82 research outputs found

    Navigating Matters of Concern in Participatory Design

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    Co-designing smart home technology with people with dementia or Parkinson's disease

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    Involving users is crucial to designing technology successfully, especially for vulnerable users in health and social care, yet detailed descriptions and critical reflections on the co-design process, techniques and methods are rare. This paper introduces the PERCEPT (PERrsona-CEntred Participatory Technology) approach for the co-design process and we analyse and discuss the lessons learned for each step in this process. We applied PERCEPT in a project to develop a smart home toolset that will allow a person living with early stage dementia or Parkinson's to plan, monitor and self-manage his or her life and well-being more effectively. We present a set of personas which were co-created with people and applied throughout the project in the co-design process. The approach presented in this paper will enable researchers and designers to better engage with target user groups in co-design and point to considerations to be made at each step for vulnerable users

    Informal carer role in the personalization of assistive solutions connected to aspirations of people with dementia

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    The increase in the elderly population over the last thirty years with consequent increase in the number of people living with dementia (PwD) has resulted in a research focus on improving quality-of-life and well-being beyond basic needs, to address psychosocial needs and to provide technological support for these. As part of a UK industry-led, publically supported, project Connect-ing Assistive Solutions to Aspirations (CASA), research is being conducted to inform the design of assistive technology packages that are aspiration-led. Focus groups were conducted with informal carers (family relatives) of persons with dementia to elicit views on technology use for increasing independence of PwD (with a carer living at home). The focus groups were analysed through thematic analysis and the results have been used to produce personas and scenarios for creation of demonstrator assisted living packages

    Ageing playfully:a story of forgetting and remembering

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    An increasing interest in exploring how digital innovation could support dementia care has been a leading research responding to e-health movements, from caregiving and medical perspectives. Little research has included perspectives of people with dementia; even fewer are concerned with the emotional side of the research experience per se. The aim of this case study is to open a space for a discussion of the impact that this process has on design researchers engaging in the area of dementia. Grounded in these two overlapping creative spaces, a methodology emerged that focused on adding design value to outcomes and to all stakeholders involved along the process. The Ageing Playfully project explored, through a series of playful workshops, the opportunities available for people with dementia to catalyse imagination and social interaction through co-design. Participating in Ageing Playfully were 12 co-designers with dementia, 2 healthcarers and 4 researchers from Lancaster University working in the areas of design, computer science and health studies. This paper recounts the experience of the design researchers as part of the team and constructs a narrative in which emerging methods together with personal experience are protagonists; a story that offers memories within the forgetful corners of the investigation

    Engaging people with dementia in designing playful and creative practices:Co-design or co-creation?

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    Stimulating active, social interactions for people with dementia is an important and timely chal- lenge that merits continuing attention in design research. The idea of using participatory co-design to engage people with dementia is attracting increased interest. In this paper, we draw on our qualitative study that used a playful, participatory arts approach to explore the ways co-design could be implemented in a group of 12 people with dementia and their carers, and developed practical recommendations, in the form of a set of playing cards, for other researchers and caregivers to work in similar ways. The emphasis is on the value of play and playfulness, providing a ‘magic circle’ (Huizinga, 1955) that fosters the required conditions for a co-creative, co-design space. This aims to encourage social interaction between people with dementia, to stimulate imagination and creativity; and engage even the most the reticent, less confident members. Our observations, however, suggest that the exact notion and nature of co-design within the context of working with people with dementia is unclear. We critically explore wheth- er such participatory creative practices that engage people with dementia can be considered as purely co-design. In conclusion, we argue that such interaction is better described as co-creation and that this definition can still embrace considerable contribution and involvement by people with dementia in a co-design process

    Co-design to support engagement in activities of daily living and meaningful activities for people living with dementia

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    Dementia is a chronic and progressive neurodegenerative illness, which can lead to significant difficulties in a person’s capacity to perform activities of daily living and engage in meaningful activities. The Smart Dementia Care project aims to establish an understanding of how best to design digital tools that persons with dementia and their carers will find useful and usable for care planning and goal setting. This paper discusses the first phase of this project and describes how co-design is being used to support engagement in activities of daily living and meaningful activities for people living with the early stages of dementia, with such engagement intended to extend the period of independent living for the person with dementia. It is anticipated that adopting a co-design approach and involving people living with dementia throughout the design cycle will allow for an application that is viewed as usable and intuitive while also acting as a tool of empowerment rather than a burden. At the same time, the intention is that integrating personalized goal-setting functionality focussing on individualized activities and everyday tasks will result in a system that is useful and effective
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