterize misophonia: The International Affective Digitized Sounds.

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    Misophonia is a condition characterized by negative affect, intolerance, and functional impairment in response to particular repetitive sounds usually made by others (e.g., chewing, sniffing, pen tapping) and associated stimuli. To date, researchers have largely studied misophonia using self-report measures. As the field is quickly expanding, assessment approaches need to advance to include more objective measures capable of differentiating those with and without misophonia. Although several studies have used sounds as experimental stimuli, few have used standardized stimuli sets with demonstrated reliability or validity. To conduct rigorous research in an effort to better understand misophonia, it is important to have an easily accessible, standardized set of acoustic stimuli for use across studies. Accordingly, in the present study, the International Affective Digitized Sounds (IADS-2), developed by Bradley and Lang (Bradley MM et al., 2007), were used to determine whether participants with misophonia responded to certain standardized sounds differently than a control group. Participants were 377 adults (132 participants with misophonia and 245 controls) recruited from an online platform to complete several questionnaires and respond to four probes (arousal, valence, similarity to personally-relevant aversive sounds, and sound avoidance) in response to normed pleasant, unpleasant, and neutral IADS-2 sounds. Findings indicated that compared to controls, participants with high misophonia symptoms rated pleasant and neutral sounds as significantly more (a) arousing and similar to trigger sounds in their everyday life, (b) unpleasant and (c) likely to be avoided in everyday life. For future scientific and clinical innovation, we include a ranked list of IADS-2 stimuli differentiating responses in those with and without misophonia, which we call the IADS-M

    Parenting Stress and its Impact on Parental and Child Functioning During the COVID-19 Pandemic: A Meta-Analytical Review

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    Amidst the COVID-19 pandemic, prolonged periods of physical and social isolation imposed significant challenges on parents and children, disrupting their socioeconomic stability and psychological well-being. This study examined the effects of parenting stress on aspects of parents' and children's functioning during the COVID-19 pandemic. A comprehensive search of studies from eight electronic sources, including the WHO’s COVID-19 database, yielded 42 studies focusing on the associations between parenting stress, as measured by standardized scales, and child and parental outcomes. Multilevel random-effect models were used to analyze weighted effect sizes. Our findings revealed medium to large effect sizes (ranging from r = .29 to .55) in the associations between parenting stress and (1) externalizing child behaviors (r = .41), (2) internalizing child behaviors (r = .48), (3) negative parents’ behavioral engagements (r = .29), (4) parents’ mental health (r = .46), and (5) poor parent-child relationship quality (r = .55). These results underscore the significance of addressing parenting stress during a pandemic. Practice implications suggest that governmental or community support, along with tangible assistance, can alleviate parenting stress and positively impact the well-being and functioning of parents and children in the pandemic and post-pandemic era especially in light of the current global mental health crisis. Furthermore, considering the influence of parenting stress on treatment engagement and motivation, family- or parent-oriented interventions that address parenting stress can be more effective at reducing negative consequences of a pandemic on children and their parents
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