869 research outputs found

    "Into the Woods": The Experiences and Preparation of Teachers Who Direct Secondary School Musical Theatre

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    This study examines the personal investment of four NSW Independent secondary school music and drama teachers who direct musical theatre productions. It considers these teachers’ attitudes and beliefs regarding the social and educational value of such productions, and the manner in which these productions exist within the schools that produce them. Through semi-structured interviews with these four teachers, this study outlines their experiences in producing and directing these musical theatre productions and their preparation for such involvement. By examining the relationship between the preparation and experiences of these teachers in relation to their beliefs and opinions regarding available training, this study also considers the implications of this data in regard to music education degrees

    Islamic Feminism: A Discourse of Gender Justice and Equality

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    This paper examines Islamic feminism using structural methodology and the phenomenological approach to examine the component of Muslim feminists\u27 activism that utilizes ijtihad and tafsir to reinterpret patriarchal rhetoric and highlight Islamic discourses that validate gender equality. These scholars and activists critically analyze Islamic theology by employing hermeneutics in order to produce Islamic exegeses that affirm social justice, gender equality, and liberation. Religion plays a critical role in building collective cultural identities; therefore, examining sacred texts\u27 representation and prescription of gender roles and mores generates an understanding of the gender order in the community of believers, while simultaneously exposing contextual patriarchal inaccuracies that result in gender inequities. Muslim scholar-activists engage in this work to re-appropriate their cultural self-definition by emphasizing the socio-political environments that shaped the interpretations of the Qur’an and Hadiths in order to promote justice and affirm gender equality within an Islamic paradigm. A liberatory theology legitimized by Islamic sacred texts not only confronts systemic and systematic repressive practices against women but also mandates reflexive change in Islamic societies. Muslims\u27 collective identity is couched within an Islamic discourse; therefore, Muslim scholar-activists\u27 reinterpretation of sacred texts has the potential to enable a genuine cultural paradigm shift that can establish the necessary milieu for progressive women’s rights to not only be proposed but also implemented successfully in Islamic societies. This paper evaluates the growing academic literature on reform-oriented Muslim scholar-activists and specifically focuses on the ways in which Islamic feminists reinterpret the Qur’an by employing ijtihad and tafsir to 1) contextualize verses and revelations; 2) search for the best meaning as charged by the Qur’an; 3) compare specific words or ayats with the syntactical composition elsewhere in the sacred text; and, 4) read ayat and suras in a holistic manner with the Qur’an’s broader thematic message in mind. Their reinterpretations set the foundation for Islamic feminists\u27 activism in broader society that seeks to eliminate social discrimination, promote social justice, and progress human equality and dignity. This examination of Muslim scholar-activists\u27 hermeneutics illustrates that Islamic feminism is a viable avenue to empower Muslim women and foster grass-roots cultural transformation in Muslim societies towards more gender egalitarian attitudes and practices. I argue that Islamic feminist scholars’ hermeneutics unshackles Islam’s liberatory theology and egalitarian message from patriarchal inaccuracies

    Escaping the middle income trap

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    Verbetering trosvorming bij trosrozen door teelthandelingen

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    Het jaarrond telen van trosrozen met voldoende bloemen op het bloemgestel is voor veel telers een probleem. In dit onderzoek is onderzocht of door gewasopbouw (snoeimethode) en de keuze van cultivar en onderstam een verbetering kan worden bereikt van het percentage trossen bij trosrozen. In totaal zijn in dit onderzoek drie knipmethoden en twee cultivars vergeleken. Bij één cultivar zijn twee onderstammen, in combinatie met eigen wortel, met elkaar vergeleken. Met behulp van de gewasopbouw het percentage trossen beïnvloeden is mogelijk gebleken. Een opbouw waarbij de basis van de plant dichter bij de grond blijft en waarbij er minder ogen zijn waar de plant mee uit kan lopen beïnvloedt het percentage trossen en het takgewicht positief. Het aantal geoogste takken wordt echter negatief beïnvloed, zodat per saldo er geen verschil in het totaal geoogste aantal kilogrammen per snoeimethode is. Bij de snoeimethode 'knotroos', waarbij contant nieuwe grondscheuten gevormd worden, is de groeiduur van knippen tot de volgende oogst langer dan bij de andere methoden

    Dutch translation and cultural adaptation of new LYMPH-Q- scales measuring impact on work and lymphedema worry

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    Background: Breast cancer-related lymphedema (BCRL) is a significant complication of breast cancer treatment that can impact patients’ quality of life. This study focuses on the translation and cultural adaptation of two new LYMPH-Q scales ‘Impact on Work’ and ‘Lymphedema worry’ into Dutch to assess the work-related challenges and worries experienced by patients with BCRL in the Netherlands. Methods: The translation process followed established guidelines from the International Society for Pharmacoeconomics and Outcomes Research (ISPOR) and the World Health Organization (WHO). Forward and back translations, expert panel reviews, cognitive debriefing interviews with patients with BCRL, and proofreading were conducted to refine the Dutch translation of the scales. The translation aimed to ensure conceptual equivalence and cultural relevance. Results: The translation process resulted in the Dutch versions of the LYMPH-Q ‘Impact on Work’ and ‘Lymphedema worry’ scales. The forward translation revealed discrepancies in meaning, word order and synonyms. The back translation and review resulted in changes in item formulation. The expert panel meeting and cognitive debriefing interviews provided valuable input for further refinement. Conclusion: The translated LYMPH-Q ‘Impact on Work’ and ‘Lymphedema worry’ scales provide healthcare professionals with an instrument to assess and monitor the impact of BCRL on work-related challenges and on worries. This comprehensive translation process, involving patients with BCRL and experts, ensured the linguistic accuracy, cultural relevance, and clarity of the Dutch versions. The translated scales will contribute to a better understanding of the multifaceted impact of BCRL and facilitate the development of tailored interventions to improve patients’ well-being and functional outcomes.</p

    Trial Participation in Neurodegenerative Diseases: Barriers and Facilitators: A Systematic Review and Meta-Analysis

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    BACKGROUND AND OBJECTIVES: Clinical trials in neurodegenerative diseases often encounter selective enrollment and under-representation of certain patient populations. This delays drug development and substantially limits the generalizability of clinical trial results. To inform recruitment and retention strategies, and to better understand the generalizability of clinical trial populations, we investigated which factors drive participation. METHODS: We reviewed the literature systematically to identify barriers to and facilitators of trial participation in 4 major neurodegenerative disease areas: Alzheimer disease, Parkinson disease, amyotrophic lateral sclerosis, and Huntington disease. Inclusion criteria included original research articles published in a peer-reviewed journal and evaluating barriers to and/or facilitators of participation in a clinical trial with a drug therapy (either symptomatic or disease-modifying). The Critical Appraisal Skills Program checklist for qualitative studies was used to assess and ensure the quality of the studies. Qualitative thematic analyses were employed to identify key enablers of trial participation. Subsequently, we pooled quantitative data of each enabler using meta-analytical models. RESULTS: Overall, we identified 36 studies, enrolling a cumulative sample size of 5,269 patients, caregivers, and health care professionals. In total, the thematic analysis resulted in 31 unique enablers of trial participation; the key factors were patient-related (own health benefit and altruism), study-related (treatment and study burden), and health care professional-related (information availability and patient-physician relationship). When meta-analyzed across studies, responders reported that the reason to participate was mainly driven by (1) the relationship with clinical staff (70% of the respondents; 95% CI 53%-83%), (2) the availability of study information (67%, 95% CI 38%-87%), and (3) the use or absence of a placebo or sham-control arm (53% 95% CI 32%-72%). There was, however, significant heterogeneity between studies (all p < 0.001). DISCUSSION: We have provided a comprehensive list of reasons why patients participate in clinical trials for neurodegenerative diseases. These results may help to increase participation rates, better inform patients, and facilitate patient-centric approaches, thereby potentially reducing selection mechanisms and improving generalizability of trial results

    Dutch translation and cultural adaptation of new LYMPH-Q- scales measuring impact on work and lymphedema worry

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    Background: Breast cancer-related lymphedema (BCRL) is a significant complication of breast cancer treatment that can impact patients’ quality of life. This study focuses on the translation and cultural adaptation of two new LYMPH-Q scales ‘Impact on Work’ and ‘Lymphedema worry’ into Dutch to assess the work-related challenges and worries experienced by patients with BCRL in the Netherlands. Methods: The translation process followed established guidelines from the International Society for Pharmacoeconomics and Outcomes Research (ISPOR) and the World Health Organization (WHO). Forward and back translations, expert panel reviews, cognitive debriefing interviews with patients with BCRL, and proofreading were conducted to refine the Dutch translation of the scales. The translation aimed to ensure conceptual equivalence and cultural relevance. Results: The translation process resulted in the Dutch versions of the LYMPH-Q ‘Impact on Work’ and ‘Lymphedema worry’ scales. The forward translation revealed discrepancies in meaning, word order and synonyms. The back translation and review resulted in changes in item formulation. The expert panel meeting and cognitive debriefing interviews provided valuable input for further refinement. Conclusion: The translated LYMPH-Q ‘Impact on Work’ and ‘Lymphedema worry’ scales provide healthcare professionals with an instrument to assess and monitor the impact of BCRL on work-related challenges and on worries. This comprehensive translation process, involving patients with BCRL and experts, ensured the linguistic accuracy, cultural relevance, and clarity of the Dutch versions. The translated scales will contribute to a better understanding of the multifaceted impact of BCRL and facilitate the development of tailored interventions to improve patients’ well-being and functional outcomes.</p

    Pattern of muscle strength improvement after intravenous immunoglobulin therapy in multifocal motor neuropathy

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    INTRODUCTION: In multifocal motor neuropathy (MMN), knowledge about the pattern of treatment response in a wide spectrum of muscle groups, distal as well as proximal, after intravenous immunoglobulin (IVIg) initiation is lacking. METHODS: Hand-held dynamometry data of 11 upper and lower limb muscles, from 47 patients with MMN was reviewed. Linear mixed models were used to determine the treatment response after IVIg initiation and its relationship with initial muscle weakness. RESULTS: All muscle groups showed a positive treatment response after IVIg initiation. Changes in SD scores ranged from +0.1 to +0.95. A strong association between weakness at baseline and the magnitude of the treatment response was found. DISCUSSION: Improved muscle strength in response to IVIg appears not only in distal, but to a similar degree also in proximal muscle groups in MMN, with the largest response in muscle groups that show the greatest initial weakness

    Home-monitoring of vital capacity in people with a motor neuron disease

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    BACKGROUND: Home-monitoring of spirometry has the potential to improve care for patients with a motor neuron disease (MND) by enabling early detection of respiratory dysfunction and reducing travel burden. Our aim was to evaluate the validity and feasibility of home-monitoring vital capacity (VC) in patients with MND. METHODS: We included 33 patients with amyotrophic lateral sclerosis, progressive muscular atrophy or primary lateral sclerosis who completed a 12-week home-monitoring protocol, consisting of 4-weekly unsupervised home assessments of VC and a functional rating scale. At baseline, during a home visit, patients/caregivers were trained in performing a VC test, and the investigator performed a supervised VC test, which was repeated at final follow-up during a second home visit. Validity of the unsupervised VC tests was evaluated by the differences between supervised and unsupervised VC tests, and through Bland-Altman 95% limits-of-agreement. Feasibility was assessed by means of a survey of user-experiences. RESULTS: The 95% limits-of-agreement were [- 14.3; 11.7] %predicted VC, and 88% of unsupervised VC tests fell within 10%predicted of supervised VC. 88% of patients experienced VC testing as easy and not burdensome, however, 15% patients did not think their VC test was performed as well as in the clinic. 94% of patients would like home-monitoring of VC in MND care. DISCUSSION: Unsupervised VC testing at home, with prior face-to-face training, is a valid and time-efficient method for the remote monitoring of respiratory function, and well-accepted by patients with MND and their caregivers
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