Attitudes Toward Advance Care Planning Among Persons with Dementia and their Caregivers

Objectives: To examine factors that influence decision-making, preferences, and plans related to advance care planning (ACP) and end-of-life care among persons with dementia and their caregivers, and examine how these may differ by race. Design: Cross-sectional survey. Setting: 13 geographically dispersed Alzheimer's Disease Centers across the United States. Participants: 431 racially diverse caregivers of persons with dementia. Measurements: Survey on "Care Planning for Individuals with Dementia." Results: The respondents were knowledgeable about dementia and hospice care, indicated the person with dementia would want comfort care at the end stage of illness, and reported high levels of both legal ACP (e.g., living will; 87%) and informal ACP discussions (79%) for the person with dementia. However, notable racial differences were present. Relative to white persons with dementia, African American persons with dementia were reported to have a lower preference for comfort care (81% vs. 58%) and lower rates of completion of legal ACP (89% vs. 73%). Racial differences in ACP and care preferences were also reflected in geographic differences. Additionally, African American study partners had a lower level of knowledge about dementia and reported a greater influence of religious/spiritual beliefs on the desired types of medical treatments. Notably, all respondents indicated that more information about the stages of dementia and end-of-life health care options would be helpful. Conclusions: Educational programs may be useful in reducing racial differences in attitudes towards ACP. These programs could focus on the clinical course of dementia and issues related to end-of-life care, including the importance of ACP

Ability and Willingness to Participate in Dementia Clinical Research: A Qualitative Study

Dementia clinical research studies have difficulty recruiting and enrolling participants and their study partners. Through convening and working with a community advisory board and the incorporation of the perspectives of people living with dementia and caregivers, this study utilized a community-engaged approach to identify factors affecting dementia clinical research participation

109 Age-Friendly Research Tools to Enhance Inclusion of Older Adults in Research

OBJECTIVES/GOALS: Older adults are often underrepresented in research due to recruitment and retention barriers, among others. Frameworks have been developed to address these barriers but have not been disseminated to research teams without aging expertise. We aimed to test Age-Friendly tools among non-aging-trained research teams. METHODS/STUDY POPULATION: Our team developed and/or adapted seven Age-Friendly research tools to improve inclusion of older adults in research. Tools included a communication guide, Age-Friendly research checklist, knowledge consent check, and condolence card template, among others. Non-aging-trained research team members (n= 21) were invited to pilot test them and share strengths, limitations, and areas for improvement for each tool. Feedback was collected for up to 4 months using REDCap surveys and analyzed for common themes. Participants provided written informed consent and received a stipend of $1000 upon the completion of the surveys. RESULTS/ANTICIPATED RESULTS: Sixteen participants (76%) from primarily cancer and neurology departments completed at least one survey. The communication guide, research checklist, and knowledge check were implemented the most within the participants' study populations. Participants shared that the tools were user-friendly, easy to access, and well-explained through webinar trainings (offered separately) or instruction sheets. The most frequently reported barriers were lack of time, industry-sponsored trial restrictions, and lack of age-appropriate study populations. DISCUSSION/SIGNIFICANCE: Age-Friendly tools were acceptable and valuable among non-aging-trained research members. Dissemination of these tools could improve the experience for research teams and older adults and help align demographics of enrolled study populations with demographics of the condition being studied

sj-docx-1-ggm-10.1177_23337214241236037 – Supplemental material for Age-Friendly Research: A Pilot Exploration of Tools to Facilitate Inclusion of Older Adults in Research

Supplemental material, sj-docx-1-ggm-10.1177_23337214241236037 for Age-Friendly Research: A Pilot Exploration of Tools to Facilitate Inclusion of Older Adults in Research by Bryanna De Lima, Allison Lindauer and Elizabeth Eckstrom in Gerontology and Geriatric Medicine</p

sj-docx-2-ggm-10.1177_23337214241236037 – Supplemental material for Age-Friendly Research: A Pilot Exploration of Tools to Facilitate Inclusion of Older Adults in Research

Supplemental material, sj-docx-2-ggm-10.1177_23337214241236037 for Age-Friendly Research: A Pilot Exploration of Tools to Facilitate Inclusion of Older Adults in Research by Bryanna De Lima, Allison Lindauer and Elizabeth Eckstrom in Gerontology and Geriatric Medicine</p

[Td‐P‐007]: Star‐C‐Telemedicine: Accessible Caregiver Support

Peer Reviewedhttps://deepblue.lib.umich.edu/bitstream/2027.42/152839/1/alzjjalz2017062603.pd