8 research outputs found

    Zachte Wacht: a concept promoting long-term social support for CSN parents

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    When a child with special needs is born, the lives of all family members radically change, and so does their family culture. For the well-being of their parents, it is crucial that they feel connected with the people in their surroundings, for fulfilling their fundamental human needs, for maintaining their connection with their surrounding culture, and to get support in the many challenges they encounter. Therefore, the first aim of this graduation project is to provide the designers of Ontzorghuis with an overview of information that contributes to their understanding of the bigger picture regarding the relationship between CSN parents and the people in their surroundings. Insights from literature research, interviews with experts, and contextmapping research with 6 highly educated CSN parents with Dutch heritage, have resulted in 3 overviews of information. The Opportunity Framework lays out the different levels in capacities that CSN parents desire from people in their social surroundings, going from a vague acquaintance to a close friend. The Framework of Values illustrates 3 influential values of CSN parents, to better understand what is important to them and how their coping strategies are affected. The Practical Learnings and Attitudes offers designers an understanding on a more practical level. It offers insight into the psychological challenges CSN parents can face, navigating their own and other people’s expectations and attitudes. Secondly, this project proposes a design intervention that supports CSN parents in awaking a feeling of ownership among a few people in their social surroundings. The final design is a DIY-booklet with the following key aspects: it invites CSN parents to be soft with themselves, it promotes the common recognition and acceptance of long-term social support, and it inspires CSN parents to make it a positive event to ask for long-term support. The main message incorporated in the booklet is: it is important to be kind to yourself and it is okay to need support. First, the booklet introduces them to the novel concept of ‘zachte wacht’ or soft guard, a long-term social support circle for CSN parents. Secondly, it encourages them to reflect on what they expect of themselves, what they need to stay on their feet in the long term, and what they can expect of people in their surroundings. Thirdly, it guides CSN parents through the steps of setting up their own support circle, the final step being a small ceremony to seal their supporters' commitment. Although there is still room for iteration, the evaluations of 6 CSN parents demonstrated that the design is desirable for the target group. Everyone that expressed their opinion of the zachte wacht, CSN parents as well as experts, considered it to be a beautiful concept. The design capabilities, understanding of the target group, and network needed to implement the booklet and other aspects of the concept are a perfect fit with the unique strengths of Ontzorghuis. The concept has the potential to appeal to a large and growing target group. Moreover, promising opportunities for collaborations, funding, and subsidies are awaiting.Design for Interactio

    Haaien en roggen in de Noordzee : Stand van zaken in wetenschap en beleid voor elasmobranchen op het NCP

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    Building Public Services Through the Nonprofit Sector: Exploring the Risks of Rapid, Government Funded Growth in Human Service Organizations

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