A Note on the Hydrogen Bonding in Isomeric Aminopyridines in Relation to their Basicities

Physicians commonly advise patients to begin disease modifying therapies (DMT's) shortly after the establishment of a diagnosis of Multiple Sclerosis (MS) to prevent further relapses and disease progression. However, little is known about the meaning for patients going through the process of the diagnosis of MS and of making decisions on DMT's in early MS.To explore the patient perspective on using DMT's for MS. Methods: Ten participants with a recent (< 2 years) relapsing-remitting MS diagnosis were interviewed. Seven of them were using DMT's at the time of the interview. All interviews were transcribed and analyzed using a hermeneutical-phenomenological approach.The analysis revealed the following themes: (1) Constant confrontation with the disease, (2) Managing inevitable decline, (3) Hope of delaying the progression of the disease, and, (4) The importance of social support. The themes show that patients associate the recommendation to begin DMT's (especially injectable DMT's) with views about their bodies as well as their hopes about the future. Both considering and adhering to treatment are experienced by patients as not only matters of individual and rational deliberation, but also as activities that are lived within a web of relationships with relatives and friends.From the patient perspective, the use of DMT's is not a purely rational and individual experience. More attention to the use of DMT's as relational and lived phenomena will improve the understanding of the process of decision-making for DMT's in MS

Las posibilidades de la ludificacion de la ciencia como nexo hacia la aprehensión ciudadana

Se propone un poster para pensar las diferentes estrategias que desde las técnicas de ludificacion y recursos propios del campo artístico, acercan y facilitan al ciudadano la incorporación de acciones participativas propias del campo científico.Facultad de Informátic

Niet coderen maar schrijven: Data-analyse in fenomenologisch onderzoek

The step from research data to a rich and meaningful description of a phenomenon appears to be complicated for many researchers. This article describes a method of phenomenological analysis in which writing is emphasized as the central activity. The writing of textual portraits supports the researcher in the process of understanding and enables the disclosure of the experience in an evocative manner. The use of phenomenological literature in the subsequent step of reflective writing brings the analysis to an even higher level

Giving voice to vulnerable people:The value of shadowing for phenomenological healthcare research

Phenomenological healthcare research should include the lived experiences of a broad group of healthcare users. In this paper it is shown how shadowing can give a voice to people in vulnerable situations who are often excluded from interview studies. Shadowing is an observational method in which the researcher observes an individual during a relatively long time. Central aspects of the method are the focus on meaning expressed by the whole body, and an extended stay of the researcher in the phenomenal event itself. Inherent in shadowing is a degree of ambivalence that both challenges the researcher and provides meaningful insights about the phenomenon. A case example of a phenomenological study on the experiences of elderly hospital patients is used to show what shadowing yields