Incorporating usability evaluation into iterative development of an online platform to support research participation in Parkinson\u27s disease: A mixed methods protocol

\ua9 Author(s) (or their employer(s)) 2023. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ. Introduction Many people with Parkinson\u27s (PwP) are not given the opportunity or do not have adequate access to participate in clinical research. To address this, we have codeveloped with users an online platform that connects PwP to clinical studies in their local area. It enables site staff to communicate with potential participants and aims to increase the participation of the Parkinson\u27s community in research. This protocol outlines the mixed methods study protocol for the usability testing of the platform. Methods and analysis We will seek user input to finalise the platform\u27s design, which will then be deployed in a limited launch for beta testing. The beta version will be used as a recruitment tool for up to three studies with multiple UK sites. Usability data will be collected from the three intended user groups: PwP, care partners acting on their behalf and site study coordinators. Usability questionnaires and website analytics will be used to capture user experience quantitatively, and a purposive sample of users will be invited to provide further feedback via semistructured interviews. Quantitative data will be analysed using descriptive statistics, and a thematic analysis undertaken for interview data. Data from this study will inform future platform iterations. Ethics and dissemination Ethical approval was obtained from the University of Plymouth (3291; 3 May 2022). We will share our findings via a \u27Latest News\u27 section within the platform, presentations, conference meetings and national PwP networks

Clinician and carer moral concerns when caring for children who tube-feed.

Child healthcare can be vexed by moral concerns - this extends to the care of children who tube-feed. Children who tube-feed often receive care from family members and clinicians of various disciplines. Each brings expertise, experiences, values, and views to a situation, prioritising the child's needs while attending to those they deem important in potentially disparate ways. Their understanding of a situation is shaped by beliefs, feelings, and perceptions. How then are key decisions made about the care of a child who tube-feeds? This article explores clinicians' and carers' moral concerns when caring for children who tube-feed. Interviews with clinicians (n = 9) and carers (n = 9) clarified three findings: first, there are often disparate beliefs about the need for tube-feeding; second, tube-feeding can evoke strong emotions; and third, it can be difficult to normalise tube-feeding. This article demonstrates how challenges can emerge when relationships between clinicians and carers diverge. Furthermore, it establishes how an ethic of care can bring different interests together to bolster the relationships required to optimise feeding care and promote health outcomes among children who tube-feed and their carers. This requires improved dialogue between and among clinicians and carers to create shared understandings of what is, what should be, and how to benefit children who tube-feed

Lights, Camera, Action! Exploring Effects of Visual Distractions on Completion of Security Tasks

Human errors in performing security-critical tasks are typically blamed on the complexity of those tasks. However, such errors can also occur because of (possibly unexpected) sensory distractions. A sensory distraction that produces negative effects can be abused by the adversary that controls the environment. Meanwhile, a distraction with positive effects can be artificially introduced to improve user performance. The goal of this work is to explore the effects of visual stimuli on the performance of security-critical tasks. To this end, we experimented with a large number of subjects who were exposed to a range of unexpected visual stimuli while attempting to perform Bluetooth Pairing. Our results clearly demonstrate substantially increased task completion times and markedly lower task success rates. These negative effects are noteworthy, especially, when contrasted with prior results on audio distractions which had positive effects on performance of similar tasks. Experiments were conducted in a novel (fully automated and completely unattended) experimental environment. This yielded more uniform experiments, better scalability and significantly lower financial and logistical burdens. We discuss this experience, including benefits and limitations of the unattended automated experiment paradigm

Impaired automatic but intact volitional inhibition in primary tic disorders

The defining character of tics is that they can be transiently suppressed by volitional effort of will, and at a behavioural level this has led to the concept that tics result from a failure of inhibition. However, this logic conflates the mechanism responsible for the production of tics with that used in suppressing them. Volitional inhibition of motor output could be increased to prevent the tic from reaching the threshold for expression, although this has been extensively investigated with conflicting results. Alternatively, automatic inhibition could prevent the initial excitation of the striatal tic focus—a hypothesis we have previously introduced. To reconcile these competing hypotheses, we examined different types of motor inhibition in a group of 19 patients with primary tic disorders and 15 healthy volunteers. We probed proactive and reactive inhibition using the conditional stop-signal task, and applied transcranial magnetic stimulation to the motor cortex, to assess movement preparation and execution. We assessed automatic motor inhibition with the masked priming task. We found that volitional movement preparation, execution and inhibition (proactive and reactive) were not impaired in tic disorders. We speculate that these mechanisms are recruited during volitional tic suppression, and that they prevent expression of the tic by inhibiting the nascent excitation released by the tic generator. In contrast, automatic inhibition was abnormal/impaired in patients with tic disorders. In the masked priming task, positive and negative compatibility effects were found for healthy controls, whereas patients with tics exhibited strong positive compatibility effects, but no negative compatibility effect indicative of impaired automatic inhibition. Patients also made more errors on the masked priming task than healthy control subjects and the types of errors were consistent with impaired automatic inhibition. Errors associated with impaired automatic inhibition were positively correlated with tic severity. We conclude that voluntary movement preparation/generation and volitional inhibition are normal in tic disorders, whereas automatic inhibition is impaired—a deficit that correlated with tic severity and thus may constitute a potential mechanism by which tics are generated

Cavitation Damage During Flexural Creep of SiAlON–YAG Ceramics

Peer Reviewedhttp://deepblue.lib.umich.edu/bitstream/2027.42/65505/1/j.1151-2916.1991.tb07156.x.pd

Incorporating usability evaluation into iterative development of an online platform to support research participation in Parkinson’s disease: a mixed methods protocol

Abstract Introduction Many people with Parkinson’s (PwP) are not given the opportunity or do not have adequate access to participate in clinical research. To address this, we have codeveloped with users an online platform that connects PwP to clinical studies in their local area. It enables site staff to communicate with potential participants and aims to increase the participation of the Parkinson’s community in research. This protocol outlines the mixed methods study protocol for the usability testing of the platform. Methods and analysis We will seek user input to finalise the platform’s design, which will then be deployed in a limited launch for beta testing. The beta version will be used as a recruitment tool for up to three studies with multiple UK sites. Usability data will be collected from the three intended user groups: PwP, care partners acting on their behalf and site study coordinators. Usability questionnaires and website analytics will be used to capture user experience quantitatively, and a purposive sample of users will be invited to provide further feedback via semistructured interviews. Quantitative data will be analysed using descriptive statistics, and a thematic analysis undertaken for interview data. Data from this study will inform future platform iterations. Ethics and dissemination Ethical approval was obtained from the University of Plymouth (3291; 3 May 2022). We will share our findings via a ‘Latest News’ section within the platform, presentations, conference meetings and national PwP networks

Researching retired ex-servicemen: reflections on ethnographic encounters

The opportunities and challenges that younger, female, civilian researchers can encounter when undertaking ethnographic research with predominantly male military veterans are relatively underexplored sociologically. This is despite a growing literature on reflexivity in military studies over the past decade. To address this gap, we draw on symbolic interactionist insights to examine the reflective account of a British, female researcher in her mid-20s, who conducted qualitative research with 20 ‘older’ (aged 60+) retired servicemen from the Royal British Legion, a United Kingdom charity providing support for military veterans and their families. The study explored ex-servicemen’s embodied experiences of physical activity. The findings presented here cohere around four salient themes identified in the ethnographic reflections: (1) researcher positionality as a young, female, civilian researcher in a traditionally masculine militarised world; (2) managing distressing topics and interactional discomfort; (3) maintaining an ‘ethic of care’; and (4) dilemmas regarding representational issues and ex-servicemen’s embodied experiences

Participatory systems modelling for youth mental health: an evaluation study applying a comprehensive multi-scale framework

The youth mental health sector is persistently challenged by issues such as service fragmentation and inefficient resource allocation. Systems modelling and simulation, particularly utilizing participatory approaches, is offering promise in supporting evidence-informed decision making with limited resources by testing alternative strategies in safe virtual environments before implementing them in the real world. However, improved evaluation efforts are needed to understand the critical elements involved in and to improve methods for implementing participatory modelling for youth mental health system and service delivery. An evaluation protocol is described to evaluate the feasibility, value, impact, and sustainability of participatory systems modelling in delivering advanced decision support capabilities for youth mental health. This study applies a comprehensive multi-scale evaluation framework, drawing on participatory action research principles as well as formative, summative, process, and outcome evaluation techniques. Novel data collection procedures are presented, including online surveys that incorporate gamification to enable social network analysis and patient journey mapping. The evaluation approach also explores the experiences of diverse stakeholders, including young people with lived (or living) experience of mental illness. Social and technical opportunities will be uncovered, as well as challenges implementing these interdisciplinary methods in complex settings to improve youth mental health policy, planning, and outcomes. This study protocol can also be adapted for broader international applications, disciplines, and contexts

From a certain point of view: sensory phenomenological envisionings of running space and place

The precise ways in which we go about the mundane, repetitive, social actions of everyday life are central concerns of ethnographers and theorists working within the traditions of the sociology of the mundane and sociological phenomenology. In this article, we utilize insights derived from sociological phenomenology and the newly developing field of sensory sociology to investigate a particular, mundane, and embodied social practice, that of training for distance running in specific places: our favored running routes. For, despite a growing body of ethnographic studies of particular sports, little analytic attention has been devoted to the actual, concrete practices of “doing” or “producing” sporting activity, particularly from a sensory ethnographic perspective. Drawing upon data from a 2-year joint autoethnographic research project, here we explore the visual dimension, focusing upon three key themes in relation to our runners’ visualization of, respectively, (1) hazardous places, (2) performance places, (3) the time–space–place nexus

The relationship work of sexual intimacy in long-term heterosexual and LGBTQ partnerships

Sex is perceived as crucial to relationship success. This article reveals how sexual intimacy is part of the relationship work that couples ordinarily complete to sustain their partnerships over time. It problematizes the binary logics of good–bad sex, female–male desire, and homo–heterosexual difference and shows how fluctuations of desire and/or sexual capacity are managed by couples through intimate knowledge. Findings presented here derive from a multiple methods study with 50 long-term heterosexual and LGBTQ partnerships. I demonstrate how the absence of normative sexual scripts enables queer couples to more readily manage sexual discrepancies. Gendered differences and inequalities persist within many heterosexual relationships while reflexivity and increased openness characterizes queer coupledom. Women and LGBTQ couples are more inclined to deploy humour to diffuse difficult situations and in this context gay men are akin to women more so than heterosexual men