Transitional Care for Patients with Congenital Colorectal Diseases : An EUPSA Network Office, ERNICA, and eUROGEN Joint Venture

Publisher Copyright: © 2023 The Author(s)BACKGROUND: Transition of care (TOC; from childhood into adulthood) of patients with anorectal malformations (ARM) and Hirschsprung disease (HD) ensures continuation of care for these patients. The aim of this international study was to assess the current status of TOC and adult care (AC) programs for patients with ARM and HD. METHODS: A survey was developed by members of EUPSA, ERN eUROGEN, and ERNICA, including patient representatives (ePAGs), comprising of four domains: general information, general questions about transition to adulthood, and disease-specific questions regarding TOC and AC programs. Recruitment of centres was done by the ERNs and EUPSA, using mailing lists and social media accounts. Only descriptive statistics were reported. RESULTS: In total, 82 centres from 21 different countries entered the survey. Approximately half of them were ERN network members. Seventy-two centres (87.8%) had a self-reported area of expertise for both ARM and HD. Specific TOC programs were installed in 44% of the centres and AC programs in 31% of these centres. When comparing centres, wide variation was observed in the content of the programs. CONCLUSION: Despite the awareness of the importance of TOC and AC programs, these programs were installed in less than 50% of the participating centres. Various transition and AC programs were applied, with considerable heterogeneity in implementation, content and responsible caregivers involved. Sharing best practice examples and taking into account local and National Health Care Programs might lead to a better continuation of care in the future. LEVEL OF EVIDENCE: III.Peer reviewe

Roman mystique, mystiques romanesques aux XXe et XXIe siècles

 The French novel from the past century is filled with desire aroused by mysticism ; this desire simultaneously stretches the novel’s boundaries. The way this desire is expressed reflects contemporary forms of the search for meaning, literature’s way of looking at its own powers and its confrontation with the limits of languag

Does biological maturity actually confound gender-related differences in physical activity in preadolescence?

Aim To examine: (i) if maturity-related gender differences in moderate-to-vigorous physical activity (MVPA) depend on how maturity status is defined and measured; and (ii) the influence of maturity level on compliance with PA recommendations. Methods The study involved 253 children (139 boys) aged 9.9 ± 0.9 years, with mean stature and weight of 1.39 ± 0.08 m and 35.8 ± 8.8 kg respectively. Their PA was evaluated using an Actigraph accelerometer (Model 7164). Maturity was assessed using the estimated age at peak height velocity (APHV) and a standardized APHV by gender (i.e. centred APHV). Results Boys engaged in significantly more MVPA than girls (P < 0.0001). There was a significant correlation between the centred APHV and MVPA in boys (r = 0.20; P = 0.016), but not in girls (r = 0.13; P = 0.155). An ancova controlling for the estimated APHV showed no significant interactions between gender and APHV, and the main effect of gender on MVPA was negated. Conversely, there was a significant main effect of APHV on MVPA (F 1,249 = 6.12; P = 0.014; η p 2 = 0.024). Only 9.1% of children met the PA recommendations, including 14.4% of boys and 2.6% of girls (P < 0.01). This observation also applies in both pre-APHV (12.7% of boys vs. 2.4% of girls, P < 0.001) and post-APHV children (23.8% of boys vs. 3.4% of girls, P < 0.0001). No differences in PA guidelines were observed between pre-APHV and post-APHV children. Conclusions Among prepubescent children, the influence of biological maturity on gender differences in PA may be a function of how maturity status is determined. The most physically active prepubescent children were those who were on time according to APHV

Brigthon Rock de Graham Greene : un thriller mystique

Graham Greene’s Brigton Rock is well known for being a roman noir with a religious, and even catholic, set of themes. In fact, it happens to be a spiritualist thriller : shaped by religious references, presenting typical and allegorical characters, it gives the reader to think about the reversibility of Good and Evil from the catholic Redemption point of view, which makes it a transposition into the thriller genre of the late nineteenth-century mystical naturalism

La Plume et le Goupillon. L’écrivain catholique en question aux XXe et XXIe siècles

            Souvent utilisée par la critique dans le champ littéraire français des XXe et XXIe siècles, l’appellation « écrivain catholique » est éminemment problématique. Elle a rarement été reconnue par les écrivains ainsi baptisés, et résulte surtout d’une construction historique, à laquelle ont contribué tous les acteurs du champ littéraire — revues, éditeurs, institutions diverses. Le présent ouvrage, auquel ont collaboré une vingtaine de spécialistes, se propose d’étudier les enjeux de cette étiquette confessionnelle, en trois temps — d’abord le processus de son émergence, ensuite certains des principaux débats et combats qu’elle a suscités, enfin les réactions des écrivains présumés « catholiques » eux-mêmes, entre revendication et défiance

Julien Green et la hantise de l’imposture

Young author of a religious pamphlet, Julien Green suspected an ethical and aesthetic imposture in this literary positioning. The desire for truth allows him to profess his faith, but the autobiographical confidences are subjected to complex requirements. For his novels, gushing out from the depths of the psyche, he rejects the catholic label: the spiritual sense of a writing that explores the darkness of the human condition paradoxically depends on the renunciation of any apologetic purpose

Fostering first-year student learning through research integration into teaching: Student perceptions, beliefs about the value of research and student achievement

Research should be explicated in undergraduate teaching in a way that stimulates student learning. Previous studies in higher education have shown that student perceptions of research integrated into teaching could promote student learning, but have also indicated that it can be difficult to confront first-year undergraduates with research during courses. In this study, we describe relationships between first-year medical student perceptions of research, learning outcomes and beliefs about the value of research. The Student Perception of Research Integration Questionnaire was filled out by 261 students. Answers were related to student achievement. The findings suggest that student motivation for research is strongly related to merging current research into teaching. Students rather recognised an emphasis on research methodologies than research engagement. Particularly student beliefs about research are related to achievement. It is suggested that to foster positive beliefs about research, teachers should familiarise students with current research and create enthusiasm for research.Teaching and Teacher Learning (ICLON

Causes and characteristics of medical student referrals to a professional behaviour board

Objectives: To describe the nature of unprofessional behaviour displayed by medical students, as well as the characteristics of students referred to the professional behaviour board. Methods: A descriptive mixed methods approach was taken, in which qualitative data on unprofessional behaviour, as well as quantitative data on the demographics of referred students were collected during the study period between June 1, 2009 and January 1, 2014. In order to compare the referred students with the total student population, data on gender, nationality and phase in the curriculum of the total student population, collected from the student administration desk, were also used. Results: In the study period, a total of 107 referrals were reported, concerning 93 different students (3% of the total student population). Sixty-five of the 107 referrals (61%) concerned male students. Thirty referrals (28%) concerned non-Dutch students. Most referrals (71%) occurred during clinical rotations. The referrals were equally distributed over three professional behaviour domains: dealing with oneself, dealing with others, and dealing with tasks/work. 'Withdrawn behaviour' was reported 17 times, 'insufficient Dutch language proficiency' 14 times, 'impertinent emails' 9 times and 'placing privacy-sensitive photos on the internet' 3 times. Conclusions: Although only a minority of students are referred to a professional behaviour board, this study shows that student characteristics such as gender and nationality may correlate to a higher incidence of unprofessional behaviour. Further explanatory and exploratory research is needed to unravel this relationship, and to study the influence of curriculum reforms on these relationships, respectively