3 research outputs found
Fast Forward to the Past: A Look into Palestinian Collective Memory
Pendant mes recherches dans les annĂ©es 1980 et 1990, jâai remarquĂ© que, lorsque des personnes Ă©taient interrogĂ©es de nouveau, et bien que les Ă©vĂ©nements fussent les mĂȘmes dans leur souvenir, leur façon de les raconter Ă©tait diffĂ©rente. De nombreux Ă©lĂ©ments interviennent dans la mise en forme de leur rĂ©cit, particuliĂšrement lorsque ceux-ci sont relatifs Ă des Ă©vĂ©nements politiques passĂ©s ; la difficultĂ© de sĂ©parer le personnel du gĂ©nĂ©ral. Les narrateurs jugent souvent le passĂ© Ă travers leur vision du prĂ©sent. Les changements dans leur perception des faits et leur propre Ă©volution Ă travers les ans modifient Ă©galement le rĂ©cit. On observe souvent un mĂ©lange entre mythe et rĂ©alitĂ©. La mĂ©moire transmise dâune gĂ©nĂ©ration Ă lâautre. Cela a jouĂ© un rĂŽle trĂšs important pour le peuple palestinien en exil. Les diffĂ©rences entre les rĂ©cits des Palestiniens en exil et ceux qui sont restĂ©s sur place. Les diffĂ©rences entre les rĂ©cits des diffĂ©rentes gĂ©nĂ©rations. Les diffĂ©rences entre les rĂ©cits des femmes et des hommes. Tous ces facteurs ont influencĂ© tant les changements dans la narration que la façon de re-raconter des narrateurs.During my research in the eighties and nineties I noticed that when the same people who were interviewed again, (though the events remain the same in their memory), the way they narrate them came differently. Many things interfere in shaping their narratives especially when related to political events of the past; the difficulty to separate the personal from the general. The narrator often judges the past through his/her view of the present. The changes in their perceptions of the events and themselves through the years, also changes the narration. There is often a mix up between myth and reality in the narration. The memory transmitted from generation to another. This played a very important role for the Palestinian people in Exile. The differences in the narration between Palestinians in Exile and those who remained in the homeland. The differences in the narrations between generations. The differences in the narration between women and men. All these factors have affected the changes in the narration, and the way narrators re-relay their stories
Pratiques dâenquĂȘtes
Les annĂ©es 1960 ont marquĂ© un tournant pour les recherches en littĂ©rature orale, tant du point de vue thĂ©orique que mĂ©thodologique. Ă partir de recherches, d'Ă©poques et de terrains diffĂ©rents, ce double numĂ©ro montre ce qu'apportent les avancĂ©es technologiques (de l'enregistreur cassette au numĂ©rique) dans les maniĂšres de concevoir la production orale (avec la question de la performance) et dans celles de sa restitution (notamment avec le numĂ©rique). Ces avancĂ©es ne peuvent toutefois ĂȘtre abordĂ©es sans une rĂ©flexion d'ordre Ă©thique ; rĂ©flexion qui ne laissent nullement indiffĂ©rents les collaborateurs de ce double numĂ©ro
Clinical and genetic characteristics of late-onset Huntington's disease
Background: The frequency of late-onset Huntington's disease (>59 years) is assumed to be low and the clinical course milder. However, previous literature on late-onset disease is scarce and inconclusive. Objective: Our aim is to study clinical characteristics of late-onset compared to common-onset HD patients in a large cohort of HD patients from the Registry database. Methods: Participants with late- and common-onset (30â50 years)were compared for first clinical symptoms, disease progression, CAG repeat size and family history. Participants with a missing CAG repeat size, a repeat size of â€35 or a UHDRS motor score of â€5 were excluded. Results: Of 6007 eligible participants, 687 had late-onset (11.4%) and 3216 (53.5%) common-onset HD. Late-onset (n = 577) had significantly more gait and balance problems as first symptom compared to common-onset (n = 2408) (P <.001). Overall motor and cognitive performance (P <.001) were worse, however only disease motor progression was slower (coefficient, â0.58; SE 0.16; P <.001) compared to the common-onset group. Repeat size was significantly lower in the late-onset (n = 40.8; SD 1.6) compared to common-onset (n = 44.4; SD 2.8) (P <.001). Fewer late-onset patients (n = 451) had a positive family history compared to common-onset (n = 2940) (P <.001). Conclusions: Late-onset patients present more frequently with gait and balance problems as first symptom, and disease progression is not milder compared to common-onset HD patients apart from motor progression. The family history is likely to be negative, which might make diagnosing HD more difficult in this population. However, the balance and gait problems might be helpful in diagnosing HD in elderly patients