680 research outputs found

    Recent Parental Death and Relationship Qualities Between Midlife Adults and Their Grown Children

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    Peer Reviewedhttps://deepblue.lib.umich.edu/bitstream/2027.42/149257/1/jomf12549_am.pdfhttps://deepblue.lib.umich.edu/bitstream/2027.42/149257/2/jomf12549.pd

    Helicopter Parents and Landing Pad Kids: Intense Parental Support of Grown Children

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    Peer Reviewedhttp://deepblue.lib.umich.edu/bitstream/2027.42/92448/1/j.1741-3737.2012.00987.x.pd

    Intergenerational Support and Marital Satisfaction: Implications of Beliefs About Helping Aging Parents

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    Everyday support given to aging parents is a salient aspect of married life that may have implications for marital quality. Among 132 middle‐aged couples drawn from Wave 1 of the Family Exchanges Study, the authors examined the moderating effects of each spouse’s normative and motivational beliefs about helping parents on associations between the frequency of everyday support that wives and husbands gave to their own parents and marital satisfaction. Husbands’ more frequent provision of support was linked to wives’ greater marital satisfaction when reports of personal rewards linked to helping parents were high for wives or low for husbands. Conversely, wives’ more frequent provision of support was linked to husbands’ lower marital satisfaction when reports of filial obligation were low for husbands or high for wives. Findings highlight the interdependence within couples and indicate that both spouses’ perceptions are important in understanding linkages between intergenerational support and marital satisfaction.Peer Reviewedhttp://deepblue.lib.umich.edu/bitstream/2027.42/135490/1/jomf12334_am.pdfhttp://deepblue.lib.umich.edu/bitstream/2027.42/135490/2/jomf12334.pd

    Learning Therapy Strategies from Demonstration Using Latent Dirichlet Allocation

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    The use of robots in stroke rehabilitation has become a pop-ular trend in rehabilitation robotics. However, despite the ac-knowledged value of customized service for individual pa-tients, research on programming adaptive therapy for indi-vidual patients has received little attention. The goal of the current study is to model teletherapy sessions in the form of a generative process for autonomous therapy that approxi-mate the demonstrations of the therapist. The resulting au-tonomous programs for therapy may imitate the strategy that the therapist might have employed and reinforce therapeutic exercises between teletherapy sessions. We propose to en-code the therapist’s decision criteria in terms of the patient’s motor performance features. Specifically, in this work, we apply Latent Dirichlet Allocation on the batch data collected during teletherapy sessions between a single stroke patient and a single therapist. Using the resulting models, the thera-peutic exercise targets are generated and are verified with the same therapist who generated the data

    Relationship tensions and mood: Adult children’s daily experience of aging parents’ stubbornness

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    This study examined middle‐aged individuals’ reports of parents’ behaviors commonly attributed to stubbornness. Middle‐aged adults (N = 192) completed a 7‐day diary reporting their mood and how often they felt their parents (N = 254) engaged in behaviors often described as “stubbornness” (insistent or risky). Thirty‐one percent of middle‐aged children reported insistent behaviors, and 17% reported risky behaviors by their parent(s). Daily reports of parent behaviors attributed to stubbornness were positively associated with parent–child relationship quality, parent functional limitations, and child neuroticism. Reports of perceived parent insistent behaviors were also associated with greater daily negative mood among adult children. Findings highlight the impact of adult children’s daily perceptions of parent behaviors commonly attributed to stubbornness on the individual and relationship.Peer Reviewedhttps://deepblue.lib.umich.edu/bitstream/2027.42/142899/1/pere12229_am.pdfhttps://deepblue.lib.umich.edu/bitstream/2027.42/142899/2/pere12229.pd

    Living with semantic dementia: a case study of one family's experience

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    Semantic dementia is a variant of frontotemporal dementia and is a recently recognized diagnostic condition. There has been some research quantitatively examining care partner stress and burden in frontotemporal dementia. There are, however, few studies exploring the subjective experiences of family members caring for those with frontotemporal dementia. Increased knowledge of such experiences would allow service providers to tailor intervention, support, and information better. We used a case study design, with thematic narrative analysis applied to interview data, to describe the experiences of a wife and son caring for a husband/father with semantic dementia. Using this approach, we identified four themes: (a) living with routines, (b) policing and protecting, (c) making connections, and (d) being adaptive and flexible. Each of these themes were shared and extended, with the importance of routines in everyday life highlighted. The implications for policy, practice, and research are discussed. Keywords : case studies, dementia, families, caregiving, interviews, semistructured, narrative inquir

    Quality of life in caregivers of patients with multiple myeloma

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    Objectives: This study aimed to assess the relationship between sociodemographic, clinical, and psychological variables with quality of life (QoL) and the moderating role of caregivers' age and caregiving duration in caregivers of patients with Multiple Myeloma.Method: The sample included 118 caregivers who completed questionnaires that assessed psychological morbidity, satisfaction with social support, coping, burden, unmet needs, and QoL.Results: High psychological morbidity, burden and information, financial and emotional unmet needs were associated with lower QoL, while higher satisfaction with social support and more effective use of coping strategies were associated with better QoL. Women caregivers reported more satisfaction with social support and those who did not choose to care reported greater financial unmet needs and more use of coping strategies. The relationship between caregivers' psychological morbidity/social support and QoL was mediated by emotional needs and double mediated by coping and burden. The caregivers' age moderated the relationship between psychological morbidity/social support and emotional needs.Conclusion: Interventions to support the caregiver's emotional needs to promote their QoL are needed. These should be particularly tailored for older caregivers reporting greater psychological morbidity and younger caregivers less satisfied with their social support, as they have a negative indirect impact on their QoL.Portuguese Associations of Portuguese Association against Leukemia and the PortugueseAssociation of Leukemias and Lymphoma

    Development and preliminary evaluation of a quality of life measure targeted at dementia caregivers

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    <p>Abstract</p> <p>Background</p> <p>Providing care for individuals with a progressive, debilitating condition such as dementia can adversely impact the quality of life (QOL) of informal caregivers. To date, there is no existing caregiver quality of life measure for dementia caregivers with breadth of coverage or that is applicable to caregivers of diverse ethnic backgrounds. The purpose of this study was to develop and evaluate a caregiver-targeted quality-of-life measure (CGQOL) for informal caregivers of persons with dementia that can be used with caregivers from a variety of ethnicities.</p> <p>Methods</p> <p>91 items were field tested by telephone interviews with 179 English-speaking and 21 monolingual Spanish-speaking caregivers of persons with dementia. Repeat interviews were conducted with 71 caregivers. Administration time, scale score distributions, item-scale correlations, reliability, and associations of scales with patient and caregiver demographic and caregiving characteristics were estimated. Structure of associations among scales was examined using exploratory factor analysis.</p> <p>Results</p> <p>Item analysis yielded 80 items distributed across 10 scales, with median administration time of 17 minutes [IQR 13.5–22 minutes] and minimal missing data. There were few floor or ceiling effects in scale score distributions. Internal consistency reliability was ≄ 0.78 for all scales; test-retest reliability (intraclass correlation) estimates exceeded 0.70 for 6 scales. More hours weekly spent in caregiving was uniquely associated with worse quality of life on 8 scales (p's ≀ 0.05). Three higher-order dimensions of caregiving assistance, emotional and social concerns, and spirituality and benefits were identified.</p> <p>Conclusion</p> <p>These preliminary results support subsequent evaluation of test-retest reliability, construct validity, and responsiveness to change of this quality-of-life measure for caregivers from diverse ethnicities.</p
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