A web-based platform for people with memory problems and their caregivers (CAREGIVERSPRO-MMD): Mixed-methods evaluation of usability

Background: The increasing number of people with dementia (PwD) drives research exploring Web-based support interventions to provide effective care for larger populations. In this concept, a Web-based platform (CAREGIVERSPRO-MMD, 620911) was designed to (1) improve the quality of life for PwD, (2) reduce caregiver burden, (3) reduce the financial costs for care, and (4) reduce administration time for health and social care professionals. Objective: The objective of this study was to evaluate the usability and usefulness of CAREGIVERSPRO-MMD platform for PwD or mild cognitive impairment (MCI), informal caregivers, and health and social care professionals with respect to a wider strategy followed by the project to enhance the user-centered approach. A secondary aim of the study was to collect recommendations to improve the platform before the future pilot study. Methods: A mixed methods design was employed for recruiting PwD or MCI (N=24), informal caregivers (N=24), and professionals (N=10). Participants were asked to rate their satisfaction, the perceived usefulness, and ease of use of each function of the platform. Qualitative questions about the improvement of the platform were asked when participants provided low scores for a function. Testing occurred at baseline and 1 week after participants used the platform. The dropout rate from baseline to the follow-up was approximately 10% (6/58). Results: After 1 week of platform use, the system was useful for 90% (20.75/23) of the caregivers and for 89% (5.36/6) of the professionals. When users responded to more than 1 question per platform function, the mean of satisfied users per function was calculated. These user groups also provided positive evaluations for the ease of use (caregivers: 82%, 18.75/23; professionals: 97%, 5.82/6) and their satisfaction with the platform (caregivers: 79%, 18.08/23; professionals: 73%, 4.36/6). Ratings from PwD were lower than the other groups for usefulness (57%, 13/23), ease of use (41%, 9.4/23), and overall satisfaction (47%, 11/23) with the platform (

Caring for Individuals with Dementia on a Continuum: An Interdisciplinary Approach Between Music Therapy and Nursing

Background: Music has long been used to ease symptoms of dementia. Several studies have shown the therapeutic benefits of music therapy to decrease symptoms of agitation in people with dementia (PWD). Other research has demonstrated that the use of music during caregiving can ease agitated behaviors. However, few studies have shown the clinical benefits of using translational research in practice between music therapists and certified nursing assistants

Ontology for the Outdoor Mobility of People with Dementia: [research data]

Objective: To construct an ontology for the outdoor mobility of people with dementia (PwD). The model serves two purposes: (a) as a knowledge base from which to build an assistive technology device describing the mobility of PwD (we call this a situation model); (b) as a codebook for the annotation of the recorded behaviour

Pain and Psychological Well-Being Among People with Dementia in Long-Term Care

To examine the relationship between self-reported pain and psychological well-being of people with dementia (PWD) living in residential long-term care as indicated by displays of observed emotional expression over the daytime period

Giving people with dementia a voice in research

This paper presents an exploration into the involvement of people with dementia (PWD) in research. Dementia-friendly consent documentation was developed to address the known issue of obtaining consent when involving PWD in research. Questionnaires were explored as a research method to elicit data from PWD. The documentation and method were evaluated using Reflective Practice. The dementia-friendly documentation was found to be accessible, and an adapted questionnaire method elicited the perspective of PWD, though suggestions are given to improve the approach

Perancangan Sistem Closure pada Adaptive Clothing untuk Orang dengan Demensia (ODD) Tahap Moderate

Adaptive clothing is one of the media to optimize the living conditions of people with dementia (PwD), which can solve the problem of undressing in social situations, is friendly for caregivers, and is suitable for the physical and psychological conditions of PwD. The method used is qualitative with a comparative approach by researching closure systems for adaptive clothing in the online market. This research produces design recommendations based on the type, development, and comparison of closure systems on adaptive clothing on the market. Adaptive clothing products are expected to stimulate or train memory, reduce anxiety, improve quality of life, and facilitate caregivers in caregiving.Salah satu media untuk pengoptimalan kondisi hidup orang dengan demensia (ODD) adalah adaptive clothing yang mampu memecahkan permasalahan membuka pakaian dalam situasi sosial secara tiba-tiba (undressing), mempermudah caregivers dalam perawatan, serta disesuaikan dengan kondisi fisik dan psikologis ODD. Metode yang digunakan adalah kualitatif dengan pendekatan komparatif. Penelitian ini menghasilkan rekomendasi desain berdasarkan jenis, pengembangan, dan perbandingan sistem closure pada pakaian adaptif yang ada di pasaran.  Produk pakaian adaptif diharapkan dapat menstimulasi atau melatih daya ingat, mengurangi kecemasan, meningkatkan kualitas hidup dan memudahkan caregiver dalam perawatan

Perancangan Sistem Closure pada Adaptive Clothing untuk Orang dengan Demensia (ODD) Tahap Moderate

Adaptive clothing is one of the media to optimize the living conditions of people with dementia (PwD), which can solve the problem of undressing in social situations, is friendly for caregivers, and is suitable for the physical and psychological conditions of PwD. The method used is qualitative with a comparative approach by researching closure systems for adaptive clothing in the online market. This research produces design recommendations based on the type, development, and comparison of closure systems on adaptive clothing on the market. Adaptive clothing products are expected to stimulate or train memory, reduce anxiety, improve quality of life, and facilitate caregivers in caregiving.Salah satu media untuk pengoptimalan kondisi hidup orang dengan demensia (ODD) adalah adaptive clothing yang mampu memecahkan permasalahan membuka pakaian dalam situasi sosial secara tiba-tiba (undressing), mempermudah caregivers dalam perawatan, serta disesuaikan dengan kondisi fisik dan psikologis ODD. Metode yang digunakan adalah kualitatif dengan pendekatan komparatif. Penelitian ini menghasilkan rekomendasi desain berdasarkan jenis, pengembangan, dan perbandingan sistem closure pada pakaian adaptif yang ada di pasaran.  Produk pakaian adaptif diharapkan dapat menstimulasi atau melatih daya ingat, mengurangi kecemasan, meningkatkan kualitas hidup dan memudahkan caregiver dalam perawatan

Self- and Carer-Rated Pain in People with Dementia: Influences of Pain in Carers

Although pain is frequent in people with dementia (PwD), evidence on the prevalence and factors influencing ratings of pain in dementia is limited. Carer variables are often associated with bias in proxy ratings of pain, but few studies have examined the role of caregiver pain in influencing these ratings