13 research outputs found

    FEMaLe: The use of machine learning for early diagnosis of endometriosis based on patient self-reported data—Study protocol of a multicenter trial

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    Introduction: Endometriosis is a chronic disease that affects up to 190 million women and those assigned female at birth and remains unresolved mainly in terms of etiology and optimal therapy. It is defined by the presence of endometrium-like tissue outside the uterine cavity and is commonly associated with chronic pelvic pain, infertility, and decreased quality of life. Despite the availability of various screening methods (e.g., biomarkers, genomic analysis, imaging techniques) intended to replace the need for invasive surgery, the time to diagnosis remains in the range of 4 to 11 years. Aims: This study aims to create a large prospective data bank using the Lucy mobile health application (Lucy app) and analyze patient profiles and structured clinical data. In addition, we will investigate the association of removed or restricted dietary components with quality of life, pain, and central pain sensitization. Methods: A baseline and a longitudinal questionnaire in the Lucy app collects real-world, self-reported information on symptoms of endometriosis, socio-demographics, mental and physical health, economic factors, nutritional, and other lifestyle factors. 5,000 women with confirmed endometriosis and 5,000 women without diagnosed endometriosis in a control group will be enrolled and followed up for one year. With this information, any connections between recorded symptoms and endometriosis will be analyzed using machine learning. Conclusions: We aim to develop a phenotypic description of women with endometriosis by linking the collected data with existing registry-based information on endometriosis diagnosis, healthcare utilization, and big data approach. This may help to achieve earlier detection of endometriosis with pelvic pain and significantly reduce the current diagnostic delay. Additionally, we may identify dietary components that worsen the quality of life and pain in women with endometriosis, upon which we can create real-world data-based nutritional recommendations

    Use of quality circles for primary care providers in 24 European countries: an online survey of European Society for Quality and Safety in family practice delegates.

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    To identify and describe the core characteristics and the spread of quality circles in primary healthcare in European countries. An online survey was conducted among European Society for Quality and Safety in Family Practice (EQuiP) delegates. To allow comparison with earlier results, a similar survey as in a study from 2000 was used. Primary Health Care in European countries. General practitioners, delegated experts of the European Society for Quality and Safety in Family Practice (EQuiP). (1) Attendance in quality circles (2) their objectives (3) methods of quality improvement quality circles use (4) facilitator's role and training (5) role of institutions (6) supporting material and data sources quality circles use. 76% of the delegates responded, representing 24 of 25 countries. In 13 countries, more than 10% of general practitioners participated in quality circles, compared with eight countries in 2000. The focus of quality circles moved from continuous medical education to quality improvement. Currently, quality circles groups use case-based discussions, educational materials and local opinion leaders in addition to audit and feedback. Some national institutions provide training for facilitators and data support for quality circle groups. The use of quality circles has increased in European countries with a shift in focus from continuous medical education to quality improvement. Well-trained facilitators are important, as is the use of varying didactic methods and quality improvement tools. Qualitative inquiry is necessary to examine why QCs thrive or fail in different countries and systems. KEY POINTS Countries with already established quality circle movements increased their participation rate and extended their range of quality circle activities The focus of quality circles has moved from CME/CPD to quality improvement Well-trained facilitators are important, as is the use of varying didactic methods and quality improvement tools Institutions should provide supporting material and training for facilitators

    Lessons learned : how did the pandemic initiated innovations in family medicine to ensure high-quality care?

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    COVID-19 confronted general practices with unprecedented challenges to fulfil their key role for COVID-and non-COVID patients. These boosted the initiation of innovations to ensure high-quality care: for example, physical consultations were replaced by remote consultations and initiatives were set up to actively reach out to vulnerable patients. General practitioners and associated staff have also had to take up new tasks or take tasks over from others. Based on PRICOV-19, two research questions were central: To what extent have general practices initiated innovations during COVID-19? How can we explain its variation based on practice-and country characteristics? The PRICOV-19 study examined how general practices were organized in 38 countries during COVID-19. Thanks to its scale and multi-country design, PRICOV-19 can identify practice- and healthcare system characteristics associated with initiating innovations. In 2020-2021, over 5,000 general practices participated by filling in a validated questionnaire. Target group: Healthcare professionals, researchers, and policymakers focusing on primary care and quality of care Didactic Method: Interactive presentation on PRICOV-19 followed by small-group sessions to reflect and comment on some aspects. Afterwards, these results were resumed in a plenary session. Objectives: -Getting familiar with PRICOV-19, a multi-country cross-sectional study on the organization of general practice during COVID-19. -Getting an in-depth understanding of the results from different countries and their variation. -Reflecting on enablers and challenges to initiate innovations in general practice the respondents experienced in their own practice/country. -Gaining inspiration from the experiences and input of colleagues/experts
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