A qualitative study of the spiritual aspects of parenting a child with Down syndrome

Parenting a child with Down syndrome can sometimes present certain difficulties and, thus, spirituality may function as a dimension related to finding meaning in life and as a coping resource. Spirituality is a critical dimension of nursing care, but scarce knowledge is available to specifically inform family nursing practice. The aim of this study was to explore the spiritual aspects of parenting a child with Down syndrome, as a qualitative secondary analysis. This is an observational qualitative study, based on in-depth interviews from 42 participants. Data analysis found seven categories that concern meaning and purpose in life: hope, family strength, spiritual practices, personal beliefs, and love, and trust in healthcare providers. Spirituality is a resource in parents' lives who are living in this situation. Nurses should consider this dimension in supporting families and in improving management of this life and health condition.info:eu-repo/semantics/publishedVersio

ELABORAÇÃO DE PÃO ISENTO DE GLÚTEN

Celiac disease is an autoimmune disorder caused by a permanent intolerance to gluten, the main protein fraction, present in cereals such as wheat, barley and rye. This study aimed to develop a formulation of gluten-free bread that can be consumed by people with celiac disease. Were developed two formulations of breads: with and gluten-free. The formulation with gluten consisted only of wheat flour (A). In the formulation gluten-free (B), replacing the wheat flour by a prepared flour (71% of rice flour, 19% of potato starch and 10% of starch). In sensory analysis was utilized the acceptance test using nine-point hedonic scale, where 36 tasters evaluated the attributes of appearance, texture, and flavor and the average score attributed to the gluten-free bread were 6,64; 7,25 e 7,47 respectively. There was good acceptance of gluten-free bread prepared, with no significant changes in the evaluated parameters. Thus, the results were satisfactory for the new proposed product.A doença celíaca é uma patologia autoimune causada pela intolerância permanente ao glúten, principal fração protéica presente em cereais como trigo, cevada e centeio. Este estudo objetivou desenvolver uma formulação de pão sem glúten que possa ser consumido por pessoas celíacas. Foram desenvolvidas duas formulações de pães com e sem glúten. A formulação com glúten consistia apenas de farinha de trigo (A). Na formulação sem glúten (B), substitui-se a farinha de trigo por uma farinha preparada (71% de farinha de arroz, 19% de fécula de batata e 10% de polvilho doce). Na análise sensorial foi utilizado o teste de aceitação com utilização de escala hedônica de nove pontos, onde 36 provadores avaliaram os atributos de aparência, sabor e textura sendo que a média das notas atribuídas ao pão sem glúten foram respectivamente 6,64; 7,25 e 7,47. Houve boa aceitação do pão sem glúten elaborado, não havendo mudanças significativas nos parâmetros avaliados. Assim, os resultados foram satisfatórios para o novo produto proposto

Optimization of lipase production by Yarrowia divulgata

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Non-adherence to tuberculosis treatment: a study on perceptions and knowledge of the disease and evaluation of health services from the patient perspective (Fortaleza, Ceará, Brazil)

This research was developed in 1995-1996 in the Oliveira Pombo Health Center (CSOP), Fortaleza, Ceará, Brazil. The aim was to explore factors influencing non-adherence to tuberculosis treatment. Specific objectives were: dynamics of tuberculosis notification and treatment of non-adherence cases at the CSOP; demographic, social, economic, and cultural profiles of clientele (social actors); default reasons that interrupt treatment; and knowledge and perception of the disease. The methodological approach was based on descriptive epidemiology and on sociological interpretivism. A semi-structured interview was used for questions related to the social actors, such as: demographic, social, economic, cultural, and behavioral factors; knowledge and perceptions of tuberculosis and treatment; impact of the disease on patients' lives; and perspectives concerning health service attendance. Results show that treatment non-compliance involved multiple and complex interrelated factors.Esta pesquisa foi desenvolvida em 1995 e 1996 no Centro de Saúde Oliveira Pombo, Fortaleza, Ceará. Os objetivos foram os seguintes: geral - identificação de fatores que determinam o abandono do tratamento da tuberculose; específicos - análise da dinâmica do atendimento e da freqüência de casos e de abandono do tratamento; identificação das características sócio-econômicas e culturais dos clientes (atores sociais); causas impeditivas ao tratamento; conhecimentos e percepção da doença pelos clientes. Duas abordagens metodológicas foram utilizadas: de natureza epidemiológica descritiva e sociológica interpretativa, utilizando questionário semi-estruturado com os seguintes conteúdos: sexo; idade; estado civil; escolaridade; ocupação; rendimento; descrição da residência; formas de deslocamento; níveis de conhecimentos e percepção sobre a doença e o tratamento; identificação de sentimentos reativos à doença; avaliação sobre o atendimento; comportamento e estilos de vida prejudiciais; decisões de mudanças para melhoria da saúde. Os resultados obtidos apontaram fatores múltiplos de natureza complexa, que influem direta ou indiretamente para o abandono do tratamento

A busca ativa de tuberculose pulmonar em Teresópolis, RJ, Brasil: a procura de sintomáticos respiratórios na emergência do Hospital das Clínicas de Teresópolis Costantino Ottaviano, Fundação Educacional Serra dos Órgãos

The aim of the present study was to investigate the detection percentage of tuberculosis among patients that are respiratory symptomatic (TB suspects). In this work, we present the preliminary results of research carried out at "Hospital das Clínicas de Teresópolis Costantino Ottaviano da Fundação Educacional Serra dos Órgãos (FESO)" from November 2003 to April 2004. Among the 40 respiratory symptomatic individuals identified and referred to the Tuberculosis Control Program in Teresópolis, two (5.0%) were characterized as smear-positive. These results confirm reports in the literature and underscore the need for and importance of this strategy.Investigar o percentual de detecção de tuberculose entre sintomáticos respiratórios é o objetivo do presente estudo. Nesta nota prévia, apresentam-se os resultados preliminares da pesquisa desenvolvida no Hospital das Clinicas de Teresópolis Costantino Ottaviano da Fundação Educacional Serra dos Órgãos (FESO), de novembro de 2003 a abril de 2004. Dos 40 sintomáticos respiratórios identificados e encaminhados ao Programa de Controle da Tuberculose do município de Teresópolis, dois (5.0%) foram caracterizados como bacilíferos. Esses resultados corroboram com os relatos da literatura e confirmam a necessidade e importância desta estratégia

Microcephaly in Pernambuco State, Brazil: epidemiological characteristics and evaluation of the diagnostic accuracy of cutoff points for reporting suspected cases.

The increase in the number of reported cases of microcephaly in Pernambuco State, and Northeast Brazil, characterized an epidemic that led the Brazilian Ministry of Health to declare a national public health emergency. The Brazilian Ministry of Health initially defined suspected cases as newborns with gestational age (GA) ≥ 37 weeks and head circumference (HC) ≤ 33cm, but in December 2015 this cutoff was lowered to 32cm. The current study aimed to estimate the accuracy, sensitivity, and specificity of different cutoff points for HC, using ROC curves, with the Fenton and Intergrowth (2014) curves as the gold standard. The study described cases reported in Pernambuco from August 8 to November 28, 2015, according to sex and GA categories. The Fenton and Intergrowth methods provide HC growth curves according to GA and sex, and microcephaly is defined as a newborn with HC below the 3rd percentile in these distributions. Of the 684 reported cases, 599 were term or post-term neonates. For these, the analyses with ROC curves show that according to the Fenton criterion the cutoff point with the largest area under the ROC curve, with sensitivity greater than specificity, is 32cm for both sexes. Using the Intergrowth method and following the same criteria, the cutoff points are 32cm and 31.5cm for males and females, respectively. The cutoff point identified by the Fenton method (32cm) coincided with the Brazilian Ministry of Health recommendation. Adopting Intergrowth as the standard, the choice would be 32cm for males and 31.5cm for females. The study identified the need to conduct critical and on-going analyses to evaluate cutoff points, including other characteristics for microcephaly case definition