A pilot study of subjective well-being in colorectal cancer patients and their caregivers

Background: Traditional endpoints in oncology are based on measuring the tumor size and combining this with a time factor. Current studies with immunotherapy show that even when median survival is unaltered, a significant proportion of patients can achieve prolonged survival. Objective tumor response does not always mean “overall” improvement, especially if toxicity is harsh. Novel agents are significantly expensive, and it is therefore crucial to measure the impact on “quality” of life, in addition to “quantity”. Materials and methods: We studied the preferences and experiences of cancer patients and their caregivers, measuring subjective well-being (SWB) ratings, EQ5D descriptions and time trade-off preferences. Results: We studied 99 patients and 88 caregivers. Life satisfaction ratings were similar between the two groups, but daily mood was significantly lower in caregivers (P<0.1). Anxiety/depression affected SWB, while pain and mobility did not. Positive thoughts about health were associated with better daily moods in both groups, and stage IV cancer was associated with lower life satisfaction. Cancer in remission was associated with better daily moods, but, interestingly, not with patient life satisfaction. Patients with better daily mood and positive thoughts about family were less willing to “trade-off” life years. Conclusion: Caregivers are as anxious or depressed as patients, and report similar levels of life satisfaction but lower daily mood. A focus on SWB could provide a valid assessment of treatment benefit. Given the interesting results of this pilot study, we suggest a larger study should be conducted, measuring SWB over time

Networks of communities and communities of networks in online government

Over the past decade the World Wide Web has become a core platform for the electronic operation of government. Yet the shape and nature of government presence on the Web and the online community in which it resides remains poorly understood and relatively under-theorised. This paper analyses large-scale web crawling data that map the hyperlink network structure between government websites and the broader Web ecology in the UK. In particular, it reports the ‘communities’ of websites within a hyperlink network of over 19,000 websites and over 135,000 hyperlinks derived from 75 key UK government seed sites at national, regional (i.e. Scotland and Wales) and local government levels. These website communities were derived by utilising Infomap, a state-of-the-art community detection algorithm that operate on the principle that flows of information in complex networks reveals community structure. Identifying and analysing online communities in which government websites reside provides insights in how hyperlink communities are arranged, that is, their emergent organizing principal and the importance of government in these online communities. It is hypothesized that online ‘communities’ can occur around different policy topics (such as health, education or policing), or along institutional or jurisdictional boundaries (such as England, Scotland and Wales). Using this novel approach this paper demonstrates that communities emerge on both axes, and that social media and government portals are some of the most significant communities based on information flows. This research provides foundational knowledge about the role of government websites in the World Wide Web, the emergent online associations, and the changing dynamic of state information in the twenty-first century. It points to strategies for developing government Web presence in networks that matter

Social policy on the Web: the online institutional structure of social policy domains in the UK

Our traditional image of government is often of the Parliament or of bricks and mortar government service delivery offices, such as NHS hospitals or Benefits Agency sites. However, in an online world, government is increasingly seen and experienced through the internet. Moreover, in the online world, government websites can be readily connected into hyperlink networks. What do the online 'footprints' of social policy domains look like? And how do these online social policy networks relate to equivalent offline networks? This paper examines these questions in relation to three policy domains in the United Kingdom, namely: foreign affairs, health and education. It draws on large-scale web crawls and sophisticated web-metrics and Social Network Analysis techniques to map and compare the shapes of these different policy domains. It explores the shape, nature and make-up of these various online networks and the participants in them, including the relevant contribution of non-government and commercial websites. It considers whether or not online networks may reflect or contribute to social policy networks, or government ambitions of 'joined-up' service delivery, and whether jurisdictional boundaries are evident in the online world. In examining these topics, this paper seeks to provide an empirical and conceptual contribution to understanding 21 government and service delivery

Second Set of Spaces

This document describes the Gloss infrastructure supporting implementation of location-aware services. The document is in two parts. The first part describes software architecture for the smart space. As described in D8, a local architecture provides a framework for constructing Gloss applications, termed assemblies, that run on individual physical nodes, whereas a global architecture defines an overlay network for linking individual assemblies. The second part outlines the hardware installation for local sensing. This describes the first phase of the installation in Strathclyde University

Promoting environmental management in very small businesses through “Green Angels” in a local collaborative partnership: a case study from Brighton, England

This paper describes the results of the East Brighton Employment and Environment Centre (EBEEC), a 15 month URBAN project, promoting environmental management to very small businesses in east Brighton, England. Some 31 volunteers, termed `Green Angels`, were trained in waste minimisation at the University of Brighton, and provided practical support to local firms through site reviews and research. The EBEEC project provided information and support to some 600 SMEs in east Brighton, via newsletters, email, telephone helpline, seminars and other projects. The Project was managed by a collaborative partnership formed from regional as well as local organisations. The involvement of a University to train potential `Green Angels`, so as to support SMEs in an area designated for economic regeneration, was an innovative and successful method of providing environmental management support to small firms. To stimulate the uptake of environmental management, case study material based on Best Practice was produced and disseminated to local companies via an Internet Site. A CD-Rom containing the Green Angel training package has been produced to help other projects like this. The outcomes from this Project will inform the regional and potentially the national approach to providing environmental business support and advice via local collaborative partnerships containing Universities