2,362 research outputs found
Privacy Attitudes among Early Adopters of Emerging Health Technologies.
IntroductionAdvances in health technology such as genome sequencing and wearable sensors now allow for the collection of highly granular personal health data from individuals. It is unclear how people think about privacy in the context of these emerging health technologies. An open question is whether early adopters of these advances conceptualize privacy in different ways than non-early adopters.PurposeThis study sought to understand privacy attitudes of early adopters of emerging health technologies.MethodsTranscripts from in-depth, semi-structured interviews with early adopters of genome sequencing and health devices and apps were analyzed with a focus on participant attitudes and perceptions of privacy. Themes were extracted using inductive content analysis.ResultsAlthough interviewees were willing to share personal data to support scientific advancements, they still expressed concerns, as well as uncertainty about who has access to their data, and for what purpose. In short, they were not dismissive of privacy risks. Key privacy-related findings are organized into four themes as follows: first, personal data privacy; second, control over personal information; third, concerns about discrimination; and fourth, contributing personal data to science.ConclusionEarly adopters of emerging health technologies appear to have more complex and nuanced conceptions of privacy than might be expected based on their adoption of personal health technologies and participation in open science. Early adopters also voiced uncertainty about the privacy implications of their decisions to use new technologies and share their data for research. Though not representative of the general public, studies of early adopters can provide important insights into evolving attitudes toward privacy in the context of emerging health technologies and personal health data research
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A typology of community and stakeholder engagement based on documented examples in the field of novel vector control.
BackgroundDespite broad consensus on the importance of community and stakeholder engagement (CSE) for guiding the development, regulation, field testing, and deployment of emerging vector control technologies (such as genetically engineered insects), the types of activities pursued have varied widely, as have the outcomes. We looked to previous CSE efforts for clarity about appropriate methods and goals. Our analysis yielded a typology of CSE, and related vocabulary, that describes distinctions that funders, organizers, and scholars should make when proposing or evaluating CSE.MethodsWe compiled available formal documentation of CSE projects, starting with projects mentioned in interviews with 17 key informants. Major features of these examples, including the initiators, target groups, timing, goals, and methods were identified using qualitative coding. Based on these examples, subcategories were developed for a subset of features and applied to the identified cases of CSE in the documents. Co-occurrence of subcategorized features was examined for patterns.ResultsWe identified 14 documented examples CSE projects, which were comprised of 28 distinct CSE activities. We found no clear patterns with respect to timing. However, we found that grouping examples according to whether initiators or targets could enact the immediate desired outcome could help to clarify relationships between goals, methods, and targets.ConclusionBased on this analysis, we propose a typology that distinguishes three categories of CSE: engagement to inquire -where initiators are empowered to act on information collected through engagement with target groups; engagement to influence -where initiators engage to affect the actions of already-empowered target groups; and engagement to involve -where initiators engage to delegate authority to target groups. The proposed typology can serve as a guide for establishing the goals, identifying appropriate methods, and evaluating and reporting CSE projects by directing attention to important questions to be asked well before determining who to engage and how
From Snow-Girls to Water-Babies: Shifting Aesthetics and Traditions in the Children\u27s Literary Marketplace
This dissertation traces the separation of childrenās literature from a general fiction market to its own lucrative genre during the mid-nineteenth to early-twentieth century in order to demonstrate the shifting attitudes about childhood and womanhood affecting, or affected by, the development of the childrenās literary market in America. I focus on the shifting ideology about children and childhood as a separate sphere and the ability of the literary marketplace to harness the profit potential of changing attitudes and advancements in consumer culture. To that end, the analysis suggests mass-culture and shifting cultural ideas about both femininity and childhood play significant roles in developing childrenās literature as a separate genre and solidifying its role in the literary marketplace during the Golden Age of the early twentieth century. I analyze neglected short stories and novels from Nathaniel Hawthorne, Louisa May Alcott, and Margaret Sidney to argue that their overlooked texts can offer opportunities for new research and are important works to include in comprehensive scholarly discussions of major themes for not only these authors, but also the development of childrenās literature as a whole. For example, Hawthorneās āThe Snow-Imageā and Alcottās āFancyās Friendā reveal anxieties about female creativity and artistic vision with links to the commercial and literary marketplace. Both Hawthorneās A Wonder-Book and Alcottās An Old-Fashioned Girl redefine what it means to be āAmericanā and explore similar conflicts of creativity. Sidneyās Five Little Peppers series builds upon Alcottās sentimentalization of poverty and exploits the romanticized child, illustrating the predominance of these attitudes in the late-nineteenth century. The life and work of illustrator Jessie Willcox Smith effectively demonstrate the anxieties of female creativity in the literary and artistic marketplace, also present in Alcott and Hawthorne, and expose the new possibilities of independent womanhood alluded to in Alcottās novel. Furthermore, Smithās illustrations continue the trope of the romanticized child, like Sidney, to demonstrate the conflicting place that women artists and writers find themselves in the early twentieth century in terms of careers and subject matter
Model-based automatic generation of grasping regions
The problem of automatically generating stable regions for a robotic end effector on a target object, given a model of the end effector and the object is discussed. In order to generate grasping regions, an initial valid grasp transformation from the end effector to the object is obtained based on form closure requirements, and appropriate rotational and translational symmetries are associated with that transformation in order to construct a valid, continuous grasping region. The main result of this algorithm is a list of specific, valid grasp transformations of the end effector to the target object, and the appropriate combinations of translational and rotational symmetries associated with each specific transformation in order to produce a continuous grasp region
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Disposition toward privacy and information disclosure in the context of emerging health technologies.
ObjectiveWe sought to present a model of privacy disposition and its development based on qualitative research on privacy considerations in the context of emerging health technologies.Materials and methodsWe spoke to 108 participants across 44 interviews and 9 focus groups to understand the range of ways in which individuals value (or do not value) control over their health information. Transcripts of interviews and focus groups were systematically coded and analyzed in ATLAS.ti for privacy considerations expressed by respondents.ResultsThree key findings from the qualitative data suggest a model of privacy disposition. First, participants described privacy related behavior as both contextual and habitual. Second, there are motivations for and deterrents to sharing personal information that do not fit into the analytical categories of risks and benefits. Third, philosophies of privacy, often described as attitudes toward privacy, should be classified as a subtype of motivation or deterrent.DiscussionThis qualitative analysis suggests a simple but potentially powerful conceptual model of privacy disposition, or what makes a person more or less private. Components of privacy disposition are identifiable and measurable through self-report and therefore amenable to operationalization and further quantitative inquiry.ConclusionsWe propose this model as the basis for a psychometric instrument that can be used to identify types of privacy dispositions, with potential applications in research, clinical practice, system design, and policy
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