8 research outputs found

    Home is where the future is: The BrightFocus Foundation consensus panel on dementia care

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    IntroductionA national consensus panel was convened to develop recommendations on future directions for home‐based dementia care (HBDC).MethodsThe panel summarized advantages and challenges of shifting to HBDC as the nexus of care and developed consensus‐based recommendations.ResultsThe panel developed five core recommendations: (1) HBDC should be considered the nexus of new dementia models, from diagnosis to end of life in dementia; (2) new payment models are needed to support HBDC and reward integration of care; (3) a diverse new workforce that spans the care continuum should be prepared urgently; (4) new technologies to promote communication, monitoring/safety, and symptoms management must be tested, integrated, and deployed; and (5) targeted dissemination efforts for HBDC must be employed.DiscussionHBDC represents a promising paradigm shift to improve care for those living with dementia and their family caregivers: these recommendations provide a framework to chart a course forward for HBDC.HighlightsFive core BrightFocus Foundation panel recommendations:Home‐based dementia care should be considered the nexus of new long‐term care models.New payment models are needed to stimulate, reward, and support home care practices.A skilled new workforce spanning long‐term care needs to be developed and equipped.New technologies to promote best practices must be tested, integrated, and deployed.Value propositions and improved public health communication are needed.Peer Reviewedhttps://deepblue.lib.umich.edu/bitstream/2027.42/152597/1/alzjjalz201710006.pd

    Etude du Catabolisme du beta-AmyloĂŻde (de son implication dans la Maladie d'Alzheimer)

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    PARIS-BIUSJ-ThĂšses (751052125) / SudocPARIS-BIUSJ-Physique recherche (751052113) / SudocSudocFranceF

    Vers un consentement plus éclairé

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    Trop souvent, les notices d’information proposĂ©es dans le cadre de recherches cliniques se rĂ©duisent Ă  des documents rĂ©glementaires difficilement comprĂ©hensibles. Pourtant, les personnes concernĂ©es doivent avoir accĂšs Ă  une information transparente et loyale. Ces considĂ©rations ont motivĂ© la crĂ©ation d’un groupe de travail pluridisciplinaire, pilotĂ© par le CollĂšge des relecteurs de l’Inserm, associant les acteurs impliquĂ©s dans l’élaboration, l’évaluation et l’utilisation de ces notices d’information. Un ensemble de textes, pictogrammes et illustrations, adaptĂ©s aux personnes concernĂ©es, validĂ©s et facilement utilisables via une application a Ă©tĂ© crĂ©Ă©. Une phase pilote, dans le cadre du plan France mĂ©decine gĂ©nomique 2025, a permis de gĂ©nĂ©rer des notices simplifiĂ©es pour les examens gĂ©nĂ©tiques. Dans cet article, nous prĂ©sentons le travail rĂ©alisĂ© par le groupe de travail « Notices d’information » afin de rĂ©pondre Ă  la demande sociĂ©tale d’ĂȘtre acteur de son parcours de soin et de contribuer Ă  une recherche plus Ă©thique et responsable
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