Anxiety and depression symptomatology in adult siblings of disabled individuals: The role of perceived parenting, attachment, personality traits and disability types

Objectives: (1) To ascertain whether adult siblings of disabled individuals are more prone to anxiety and depression symptomatology than a closely matched control group. (2) To examine the contribution that perceived parenting styles, attachment styles and personality traits play in the long-term affective outcome of these siblings. (3) To consider if the type of disability has a role in sibling affective outcome. Design: A cross-sectional, closely matched study design, with data collected through self-report. One-way ANOVAs, correlational analyses, moderation and mediation analyses were applied. Participants: Adult siblings of disabled individuals (SDI), were initially contacted through support groups, such as SIBS, the Down’s Syndrome Association, the National Autistic Society and the Prader-Willi Association (UK) and responded to a postal or e-mailed questionnaire; 150 participants returned the completed questionnaire. The 150 control group participants were closely matched on the variables of gender, age, marital status and when possible socio-economic status, in order to compare like with like. This group was contacted through friends, family, work colleagues and local businesses. Measures: All the participants completed a range of demographic questions; the SDI were additionally asked questions regarding their disabled sibling. The established measures used included the Hospital and Anxiety Depression Scale (Zigmond & Snaith, 1983), Experiences in Close Relationships (Brennan, Clark & Shaver, 1998), an adapted measure of the Descriptions of Parental Caregiving Style (DPCS, Hazan & Shaver, 1986) and the International Personality Item Pool (Goldberg, 1999). Results: The majority of SDI reported no increased anxiety or depression symptomatology, however, when compared the SDI did report higher levels of anxiety and depression symptomatology than the control group; also higher levels of perceived inconsistent mothering, attachment-related anxiety and neuroticism, with lower levels of extraversion than the control group. These variables mediated the path between having a disabled sibling and anxiety and depression, with the notable exception of perceived inconsistent mothering. This variable showed no association with any of the established measures for the SDI group; however, there were associations consistent with previous research for the control group. There was no moderation effect on anxiety or depression between the demographic variables and SDI. The autistic spectrum disorder siblings reported similar levels of anxiety symptomatology to Prader-Willi siblings but higher than Down’s syndrome siblings and the control group and they also reported the highest levels of depression symptomatology. Conclusions: The adult SDI’s higher propensity towards anxiety and depression is a cause for concern; particularly when explained through heightened levels of attachment-related anxiety, high levels of neuroticism and low levels of extraversion. The lack of association with perceived inconsistent mothering requires further investigation. These results can help guide interventions or clinical therapies; the emotional well-being of SDI is paramount as they will possibly be among the first group to assume responsibility for their disabled siblings

Book review : Plummer, Deborah M. (2017). Inspiring and Creative Ideas For Working with Children, How to Build Relationships and Enable Change. Jessica Kingsley Publishers, ISBN 978184956519

At first look, from a children's services worker's perspective, this looks like a 'pick up and play' kind of book. It has a colourful illustrated cover with lots of child-style drawings and words — myriads of which I had when I worked in schools — that contain bite-sized activities any group worker can pick up, quickly read and deliver a fun and engaging activity for children. Close attention should be paid to the tagline 'How to Build Relationships and Enable Change' though, because this is the substance of this easy to read and digestible book

Reading and writing skills for business: the students’ voice

This paper contributes to the emerging discussion around student writing through its focus on writing for Business for first-year students at the London Metropolitan University Business School. We focus on the student writing experience in one compulsory Management module, (People Management: Challenges and Choices – PMCC) which was introduced as part of a broader revision of the first year Business syllabus designed to make transparent to students the discourse of Business studies and of Higher Education more generally. Against the background of Business Students entering higher education with increasing diverse biographies, expectations and constraints, many Business Schools have recently embarked on re-designing large parts of the curriculum. Our findings give impetus to future syllabus and pedagogical changes which will make the reading experience of first-year students more rewarding and also more formative for their future development as students where they will be expected to read more extensively

Virtual School Head Teacher and Care Experienced Teams Phone Survey : Findings Summary Practice Paper

A phone survey was carried out by the CELCIS Education Team in October 2020 with the members of the Virtual School Head Teacher (VSHT) and Care Experienced Team (CET) Network. The purpose of the survey was to gather information about the role, remit, and responsibilities of the network members in their developing roles. This survey was carried out as a continuation of work that was undertaken by network members in January 2020, which examined the roles and remits of individual members. The roles and remits work, and subsequent paper 'Exploring the roles and responsibilities of Virtual School Head Teachers and Care Experienced Teams in Scotland, September 2020' identified that there were areas of the role that would benefit from a more in depth understanding, particularly around the similarities and differences in the development of the role across the areas involved

Direct costs of radiotherapy for rectal cancer: A microcosting study

Background: Radiotherapy provides significant benefits in terms of reducing risk of local recurrence and death from rectal cancer. Despite this, up-to-date cost estimates for radiotherapy are lacking, potentially inhibiting policy and decision-making. Our objective was to generate an up-to-date estimate of the cost of traditional radiotherapy for rectal cancer and model the impact of a range of potential efficiency improvements. Methods: Microcosting methods were used to estimate total direct radiotherapy costs for long- (assumed at 45-50 Gy in 25 daily fractions over a 5 week period) and short-courses (assumed at 25 Gy in 5 daily fractions over a one week period). Following interviews and on-site visits to radiotherapy departments in two designated cancer centers, a radiotherapy care pathway for a typical rectal cancer patient was developed. Total direct costs were derived by applying fixed and variable unit costs to resource use within each care phase. Costs included labor, capital, consumables and overheads. Sensitivity analyses were performed. Results: Radiotherapy treatment was estimated to cost between €2,080 (5-fraction course) and €3,609 (25-fraction course) for an average patient in 2012. Costs were highest in the treatment planning phase for the short-course (€1,217; 58% of total costs), but highest in the radiation treatment phase for the long-course (€1,974: 60% of total costs). By simultaneously varying treatment time, capacity utilization rates and linear accelerator staff numbers, the base cost fell by 20% for 5-fractions: (€1,660) and 35% for 25-fractions: (€2,354). Conclusions: Traditional radiotherapy for rectal cancer is relatively inexpensive. Moreover, significant savings may be achievable through service organization and provision changes. These results suggest that a strong economic argument can be made for expanding the use of radiotherapy in rectal cancer treatment

Anxiety and Depression Symptomatology in Adult Siblings of Individuals with Different Developmental Disability Diagnoses

Factors predicting the emotional well-being of adult siblings of those with developmental disability (DD) remain under-researched. In this study adult siblings of individuals with Down’s syndrome, autism, Prader-Willi syndrome and those with DD but with unknown aetiology were compared with each other and a closely-matched control group to ascertain if sibling disability type made a difference to anxiety and/or depression levels. Also considered was the interactive effect of gender, age, parental and sibling educational attainment levels, socio-economic status and birth order on anxiety and depression outcomes. With the exception of siblings of those with Down’s syndrome, adult siblings of those with ASD, PWS and DUA reported significantly higher levels of anxiety and depression than the control group. There were some predictive effects for anxiety and depression of the demographic variables but none common to all disability types and no moderating effects of demographic factors were found. Consequently other solutions must be found as to why this important group of people have elevated rates of anxiety and depression in comparison to the general population

Neuroticism and extraversion mediate the relationship between having a sibling with developmental disabilities and anxiety and depression symptoms

Background Children growing up with a sibling with disabilities report higher levels of depression and anxiety symptoms as adults. Here, we examined whether personality characteristics also play a part in mediating this relationship. Method We tested for differences in personality traits between 132 individuals who have a sibling with developmental disabilities and 132 closely matched comparisons. Results Differences in Big Five factors of personality were demonstrated across the disability groups and between the disability groups and the comparisons, especially in Extraversion, Neuroticism and Openness. Individuals growing up alongside a sibling with developmental disabilities have a higher tendency to experience anxiety and depression symptoms, and this research is the first demonstration that personality traits mediate this relationship. Specifically, Neuroticism is a strong mediator of anxiety while both Neuroticism and Extraversion contribute mediating effects toward the development of depression. Limitations Our study made use of self-report methodology which, although having recognized limitations, is more reliable than parental reports. Given the cross-sectional nature of our design, we were not able to examine pre-existing developmental factors that may have influenced the participant’s propensity to particular personality traits and affective disorders. However, we obtained a large sample and closely matched participants to examine differences between those with a sibling with disabilities and those without. Conclusions As such, differences in personality traits have important implications for the understanding and treatment of siblings presenting with anxiety and depression symptoms. We recommend that intervention should target those high in Neuroticism among individuals who have a sibling with disabilities, and that more social support is put in place for siblings to mitigate their tendency towards introversion and buffer them against psychological maladjustment

Factors driving inequality in prostate cancer survival: a population based study

As cancer control strategies have become more successful, issues around survival have become increasingly important to researchers and policy makers. The aim of this study was to examine the role of a range of clinical and socio-demographic variables in explaining variations in survival after a prostate cancer diagnosis, paying particular attention to the role of healthcare provider(s) i.e. private versus public status. Data were extracted from the National Cancer Registry Ireland, for patients diagnosed with prostate cancer from 1998-2009 (N = 26,183). A series of multivariate Cox and logistic regression models were used to examine the role of healthcare provider and socio-economic status (area-based deprivation) on survival, controlling for age, stage, Gleason grade, marital status and region of residence. Survival was based on all-cause mortality. Older individuals who were treated in a private care setting were more likely to have survived than those who had not, when other factors were controlled for. Differences were evident with respect to marital status, region of residence, clinical stage and Gleason grade. The effect of socio-economic status was modified by healthcare provider, such that risk of death was higher in those men of lower socio-economic status treated by public, but not private providers in the Cox models. The logistic models revealed a socio-economic gradient in risk of death overall; the gradient was larger for those treated by public providers compared to those treated by private providers when controlling for a range of other confounding factors. The role of healthcare provider and socio-economic status in survival of men with prostate cancer may give rise to concerns that warrant further investigation