Interventions, Participative Role, Barriers, and Facilitators for Involvement in eHealth Communication for People Undergoing Hemodialysis: Protocol for a Scoping Review

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Significant others’ experience of hospitalized patients’ transfer to home : a systematic review protocol

Published version of an article in the journal: JBI Database of Systematic Reviews and Implementation Reports. Also available from the publisher at: http://dx.doi.org/10.11124/jbisrir-2014-1539 Open AccessReview question/objective: The objective of this review is to identify, appraise and synthesize the best available evidence exploring significant others’ experiences of the discharge/transfer of patients after hospitalization. More specifically, the review questions are: What is the significant other(s) experience of hospital/discharge transfer of patients; in particular, experiences relating to transitions concerning organizational, psychosocial and existential issues? How do significant others experience their preparedness for bringing the patient(s) home? How do significant others experience the planning of discharge

Nurses’ and Doctors’ Experiences of Transferring Adolescents or Young Adults With Long-Term Health Conditions From Pediatric to Adult Care: A Metasynthesis

The transfer of adolescents and young adults (AYA) with long-term health conditions from pediatric to adult care is a multidisciplinary enterprise where nurses and doctors play an important role. This review aimed to identify and synthesize evidence from qualitative primary reports on how nurses and doctors experience the transfer of AYA aged 13 to 24 years with long-term health conditions to an adult hospital setting. We systematically searched seven electronic databases for reports published between January 2005 and November 2021 and reporting nurses’ and doctors’ experiences. We meta-summarized data from 13 reports derived from 11 studies published worldwide. Using qualitative content analysis, we metasynthesized nurses’ and doctors’ experiences into the theme “being boosters.” Boosting AYA’s transfer was characterized by supporting AYA’s and their parents’ changing roles, smoothening AYA’s transition from pediatric to adult care, and handling AYA’s encounters with a different care culture.publishedVersio

Parents’ experiences of transitioning to home with a very-low-birthweight infant: A meta-ethnography

Medical-technological advances and neurodevelopmental care have improved the survival of extremely- and very-low-birthweight infants born before 32 weeks’ gestation. After months in neonatal care, the infants are discharged, and parents exited but full of anxiety. This review is designed as a meta-ethnography, addressing parents’ discharge experiences to comprehend the synthesised research, which includes 12 eligible studies. From the analysis, we constructed three themes: ‘approaching discharge with both uncertainty and confidence’; ‘discharge as a longed-for though disordering turning point’; and ‘facing joys, worries and multiple challenges when at home’. The overarching interpretation was ‘discharge as double-edged sword’. We conclude that bringing home very-low-birthweight infants is a joyful event, yet parents also experience discharge as never- endingly worrying, as a time filled with challenges to which parents must adapt and as necessitating contin- uous support from knowledgeable providers.publishedVersio

Parents' experiences of the transfer from pediatric to adult care for their adolescent or young adult children with chronic conditions : a systematic review protocol

Published version of an article in the journal: JBI Database of Systematic Reviews and Implementation Reports. Also available from the publisher at: http://dx.doi.org/10.11124/jbisrir-2014-1565 Open AccessReview question/objective: The objective of this systematic review is to identify parents' experiences of adolescents and young adults (AYA) health care transfer from pediatric to adult care. 1. How do parents experience being prepared for the transfer from pediatric to adult care of their AYA with a chronic condition? 2. How do parents experience the event of transfer? 3. How does the type of chronic condition influence parents' experiences of AYAs' transfer from pediatric to adult care? Inclusion criteria: Types of participants: This review will consider studies that include parents of AYAs (adolescents aged 13-18 years and young adults aged 19-24 years) living with a chronic condition. No limit considering the AYA's type of chronic condition, as long the AYA it not under residential accommodation or institutionalized care. Phenomena of interest: This review will consider studies that investigate how parents of AYAs with chronic conditions experience and manage the AYA's transfer from pediatric to adult care. Context: Transfer from pediatric to adult care for AYAs

Adolescents' and young adults' transition experiences when transferring from paediatric to adult care: A qualitative metasynthesis

Author's version of an article in the journal: International Journal of Nursing Studies. Also available from the publisher at: http://dx.doi.org/10.1016/j.ijnurstu.2013.02.001Objectives: The objective of this study was to synthesize qualitative studies of how adolescents and young adults with chronic diseases experience the transition from paediatric to adult hospital care. Design: The review is designed as a qualitative metasynthesis and is following Sandelowski and Barroso's guidelines for synthesizing qualitative research. Data sources: Literature searches were conducted in the databases PubMed, Ovid, Scopus, Cumulative Index to Nursing and Allied Health Literature (CINAHL), ISI Web of Science, and Nordic and German databases covering the period from 1999 to November 2010. In addition, forward citation snowball searching was conducted in the databases Ovid, CINAHL, ISI Web of Science, Scopus and Google Scholar. Review methods: Of the 1143 records screened, 18 studies were included. Inclusion criteria were qualitative studies in English, German or Nordic languages on adolescents' and young adults' transition experiences when transferring from paediatric to adult care. There was no age limit, provided the focus was on the actual transfer process and participants had a chronic somatic disease. The studies were appraised as suitable for inclusion using a published appraisal tool. Data were analyzed into metasummaries and a metasynthesis according to established guidelines for synthesis of qualitative research. Results: Four themes illustrating experiences of loss of familiar surroundings and relationships combined with insecurity and a feeling of being unprepared for what was ahead were identified: facing changes in significant relationships, moving from a familiar to an unknown ward culture, being prepared for transfer and achieving responsibility. Conclusions: Young adults' transition experiences seem to be comparable across diagnoses. Feelings of not belonging and of being redundant during the transfer process are striking. Health care professionals' appreciation of young adults' need to be acknowledged and valued as competent collaborators in their own transfer is crucial, and may protect them from additional health problems during a vulnerable phase. Further research including participants across various cultures and health care systems is needed

Experiences of a non-clinical set of adolescents and young adults living with persistent pain : a qualitative metasynthesis

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Experiences of a non-clinical set ofadolescents and young adults living with persistent pain: a qualitative metasynthesis

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