Cultural adaptation to Brazil of the questionnaire Costs of caring for children with cancer.

Objectiveto present the cultural adaptation of the questionnaire Costs of caring for children with cancer, offering a valid and reliable tool to assess the economic repercussions of childhood cancer for Brazilian families.Methodit is a methodological research with a cross-sectional design. The methodological framework to validate the questionnaire was a combined process that included seven steps: translation to Portuguese; first translated consensus version; evaluation by Expert Committee; consensus on the Expert Committee version; back-translation; consensus of back-translated versions; semantic validation. The study was conducted in two phases: phase one was the translation and back-translations process, with five expert committee members. Phase two was the semantic validation, with 24 participants, who answered an instrument about their impressions of the questionnaire and suggested modifications.Resultsin phase one, items were included, excluded, and replaced to make the content equivalent and valid for use with Brazilian context. In phase two, the majority of the participants were mothers, who made suggestions about the relevance and clarity of the items in the questionnaire.Conclusionsthe authors discussed these recommendations and made adaptations, turning the questionnaire into a valid and reliable tool for application

Pain, coping and sleep in children and adolescents with sickle cell disease

Session presented on: Monday, July 22, 2013: Purpose: The purpose of this study was to examine pain, pain coping and sleep and to examine the relationship among pain, pain coping and sleep in children and adolescents with sickle cell disease. Factors (age, gender and number of pain episodes) that predict pain, pain coping and sleep in children also were examined in this population. Methods: Children (n=39; mean 11.9 - 1.1 years) and adolescents (n=27; mean 15.5 - 0.9 years) with sickle cell disease completed an electronic visual analog scale (eVAS), Adolescent Pediatric Pain Tool, Pain Coping Questionnaire, and Pittsburg Sleep Quality Index prior to participating in a wireless intervention program. Results: Overall pain the past month showed that 23 (34.8%) participants had no pain, 27 (40.9%) had mild (mean 1.8 - 1.1 on 0 to 10 eVAS); 10 (15.1%) had moderate (mean 5.3 - 1.0) and 6 (9.0%) had severe (8.1 - 0.6) pain. The coping strategies used were positive approaches (2.76 - 0.76), problem focused (2.71 - 0.81), emotion focused (1.73 - 0.63), and distraction (2.71 - 0.92). The majority had mild (n=44; 67%) or moderate (n=18; 27%) sleep disturbance; few were severe (n=4; 0.6%). The most common sleep disturbances, which occurred once or twice a week, were waking up in the middle of the night or early morning (n=19; 26.8%), feeling too cold (n=15; 21.1%), feeling too hot (n=14; 19.7%), and using the bathroom (n=14; 19.7%). Age, gender and number of pain episodes did not have significant effects on pain, pain coping and sleep. Conclusion: The majority of the children with sickle cell disease experienced mild to moderate pain and mild to moderate disturbed sleep. Identifying pain coping strategies of children with SCD can inform health care managers regarding interventions to facilitate uninterruped sleep and improve children\u27s daytime quality of life

Adaptação cultural do instrumento Costs of caring for children with cancer para o Brasil

OBJETIVO: realizar la adaptación cultural del cuestionario Costs of caring for children with cancer, que pueda resultar en un instrumento válido y confiable para evaluar las repercusiones económicas del cáncer infanto-juvenil para familias brasileñas. MÉTODO: estudio metodológico de diseño trasversal. La trayectoria metodológica para validar este instrumento fue un proceso combinado que incluyó siete pasos: traducción al portugués; primer consenso de la versión traducida; evaluación por el Comité de Expertos; versión de consenso del Comité de Expertos; retro-traducción; consenso de las versiones retro-traducidas; validación semántica. El estudio se realizó en dos etapas: la primera fue la traducción y retro-traducción, con cinco participantes en el Comité de Expertos. La segunda fase fue la validación semántica, 24 participantes respondieron un instrumento en el que indicaron sus impresiones sobre el cuestionario y sugirieron modificaciones. RESULTADOS: en la primera fase, ítems fueron incluidos, excluidos y sustituidos para mejor adaptación al contexto brasileño. En la segunda fase, la mayoría de los participantes era madres, quienes hicieron sugerencias sobre la pertinencia y claridad de los ítems del cuestionario. CONCLUSIÓN: tras discusión entre las autoras sobre las sugestiones propuestas, fueron efectuadas adaptaciones, haciendo el cuestionario válido y confiable para aplicación.OBJETIVO: realizar a adaptação cultural do questionário Costs of caring for children with cancer que possa resultar em um instrumento válido e confiável para avaliar as repercussões econômicas do câncer infantojuvenil para famílias brasileiras. MÉTODO: este é um estudo metodológico de delineamento transversal. O percurso metodológico para validar este instrumento foi um processo combinado que incluiu sete etapas: tradução para o português; primeira versão consensual traduzida; avaliação pelo Comitê de Especialistas; versão consensual do Comitê de Especialistas; retrotradução; versão consensual da retrotradução e validação semântica. O estudo foi realizado em duas fases: a primeira fase abrangeu os processos de tradução e retrotradução e contou com um Comitê de Especialistas de cinco membros. A segunda fase compreendeu a validação semântica, com 24 participantes que responderam a um instrumento a respeito de suas impressões sobre o questionário e sugeriram modificações. RESULTADOS: na primeira fase, incluíram-se, excluíram-se e substituíram-se itens para adaptar o instrumento ao contexto brasileiro. Na segunda fase, a maioria dos participantes eram mães que fizeram sugestões sobre a relevância e a clareza dos itens do questionário. CONCLUSÃO: as autoras discutiram as recomendações e fizeram adaptações, tornando o questionário válido e confiável para aplicação.OBJECTIVE: to present the cultural adaptation of the questionnaire Costs of caring for children with cancer, offering a valid and reliable tool to assess the economic repercussions of childhood cancer for Brazilian families. METHOD: it is a methodological research with a cross-sectional design. The methodological framework to validate the questionnaire was a combined process that included seven steps: translation to Portuguese; first translated consensus version; evaluation by Expert Committee; consensus on the Expert Committee version; back-translation; consensus of back-translated versions; semantic validation. The study was conducted in two phases: phase one was the translation and back-translations process, with five expert committee members. Phase two was the semantic validation, with 24 participants, who answered an instrument about their impressions of the questionnaire and suggested modifications. RESULTS: in phase one, items were included, excluded, and replaced to make the content equivalent and valid for use with Brazilian context. In phase two, the majority of the participants were mothers, who made suggestions about the relevance and clarity of the items in the questionnaire. CONCLUSIONS: the authors discussed these recommendations and made adaptations, turning the questionnaire into a valid and reliable tool for application

Eating Behaviors, Weight Bias, and Psychological Functioning in Multi-ethnic Low-income Adolescents.

The purposes of this study were to: 1) Describe the incidence of disordered eating, weight bias, body dissatisfaction, and psychological distress, 2) Examine the relationship between sociodemographic variables (gender, ethnicity, and income) and disordered eating, weight bias, body dissatisfaction, and psychological distress in a sample of low-income adolescents.A cross-sectional study was conducted with 105 adolescents from low-income neighborhoods. Participants completed self-report questionnaires to assess eating behaviors, weight bias, body dissatisfaction, and psychological functioning. Height and weight were measured, and information on household income was collected.The participant's mean age was 16.31 (SD=2.8) years, 66% female, 47% Hispanic, and 46% African American. The mean annual income was $17,018 (SD=11,355). Twenty-eight percent self-reported having some form of disordered eating, and 15% reported an eating disorder. The group with eating disorder reported the highest levels of weight bias (M=93.4, SD=109.6), body dissatisfaction (M=94.6, SD=47.6), and psychological distress (M=1.4, SD=0.97).This study found a high prevalence of eating disorders with eating disorder participants experiencing the highest levels of weight bias and psychological distress. Future studies are needed to identify and evaluate community and school-based interventions to minimize weight bias and disordered eating.Nurses are at the forefront of healthcare and should collaborate with educators, school counselors, administrators, coaches, parents, and students, to address weight bias and disordered eating in schools by implementing school-based curriculum and policies