Pediatric medical traumatic stress in individuals with craniofacial conditions

Purpose: This article reviews the literature focused on the psychological effects of craniofacial care for patients and their families. It provides an overview of pediatric medical traumatic stress associated with craniofacial conditions and related care along with a review of its risk and protective factors. Findings from studies of pediatric medical traumatic stress in craniofacial populations are also reviewed. Conclusion: The article concludes with strategies for identifying, addressing, and preventing medical traumatic stress in the context of craniofacial care. Specific implications for speech language pathologists are also shared with respect to ways of minimizing risks for medical traumatic stress in craniofacial care. Future directions are also delineated and include strategies to improve screening and support for patients with craniofacial conditions and their families, along with the development of interventions aimed at increasing resilience

Stigma and Differences of Sex Development: A Scoping Review

Scoping Review ProtocolN/Ahttp://deepblue.lib.umich.edu/bitstream/2027.42/167691/1/Scoping Review Protocol_Stigma.pdfDescription of Scoping Review Protocol_Stigma.pdf : Stigma in DSD Scoping Review ProtocolSEL

Stigma and Differences of Sex Development: Search Strategies

http://deepblue.lib.umich.edu/bitstream/2027.42/192640/2/DSDSTIG_Search_Documentation.pdfDescription of DSDSTIG_Search_Documentation.pdf : Document containing search strateigies associated with this scoping review.SEL

Microtia and craniofacial microsomia: Content analysis of facebook groups

Objective An increasing number of patients use social media for health-related information and social support. This study’s objective was to describe the content posted on Facebook groups for individuals with microtia and/or craniofacial microsomia (CFM) and their families in order for providers to gain insight into patient and family needs and experiences to inform clinical care. Methods Two months of posts, images, comments, and ‘like’ responses from two Facebook groups in the US and the UK were recorded and analyzed using content analysis. A secondary analysis identified statements of emotion. Results Posts (N=254) had a total of 7,912 “like” responses, 2,245 comments, and 153 images. There were three categories of posts: seeking guidance (43%; 9 themes), promoting events/news (33%; 5 themes), and sharing experiences (24%; 3 themes). Across categories, 16% of posts had emotional content. Most comments were responding to posts seeking guidance, including medical care (20%), surgical care (9%), and hearing aids (5%). Promotional posts often aimed to increase CFM awareness. Posts sharing experiences were generally positive, with the highest number of “likes”. Conclusions Facebook groups members frequently exchanged health-related information, suggesting value placed on input from other families and the convenience of seeking information online. Posts also promoted awareness and shared experiences. Clinical care implications include the need for easily accessible accurate and tailored CFM-related health education. Additionally, providers should demonstrate awareness of health information on social media and may address the potential emotional impact of CFM by facilitating access to resources for social support