Transitional Care for Patients with Congenital Colorectal Diseases : An EUPSA Network Office, ERNICA, and eUROGEN Joint Venture

Publisher Copyright: © 2023 The Author(s)BACKGROUND: Transition of care (TOC; from childhood into adulthood) of patients with anorectal malformations (ARM) and Hirschsprung disease (HD) ensures continuation of care for these patients. The aim of this international study was to assess the current status of TOC and adult care (AC) programs for patients with ARM and HD. METHODS: A survey was developed by members of EUPSA, ERN eUROGEN, and ERNICA, including patient representatives (ePAGs), comprising of four domains: general information, general questions about transition to adulthood, and disease-specific questions regarding TOC and AC programs. Recruitment of centres was done by the ERNs and EUPSA, using mailing lists and social media accounts. Only descriptive statistics were reported. RESULTS: In total, 82 centres from 21 different countries entered the survey. Approximately half of them were ERN network members. Seventy-two centres (87.8%) had a self-reported area of expertise for both ARM and HD. Specific TOC programs were installed in 44% of the centres and AC programs in 31% of these centres. When comparing centres, wide variation was observed in the content of the programs. CONCLUSION: Despite the awareness of the importance of TOC and AC programs, these programs were installed in less than 50% of the participating centres. Various transition and AC programs were applied, with considerable heterogeneity in implementation, content and responsible caregivers involved. Sharing best practice examples and taking into account local and National Health Care Programs might lead to a better continuation of care in the future. LEVEL OF EVIDENCE: III.Peer reviewe

Roman mystique, mystiques romanesques aux XXe et XXIe siècles

 The French novel from the past century is filled with desire aroused by mysticism ; this desire simultaneously stretches the novel’s boundaries. The way this desire is expressed reflects contemporary forms of the search for meaning, literature’s way of looking at its own powers and its confrontation with the limits of languag

Does biological maturity actually confound gender-related differences in physical activity in preadolescence?

Aim To examine: (i) if maturity-related gender differences in moderate-to-vigorous physical activity (MVPA) depend on how maturity status is defined and measured; and (ii) the influence of maturity level on compliance with PA recommendations. Methods The study involved 253 children (139 boys) aged 9.9 ± 0.9 years, with mean stature and weight of 1.39 ± 0.08 m and 35.8 ± 8.8 kg respectively. Their PA was evaluated using an Actigraph accelerometer (Model 7164). Maturity was assessed using the estimated age at peak height velocity (APHV) and a standardized APHV by gender (i.e. centred APHV). Results Boys engaged in significantly more MVPA than girls (P < 0.0001). There was a significant correlation between the centred APHV and MVPA in boys (r = 0.20; P = 0.016), but not in girls (r = 0.13; P = 0.155). An ancova controlling for the estimated APHV showed no significant interactions between gender and APHV, and the main effect of gender on MVPA was negated. Conversely, there was a significant main effect of APHV on MVPA (F 1,249 = 6.12; P = 0.014; η p 2 = 0.024). Only 9.1% of children met the PA recommendations, including 14.4% of boys and 2.6% of girls (P < 0.01). This observation also applies in both pre-APHV (12.7% of boys vs. 2.4% of girls, P < 0.001) and post-APHV children (23.8% of boys vs. 3.4% of girls, P < 0.0001). No differences in PA guidelines were observed between pre-APHV and post-APHV children. Conclusions Among prepubescent children, the influence of biological maturity on gender differences in PA may be a function of how maturity status is determined. The most physically active prepubescent children were those who were on time according to APHV

Brigthon Rock de Graham Greene : un thriller mystique

Graham Greene’s Brigton Rock is well known for being a roman noir with a religious, and even catholic, set of themes. In fact, it happens to be a spiritualist thriller : shaped by religious references, presenting typical and allegorical characters, it gives the reader to think about the reversibility of Good and Evil from the catholic Redemption point of view, which makes it a transposition into the thriller genre of the late nineteenth-century mystical naturalism

La Plume et le Goupillon. L’écrivain catholique en question aux XXe et XXIe siècles

            Souvent utilisée par la critique dans le champ littéraire français des XXe et XXIe siècles, l’appellation « écrivain catholique » est éminemment problématique. Elle a rarement été reconnue par les écrivains ainsi baptisés, et résulte surtout d’une construction historique, à laquelle ont contribué tous les acteurs du champ littéraire — revues, éditeurs, institutions diverses. Le présent ouvrage, auquel ont collaboré une vingtaine de spécialistes, se propose d’étudier les enjeux de cette étiquette confessionnelle, en trois temps — d’abord le processus de son émergence, ensuite certains des principaux débats et combats qu’elle a suscités, enfin les réactions des écrivains présumés « catholiques » eux-mêmes, entre revendication et défiance

Julien Green et la hantise de l’imposture

Young author of a religious pamphlet, Julien Green suspected an ethical and aesthetic imposture in this literary positioning. The desire for truth allows him to profess his faith, but the autobiographical confidences are subjected to complex requirements. For his novels, gushing out from the depths of the psyche, he rejects the catholic label: the spiritual sense of a writing that explores the darkness of the human condition paradoxically depends on the renunciation of any apologetic purpose

A Description of Clinician Reported Diagnosis of Type 2 Diabetes and Other Non-Type 1 Diabetes Included in a Large International Multicentered Pediatric Diabetes Registry (SWEET)

Although type 1 diabetes (T1D) remains the most frequent form of diabetes in individuals aged less than 20 years at onset, other forms of diabetes are being increasingly recognized.info:eu-repo/semantics/publishedVersio