A importância da segurança e privacidade da informação. Análise do estudo elaborado pelo Estado para a implementação do registo de saúde electrónico

A análise que tem vindo a ser efectuada, paralelamente a experiências diversas de implementação de registos de dados pessoais de utentes das unidades de saúde, em particular no que concerne à protecção da privacidade, enquanto valor intrínseco à pessoa humana, encontra novos contornos face ao recente trabalho realizado no âmbito da Administração Central dos Sistemas de Saúde para a implementação do “Registo de Saúde Electrónico”. Este trabalho pretende analisar a bipolarização de interesses em questão. Por um lado o interesse público de adopção de um sistema de informação único, por outro lado a necessária protecção à privacidade do ser humano.The analysis that for years has been made, simultaneously with some implementation experiences of personal data records for the health facilities users, particularly as regards of the privacy protection, while intrinsic human value, find new contours in the recent presented work made by the Central Government Health Systems, for the implementations of the electronic health personal data. In this paper we intend to analyze the unquestioned polarization of interests concerned. On the one hand the public interest in adoption of a single information system, on the other hand the necessary protection of the legal human privacy

Legal and political regulation of higher education in Portugal: an evolutionary perspective on the current policy issues and the problem of order

The higher education system in Europe is currently under stress and the debates over its reform and future are gaining momentum. Now that, for most countries, we are in a time for change, in the overall society and the whole education system, the legal and political dimensions have gained prominence, which has not been followed by a more integrative approach of the problem of order, its reform and the issue of regulation, beyond the typical static and classical cost-benefit analyses. The two classical approaches for studying (and for designing the policy measures of) the problem of the reform of the higher education system - the cost-benefit analysis and the legal scholarship description - have to be integrated. This is the argument of our paper that the very integration of economic and legal approaches, what Warren Samuels called the legal-economic nexus, is meaningful and necessary, especially if we want to address the problem of order (as formulated by Joseph Spengler) and the overall regulation of the system. On the one hand, and without neglecting the interest and insights gained from the cost-benefit analysis, or other approaches of value for money assessment, we will focus our study on the legal, social and political aspects of the regulation of the higher education system and its reform in Portugal. On the other hand, the economic and financial problems have to be taken into account, but in a more inclusive way with regard to the indirect and other socio-economic costs not contemplated in traditional or standard assessments of policies for the tertiary education sector. In the first section of the paper, we will discuss the theoretical and conceptual underpinning of our analysis, focusing on the evolutionary approach, the role of critical institutions, the legal-economic nexus and the problem of order. All these elements are related to the institutional tradition, from Veblen and Commons to Spengler and Samuels. The second section states the problem of regulation in the higher education system and the issue of policy formulation for tackling the problem. The current situation is clearly one of crisis with the expansion of the cohorts of young students coming to an end and the recurrent scandals in private institutions. In the last decade, after a protracted period of extension or expansion of the system, i. e., the continuous growth of students, universities and other institutions are competing harder to gain students and have seen their financial situation at risk. It seems that we are entering a period of radical uncertainty, higher competition and a new configuration that is slowly building up is the growth in intensity, which means upgrading the quality of the higher learning and getting more involvement in vocational training and life-long learning. With this change, and along with other deep ones in the Portuguese society and economy, the current regulation has shown signs of maladjustment. The third section consists of our conclusions on the current issue of regulation and policy challenge. First, we underline the importance of an evolutionary approach to a process of change that is essentially dynamic. A special attention will be given to the issues related to an evolutionary construe of policy analysis and formulation. Second, the integration of law and economics, through the notion of legal economic nexus, allows us to better define the issues of regulation and the concrete problems that the universities are facing. One aspect is the instability of the political measures regarding the public administration and on which the higher education system depends financially, legally and institutionally, to say the least. A corollary is the lack of clear strategy in the policy reforms. Third, our research criticizes several studies, such as the one made by the OECD in late 2006 for the Ministry of Science, Technology and Higher Education, for being too static and neglecting fundamental aspects of regulation such as the logic of actors, groups and organizations who are major players in the system. Finally, simply changing the legal rules will not necessary per se change the behaviors that the authorities want to change. By this, we mean that it is not only remiss of the policy maker to ignore some of the critical issues of regulation, namely the continuous non-respect by academic management and administrative bodies of universities of the legal rules that were once promulgated. Changing the rules does not change the problem, especially without the necessary debates form the different relevant quarters that make up the higher education system. The issues of social interaction remain as intact. Our treatment of the matter will be organized in the following way. In the first section, the theoretical principles are developed in order to be able to study more adequately the higher education transformation with a modest evolutionary theory and a legal and economic nexus of the interactions of the system and the policy challenges. After describing, in the second section, the recent evolution and current working of the higher education in Portugal, we will analyze the legal framework and the current regulatory practices and problems in light of the theoretical framework adopted. We will end with some conclusions on the current problems of regulation and the policy measures that are discusses in recent years

On transdisciplinarity in organizations, innovation and law

info:eu-repo/semantics/publishedVersio

Gestão de informação pessoal em saúde

O sistema de gestão de proteção de dados pessoais e estudos clínicos em Portugal levanta controvérsia e uma interpretação distinta, dada a sensibilidade ética do tema, a integridade humana. Além deste fato, estamos diante de um problema que envolve diversos interesses e, assim, um confronto de posições. Pretende-se, ao longo deste artigo, abordar a percepção da forma como os profissionais da área da saúde, no seu quotidiano, lidam com a questão do tratamento de dados clínicos, numa tentativa de harmonizar pontos de vista e de conteúdo, verificando se há realmente um esforço das instituições hospitalares para facilitarem este processo e permitirem que os usuários sejam universalmente protegidos e bem tratados. Os resultados obtidos no documento de consulta de profissionais de saúde indicam que há uma preocupação com a confidencialidade em 100% dos inquiridos, embora existam sistemas de gestão de dados clínicos diferenciados (seis distintos). Espera-se uma tendência ascendente na procura dessas informações úteis e de interesse para deter essa informação, tomada por profissionais de saúde, instituições de saúde, seguradoras etc. O problema surge no confronto entre a proteção da vida privada, o interesse específico de usuários, o interesse público e as políticas institucionais e governamentais vigentes. Partindo do pressuposto de que a garantia de confidencialidade é uma realidade em termos de segurança, é necessário determinar se os meios utilizados para atingir essa tarefa são os mais eficientes e permitem uma gestão sustentável dos dados de saúde.The management system of protection of personal data and clinical studies in Portugal raises controversy and different interpretation due to the ethical sensitivity of the subject, human integrity. Beyond this fact, we face a problem that involves many interests, and thus a clash of positions. It is intended throughout this article to get answers from professionals in their daily lives to deal with the issue of treatment of clinical data in an attempt to harmonize views and content, checking if there really is an effort by hospitals to facilitate this process and allow users to be universally protected and treated well. The results obtained in the consultation document of health professionals indicate that there is a concern with confidentiality in 100% of respondents, although there are systems of different clinical data management (six distinct). An upward trend, in demand for this useful and of interest to hold this information, is expected and taken by health professionals, health institutions, insurance companies etc. The problem arises in the confrontation between the protection of privacy, the specific interest of users, the public interest and institutional policies and government regulations. Assuming that the guarantee of confidentiality is a reality in terms of security, it is necessary to determine whether the means used to achieve this task are the most efficient and allow a sustainable management of health data

Uma breve introdução à tomada de decisão

A tomada de decisão é um elemento essencial da gestão das organizações, implicando dificuldades em seguir modelos de tomada de decisão, não só pelos fatores externos mas também pelos fatores internos à organização e, sobretudo, o contexto e as caraterísticas dos decisores. Procede-se a uma revisão global dos problema da tomada de gestão baseada nos conhecimentos mais recentes sobre a matéria.info:eu-repo/semantics/draf

Distributed Database Model for Mobile Health Telemonitoring Applications

Cursos e Congresos, C-155[Abstract] Telemonitoring interventions in patients allow to collect and transmit information to health professionals bringing recognized advantages in the personalization of health care services. Those applications deal with sensitive data, raising ethical and legal issues that must be considered. Guarantee the quality and accuracy of the data collected in telemonitoring and ensure confidentiality to protect the patient privacy is a fundamental requirement. The patient’s informed consent implies that he is aware of the potential benefits and risks of the system, how telemonitoring will be used, what data will be collected and with whom it will be shared. This work proposes a database model ensuring that sensitive data is handled securely and accessible only to authorized health professionalsCITIC is funded by the Xunta de Galicia through the collaboration agreement between the Consellería de Cultura, Educación, Formación Profesional e Universidades and the Galician universities for the reinforcement of the research centres of the Galician University System (CIGUS)

Recursos em areias e cascalhos ao largo da ilha de S. Miguel, Açores

A campanha de geofísica SAMI-1 realizada ao largo da Ilha de S. Miguel (Açores) permitiu a aquisição de perfis sísmicos de alta resolução (Boomer) e de batimetria detalhada. Estes dados possibilitaram a definição das áreas mais promissoras em inertes (areias e cascalhos) na plataforma insular de S. Miguel. Deverão ser efectuados estudos de pormenor de forma a caracterizar estas áreas, para servirem de apoio à elaboração de um plano de gestão da extracção de inertes em redor das ilhas

Strategy for data cybersecurity in european health data ecosystem

This study aims to analyze the Strategy for Data Cybersecurity in the European Health Data Ecosystem, to be implemented in 2025. The document analysis was carried out to map the different proposals for a regulation of the European Parliament and of the Council, regarding the sharing of the Electronic Health Record in the European space, and the General Data Protection Regulation implemented in the European Union. After an exhaustive documentary analysis, inconsistencies or flaws were detected that could compromise the rights of citizens enshrined in the General Data Protection Regulation.This study aims to analyze the Strategy for Data Cybersecurity in the European Health Data Ecosystem, to be implemented in 2025. The document analysis was carried out to map the different proposals for a regulation of the European Parliament and of the Council, regarding the sharing of the Electronic Health Record in the European space, and the General Data Protection Regulation implemented in the European Union. After an exhaustive documentary analysis, inconsistencies or flaws were detected that could compromise the rights of citizens enshrined in the General Data Protection Regulation.info:eu-repo/semantics/publishedVersio

Os limites e caminhos possíveis do federalismo fiscal para a redução das desigualdades socioeconómicas existentes entre os estados brasileiros

As desigualdades sociais resultam das relações e dinamismo da política, das estruturas e da economia (Stiglitz, 2015) nas diversas esferas. No Brasil, as disparidades socioeconômicas regionais são resultantes, entre outros fatores, do processo histórico, da ineficácia dos mecanismos de equalização fiscal e da falta de uma efetiva plítica de desenvolvimento regional. Tais desigualdades impõem condições excludentes e discriminatórias para grandes parcelas da população, logo, conflituantes com os axiomas sociais e econômicos prescritos na Constituição. A partir de uma análise descritiva e correlacional, objetiva-se construir tese que possa contribuir na discussão e formulação de políticas públicas para a redução da histórica desigualdade socioeconômica das regiões geográficas brasileiras.info:eu-repo/semantics/publishedVersio

Strategy for data cybersecurity in european health data ecosystem

This study aims to analyze the Strategy for Data Cybersecurity in the European Health Data Ecosystem, to be implemented in 2025. The document analysis was carried out to map the different proposals for a regulation of the European Parliament and of the Council, regarding the sharing of the Electronic Health Record in the European space, and the General Data Protection Regulation implemented in the European Union. After an exhaustive documentary analysis, inconsistencies or flaws were detected that could compromise the rights of citizens enshrined in the General Data Protection Regulation.info:eu-repo/semantics/publishedVersio