E-Zigaretten - Hilfe oder Verführer? Eine Dilemmasituation bewerten

Vorgestellt wird ein Unterrichtsentwurf für Schülerinnen und Schüler der Jahrgangsstufe 10-12. Anhand einer Dilemmasituation zu E-Zigaretten soll die Bewertungskompetenz gefördert und die Jugendlichen gegenüber dem Thema sensibilisiert werden

Eine Analyse der Anfragen von Patientinnen und Patienten sowie Angehörigen von 1992 bis 2016

Rosset M, Reifegerste D, Baumann E, Kludt E, Weg-Remers S. Langzeittrends beim Krebsinformationsdienst (KID) des Deutschen Krebsforschungszentrums (DKFZ). Bundesgesundheitsblatt - Gesundheitsforschung - Gesundheitsschutz. 2019;62(9):1120-1128.Hintergrund Krebsinformationsdienste dienen Ratsuchenden als Quelle für evidenzbasiertes Wissen. Bisherige Studien über ihre Inanspruchnahme betrachten nur kurze Zeiträume und können somit keine Aussagen über langfristige Veränderungen liefern. Ziel der Arbeit Ziel der Studie ist die Identifikation von Langzeittrends in den Anfragen von Patientinnen und Patienten sowie Angehörigen an den deutschen Krebsinformationsdienst (KID). Methode Sekundäranalyse der Anfrageprotokolle an den KID des Deutschen Krebsforschungszentrums (DKFZ; N = 545.070) von Anfang 1992 bis Ende 2016. Die Anfrageentwicklung wird anhand der Gesamtzahl der Anfragen beschrieben, während die Deskription weiterer Merkmale an einer Stichprobe (n = 55.046) von Patientinnen und Patienten sowie Angehörigen erfolgt. Ergebnisse Die Anfragen sind im Untersuchungszeitraum deutlich angestiegen (1992: 11.344 Anfragen; 2016: 34.869 Anfragen). Dabei liegt seit 2005 der Anteil der Patientinnen und Patienten (zwischen 52 % und 60 %) über dem Anteil der Angehörigen. Das Durchschnittsalter der Patientinnen und Patienten ist angestiegen: Lag es von 1992 bis einschließlich 2000 noch unter 55 Jahren, stieg es seitdem bis ins Jahr 2016 auf über 60 Jahre an. Anfragen zu Brustkrebs wurden im gesamten Untersuchungszeitraum am häufigsten gestellt (Patientinnen/Patienten: n = 11.319, 39 %; Angehörige: n = 4173, 17 %). Auch nachdem E‑Mail als neuer Anfragekanal eingeführt wurde, bevorzugt ein Großteil der Anfragenden weiterhin den telefonischen Kontakt (zwischen 80 % und 98 %). Diskussion Die Inanspruchnahme des Krebsinformationsdienstes unterliegt zeitlichen Veränderungen, die vermutlich mit strukturellen Faktoren, wie Prävalenzraten oder Entwicklungen in Familienstrukturen oder Medienumgebungen, in Zusammenhang stehen.Background Cancer information services (CISs) are a valuable source of evidence-based information. Previous studies in the field of CISs often investigate only short periods of time. However, there is a need for long-term analyses to identify changes in the use of CISs. Objectives The purpose of this study was to analyze trends in the inquiries of patients and surrogate seekers to a CIS. Method We conducted a secondary data analysis of the inquiry records of the German CIS (Krebsinformationsdienst, KID) hosted by the German Cancer Research Center from 1992 until 2016 (N = 545,070). Trends in the number of inquiries were described using the whole sample, while the description of further characteristics is based on a sample (n = 55,046) of patients, their family members, and friends. Results The inquiries increased in the period examined (1992: 11,344 inquiries; 2016: 34,869 inquiries). Since 2005, a greater share of patients (between 52 and 60%) than surrogate seekers have been contacting the CIS. The mean age of both self-seeking and supported patients increased from under 55 years between 1992 and 2000 up to over 60 years in the year 2016. Breast cancer is at all times the most frequently inquired cancer type (patients: n = 11,319, 39%; surrogate seekers: n = 4173, 17%). Even after the implementation of e‑mail as an additional communication channel, the majority of inquirers still prefer contact by phone (between 80 and 98%). Conclusions Changes in the utilization of a CIS over time are discussed against the background of structural changes, such as shifts in prevalence rates, family structures, or media environments

Demographic and cancer‐related differences between self‐seeking patients and supported patients: Analysis of cancer information–service data

Reifegerste D, Czerwinski F, Rosset M, Baumann E, Kludt E, Weg‐Remers S. Demographic and cancer‐related differences between self‐seeking patients and supported patients: Analysis of cancer information–service data. Psycho-Oncology. 2019;28(4):759-766.Objective: Surrogate information seeking is quite common, and several studies have presented data on caregivers, family members, and friends who seek health information on the Internet or from a cancer‐information service (CIS) on behalf of cancer patients. However, these studies provide little information about the patients who are supported by surrogate seekers. Therefore, this study analyzed demographic and cancer‐related differences, including diverse informational needs, between self‐seeking patients and patients who benefited from surrogate seekers (ie, caregivers, family, or friends) requesting information on their behalf. Methods: We conducted a retrospective audit of phone and e‐mail inquiries to a German CIS between January and December 2016 from self‐seeking patients (n = 13 723) and surrogate information seekers, as well as the corresponding supported patients (n = 6696). Results: Supported patients were more likely to be males (P Conclusions: The results point to different support needs of self‐seekers and surrogate seekers. Thus, surrogate seekers and their corresponding supported patients should be seen as a separate target group to self‐seeking patients, with the former requiring informational and emotional support on diverging topics and at different disease stages

Understanding the Pathway of Cancer Information Seeking: Cancer Information Services as a Supplement to Information from Other Sources

Reifegerste D, Rosset M, Czerwinski F, et al. Understanding the Pathway of Cancer Information Seeking: Cancer Information Services as a Supplement to Information from Other Sources. Journal of Cancer Education. 2021.Cancer information services (CISs) can play an important role within the pathway of cancer information seeking, but so far, this role is not well understood. Callers (n=6,255) who contacted the largest provider of cancer information in Germany participated in a survey in which they reported their information sources, information level, and needs leading to the call. Persons with prior information from a physician (n=1,507) were compared to people with prior online information (n=901) and people with prior information from both sources (n=2,776). Nearly all callers (96.7%) stated prior sources, while physicians and the Internet were the most frequently reported sources. People, who only talked to a doctor before, are more likely to be a patient and in the disease stages during/after the first treatment or with recurrence than prior Internet users. The two groups do not differ in their prior information level but did differ in their information needs. CISs are an important supplement to other sources, while the information repertoire depends on patients' stages during the cancer journey. Specific characteristics and needs of callers with different prior information sources help to individualize the service of CISs and similar providers. © 2021. The Author(s)

Impfen gegen Krebs? : Unterrichtskonzept zum Thema Humane Papillomviren

Eine HPV-Impfung wird von der Ständigen Impfkommission (STIKO) für Jungen und Mädchen im Alter zwischen 9 und 14 Jahren empfohlen. Die Impfung kann eine Ansteckung mit Hochrisiko-HPV-Typen, insbesondere HPV 16 und 18, verhindern und damit das Risiko für Gebärmutterhalskrebs und andere Tumoren z.B. an Vulva, Scheide, Penis, After und im Mund-Rachen-Bereich deutlich senken. Die vorgestellte Unterrichtseinheit soll die Schülerinnen und Schüler durch fundierte und verständliche Informationen dabei unterstützen eine persönliche, begründete Entscheidung für oder gegen eine Impfung zu treffen. Grundlage dieser Entscheidung sind neben den bereitgestellten Informationen auch selbst recherchierte Fakten. Daher wird auch das Überprüfen von Internetseiten auf Glaubwürdigkeit und Seriosität thematisiert und so insbesondere die digitale Gesundheitskompetenz gestärkt

Intentions of Patients With Cancer and Their Relatives to Use a Live Chat on Familial Cancer Risk: Results From a Cross-Sectional Web-Based Survey

Memenga P, Baumann E, Lütke Lanfer H, et al. Intentions of Patients With Cancer and Their Relatives to Use a Live Chat on Familial Cancer Risk: Results From a Cross-Sectional Web-Based Survey. Journal of Medical Internet Research. 2023;25: e45198.BACKGROUND: An important prerequisite for actively engaging in cancer prevention and early detection measures, which is particularly recommended in cases of familial cancer risk, is the acquisition of information. Although a lot of cancer information is available, not all social groups are equally well reached because information needs and communicative accessibility differ. Previous research has shown that a live chat service provided by health professionals could be an appropriate, low-threshold format to meet individual information needs on sensitive health topics such as familial cancer risk. An established German Cancer Information Service is currently developing such a live chat service. As it is only worthwhile if accepted by the target groups, formative evaluation is essential in the course of the chat service's development and implementation.; OBJECTIVE: This study aimed to explore the acceptance of a live chat on familial cancer risk by patients with cancer and their relatives (research question [RQ] 1) and examine the explanatory power of factors associated with their intentions to use such a service (RQ2). Guided by the Extended Unified Theory of Acceptance and Use of Technology (UTAUT2), we examined the explanatory power of the following UTAUT2 factors: performance expectancy, effort expectancy, social influence, facilitating conditions, and habit, supplemented by perceived information insufficiency, perceived susceptibility, perceived severity, and cancer diagnosis as additional factors related to information seeking about familial cancer.; METHODS: We conducted a cross-sectional survey via a German web-based access panel in March 2022 that was stratified by age, gender, and education (N=1084). The participants are or have been diagnosed with cancer themselves (n=144) or have relatives who are or have been affected (n=990). All constructs were measured with established scales. To answer RQ1, descriptive data (mean values and distribution) were used. For RQ2, a blockwise multiple linear regression analysis was conducted.; RESULTS: Overall, 32.7% of participants were (rather) willing, 28.9% were undecided, and 38.4% were (rather) not willing to use a live chat on familial cancer risk in the future. A multiple linear regression analysis explained 47% of the variance. It revealed that performance expectancy, social influence, habit, perceived susceptibility, and perceived severity were positively associated with the intention to use a live chat on familial cancer risk. Effort expectancy, facilitating conditions, information insufficiency, and cancer diagnosis were not related to usage intentions.; CONCLUSIONS: A live chat seems promising for providing information on familial cancer risk. When promoting the service, the personal benefits should be addressed in particular. UTAUT2 is an effective theoretical framework for explaining live chat usage intentions and does not need to be extended in the context of familial cancer risk. ©Paula Memenga, Eva Baumann, Hanna Luetke Lanfer, Doreen Reifegerste, Julia Geulen, Winja Weber, Andrea Hahne, Anne Muller, Susanne Weg-Remers. Originally published in the Journal of Medical Internet Research (https://www.jmir.org), 28.08.2023

Understanding Trust Determinants in a Live Chat Service on Familial Cancer: Qualitative Triangulation Study With Focus Groups and Interviews in Germany

BackgroundIn dealing with familial cancer risk, seeking web-based health information can be a coping strategy for different stakeholder groups (ie, patients, relatives, and those suspecting an elevated familial cancer risk). In the vast digital landscape marked by a varied quality of web-based information and evolving technologies, trust emerges as a pivotal factor, guiding the process of health information seeking and interacting with digital health services. This trust formation in health information can be conceptualized as context dependent and multidimensional, involving 3 key dimensions: information seeker (trustor), information provider (trustee), and medium or platform (application). Owing to the rapid changes in the digital context, it is critical to understand how seekers form trust in new services, given the interplay among these different dimensions. An example of such a new service is a live chat operated by physicians for the general public with personalized cancer-related information and a focus on familial cancer risk. ObjectiveTo gain a comprehensive picture of trust formation in a cancer-related live chat service, this study investigates the 3 dimensions of trust—trustor, trustee, and application—and their respective relevant characteristics based on a model of trust in web-based health information. In addition, the study aims to compare these characteristics across the 3 different stakeholder groups, with the goal to enhance the service’s trustworthiness for each group. MethodsThis qualitative study triangulated the different perspectives of medical cancer advisers, advisers from cancer support groups, and members of the public in interviews and focus group discussions to explore the 3 dimensions of trust—trustor, trustee, and application—and their determinants for a new live chat service for familial cancer risk to be implemented at the German Cancer Information Service. ResultsThe results indicate that experience with familial cancer risk is the key trustor characteristic to using, and trusting information provided by, the live chat service. The live chat might also be particularly valuable for people from minority groups who have unmet needs from physician-patient interactions. Participants highlighted trustee characteristics such as ability, benevolence, integrity, and humanness (ie, not a chatbot) as pivotal in a trustworthy cancer live chat service. Application-related characteristics, including the reputation of the institution, user-centric design, modern technology, and visual appeal, were also deemed essential. Despite the different backgrounds and sociodemographics of the 3 stakeholder groups, many overlaps were found among the 3 trust dimensions and their respective characteristics. ConclusionsTrust in a live chat for cancer information is formed by different dimensions and characteristics of trust. This study underscores the importance of understanding trust formation in digital health services and suggests potential enhancements for effective, trustworthy interactions in live chat services (eg, by providing biographies of the human medical experts to differentiate them from artificial intelligence chatbots)