Development of a reliable, valid measure to assess parents' and teachers' understanding of postural care for children EKHUT Internal Grant Reportwith physical disabilities.

Schools play an important role in facilitating the day time aspects of postural management programmes for children with physical disabilities, enabling children to participate at school and engage in functional tasks associated with school work; however, the majority of teachers and teaching assistants are inexperienced and lack confidence in how to manage the needs of children with a physical disability (Hutton & Coxon 2010). “Definition: A postural management programme is a planned approach encompassing all activities and interventions which impact on an individual's posture and function. Programmes are tailored specifically for each child and may include special seating, night-time support, standing supports, active exercise, orthotics, surgical interventions, and individual therapy sessions. Gericke (2006) A small exploratory study of the views of teachers and teaching assistants recommended that information about postural care be made widely available to parents and teachers in order to assist them in their role as care givers for children with disabilities. In response to these findings, a booklet, the “A-Z of Postural Care” was developed by a team of researchers, therapists, teachers and parents of children with a disability (Hutton et al., 2009)

Understanding the support needs of disabled children and their families in East Kent

Title: Understanding the support needs of disabled children and their families in East Kent Objective: Explore the support needs of parents and carers of children with physical disabilities (< 18 years) within a therapy service in the South East of England. Method: Qualitative methods were used including focus groups and interviews with 9 parents/carers of children with a physical disability. Framework analysis approach was used to analyse the data. Results: Data was organised into the following themes. ? Parent and carer experiences of using services including direct experience of therapy services ? Education ? Organisation of services and access to information ? Impact of disability on family and carer life ? Experiences and views of personalised care. Conclusions: Parents and carers had varied experiences of therapy services. Parents and carers valued close relationships established over time when therapists had knowledge and understanding of their child and family situation. Families experienced most difficulty over the provision of equipment and poor liaison between different parts of the care system added to stress and frustration. Few parents and carers had knowledge or awareness of personal health budgets and were unsure about whether a personal budget would improve their access to or experience of therapy

Interventions to improve continence for children and young people with neurodisability: a national survey of practitioner and family perspectives and experiences.

Objective Describe families’ experiences of interventions to improve continence in children and young people with neurodisability, and health professionals’ and school and social care staff’s perspectives regarding factors affecting intervention use. Design Four online surveys were developed and advertised to parent carers, young people with neurodisability, health professionals and school and social care staff, via societies, charities, professional contacts, schools, local authorities, and national parent carer and family forums, who shared invitations with their networks. Survey questions explored: difficulties helping children and young people use interventions; acceptability of interventions and waiting times; ease of use and availability of interventions, and facilitators and barriers to improving continence. Results 1028 parent carers, 26 young people, 352 health professionals and 202 school and social care staff registered to participate. Completed surveys were received from 579 (56.3%) parent carers, 20 (77%) young people, 193 (54.8%) health professionals, and 119 (58.9%) school and social care staff. Common parent carer-reported difficulties in using interventions to help their children and young people to learn to use the toilet included their child’s lack of understanding about what was required (reported by 337 of 556 (60.6%) parent carers who completed question) and their child’s lack of willingness (343 of 556, 61.7%). Almost all (142 of 156, 91%) health professionals reported lack of funding and resources as barriers to provision of continence services. Many young people (14 of 19, 74%) were unhappy using toilet facilities while out and about. Conclusions Perceptions that children lack understanding and willingness, and inadequate facilities impact the implementation of toileting interventions for children and young people with neurodisability. Greater understanding is needed for children to learn developmentally appropriate toileting skills. Further research is recommended around availability and acceptability of interventions to ensure quality of life is unaffected

Bmp7 Regulates the Survival, Proliferation, and Neurogenic Properties of Neural Progenitor Cells during Corticogenesis in the Mouse

Bone morphogenetic proteins (BMPs) are considered important regulators of neural development. However, results mainly from a wide set of in vitro gain-of-function experiments are conflicting since these show that BMPs can act either as inhibitors or promoters of neurogenesis. Here, we report a specific and non-redundant role for BMP7 in cortical neurogenesis in vivo using knockout mice. Bmp7 is produced in regions adjacent to the developing cortex; the hem, meninges, and choroid plexus, and can be detected in the cerebrospinal fluid. Bmp7 deletion results in reduced cortical thickening, impaired neurogenesis, and loss of radial glia attachment to the meninges. Subsequent in vitro analyses of E14.5 cortical cells revealed that lack of Bmp7 affects neural progenitor cells, evidenced by their reduced proliferation, survival and self-renewal capacity. Addition of BMP7 was able to rescue these proliferation and survival defects. In addition, at the developmental stage E14.5 Bmp7 was also required to maintain Ngn2 expression in the subventricular zone. These data demonstrate a novel role for Bmp7 in the embryonic mouse cortex: Bmp7 nurtures radial glia cells and regulates fundamental properties of neural progenitor cells that subsequently affect Ngn2-dependent neurogenesis

POSTED Training

Dr Kate Hamilton-West, a chartered psychologist and member of the POSTED research team talks about why the programme was developed and the role of self-efficacy in developing the confidence of parents and teachers responsible for the postural care needs of children with physical disabilities