Exploring Participatory Design Methods to Engage with Arab Communities

ArabHCI is an initiative inaugurated in CHI17 SIG Meeting that brought together 45+ HCI Arab and non-Arab researchers/practitioners who are conducting/interested in HCI within Arab communities. The goal of this workshop is to start dialogs that leverage our "insider" understanding of HCI research in the Arab context and assert our culture identity in design in order to explore challenges and opportunities for future research. In this workshop, we focus on one of the themes that derived our community discussions in most of the held events. We explore the extent to which participatory approaches in the Arab context are culturally and methodologically challenged. Our goal is to bring researchers/practitioners with success and failure stories while designing with Arab communities to discuss methods, share experiences and learned lessons. We plan to share the results of our discussions and research agenda with the wider CHI community through different social and scholarly channels

Lessons learned from hemolytic uremic syndrome registries: recommendations for implementation

Background: Hemolytic uremic syndrome (HUS) is a rare condition which diagnosed with the triad of thrombocytopenia, microangiopathic hemolytic anemia, and acute renal injury. There is a high requirement for research to discover treatments. HUS registries can be used as an important information infrastructure. In this study, we identified and compared the different features of HUS registries to present a guide for the development and implementation of HUS registries. Results: The purposes of registries were classified as clinical (9 registries), research (7 registries), and epidemiological (5 registries), and only 3 registries pursued all three types of purposes. The data set included demographic data, medical and family history, para-clinical and diagnostic measures, treatment and pharmacological data, complications, and outcomes. The assessment strategies of data quality included monthly evaluation and data audit, the participation of physicians to collect data, editing and correcting data errors, increasing the rate of data completion, following guidelines and data quality training, using specific data quality indicators, and real-time evaluation of data at the time of data entry. 8 registries include atypical HUS patients, and 7 registries include all patients regardless of age. Only two registries focused on children. 4 registries apply prospective and 4 applied both prospective, and retrospective data collection. Finally, specialized hospitals were the main data source for these registries. Conclusion: Based on the findings, we suggested a learning framework for developing and implementing an HUS registry. This framework includes lessons learned and suggestions for HUS registry purposes, minimum data set, data quality assurance, data collection methods, inclusion and exclusion criteria as well as data sources. This framework can help researchers develop HUS registries. © 2021, The Author(s)

A systematic review of the use of telemedicine in the military forces worldwide

Context: Considering the pivotal role of telemedicine in providing healthcare services for remote areas, some of the military medical centers, especially in developed countries, use different types of telemedicine programs. Objectives: The present study aimed at identifying the implemented telemedicine projects in military medicine worldwide and introducing their features. Evidence Acquisition: The current systematic review was performed in 2018. PubMed, Scopus, Embase, and Web of Science databases were searched for articles published from 2014 to 2018 by a combination of related keywords, and the related original articles were then selected based on the inclusion and exclusion criteria. Data were collected by a data extraction form, and then the data were summarized and reported based on the study objectives. Results: Of the 173 articles retrieved from the first round of search, 12 were included in the study; five (41.66) studies had used the synchronous (real-time telemedicine) method. The United States, with nine studies, had the highest number of projects in military telemedicine. Most studies (n = 7) were performed on tele-psychology and the application of telemedicine in psychology. All selected studies reported the positive effects of telemedicine on providing healthcare for military forces. Conclusions: The proper utilization of telemedicine equipment is effective in saving time for both patients and healthcare providers, reducing costs, supporting in natural disasters, and satisfying patients with military medicine. To achieve telemedicine program objectives, they should be set precisely. Considering the importance of timely healthcare services, it is suggested to utilize synchronous methods and tools such as video conferencing. © 2020, Author(s)

Artificially Intelligent Technology for the Margins: A Multidisciplinary Design Agenda

There has been increasing interest in socially just use of Artificial Intelligence (AI) and Machine Learning (ML) in the development of technology that may be extended to marginalized people. However, the exploration of such technologies entails the development of an understanding of how they may increase and/or counter marginalization. The use of AI/ML algorithms can lead to several challenges, such as privacy and security concerns, biases, unfairness, and lack of cultural awareness, which especially affect marginalized people. This workshop will provide a forum to share experiences and challenges of developing AI/ML health and social wellbeing technologies with/for marginalized people and will work towards developing design methods to engage in the re-envisioning of AI/ML technologies for and with marginalized people. In doing so we will create cross-research area dialogues and collaborations. These discussions build a basis to (1) explore potential tools to support designing AI/ML systems with marginalized people, and (2) develop a design agenda for future research and AI/ML technology for and with marginalized people

The extent of evidence supporting the effectiveness of extended reality telerehabilitation on different qualitative and quantitative outcomes in stroke survivors: A systematic review

This is the final version. Available on open access from MDPI via the DOI in this record. Data Availability Statement: Data are contained within this article or the Supplementary Materials.Objective: To present the extent of evidence concerning the effectiveness of extended reality telerehabilitation and patients' experiences of using different types of virtual reality exercises at home. Methods: We included studies on virtual reality and augmented reality telerehabilitation published in English. Systematic searches were undertaken in PubMed, Web of Sciences, Medline, Embase, CINAHL, and PEDro, with no date limitations. We included only RCTs and qualitative studies exploring patients' experiences. Methodological quality was assessed using the Cochrane Risk of Bias assessment tool for quantitative papers and the CASP scale for qualitative studies. All results are presented narratively. Results: Thirteen studies, nine quantitative and four qualitative, were included, with one qualitative and seven quantitative having a high risk of bias. All studies reported that extended reality-based telerehabilitation may be effective compared to conventional exercises or other extended reality exercises. Seven quantitative studies focused on upper limb function. Qualitative papers suggested that VR exercises were perceived as feasible by patients. Conclusions: The literature suggests VR home exercises are feasible and potentially effective for patients after a stroke in the upper limb. Further high-quality studies are needed to examine the effectiveness of XR exercises early adoption on different qualitative and quantitative outcomes. Registration number: (CRD42022384356).Egypt Ministry of Higher Education, Cultural Affairs, and Missions SectorNational Institute for Health and Care Research (NIHR