CALIDAD DE VIDA DE PERSONAS CON LEPRA QUE ACUDEN A GRUPOS DE APOYO PARA EL AUTOCUIDADO

Objetivo: analisar a qualidade de vida de pessoas afetadas pela hanseníase inseridas em grupos deapoio ao autocuidado.Método: estudo quantitativo, descritivo, com 43 participantes em unidades de referência quepossuíam grupos de apoio ao autocuidado em hanseníase, em Recife e Região Metropolitana. Acoleta de dados ocorreu entre janeiro e julho de 2018 com a aplicação do instrumento de avaliaçãode qualidade de vida WHOQOL-bref. A distribuição das variáveis numéricas contínuas foi analisadapelo teste de Kolmogorov-Smirnov, as categóricas foram apresentadas por frequência absoluta erelativa (%).Resultados: o escore global de qualidade de vida foi 56,4 e os escores dos domínios revelaram-semedianos, com faixas de 50-60. Verificou-se que os domínios com menores pontuações foram osdomínios físicos e relações ambientais.Conclusão: pessoas afetadas pela hanseníase apresentam diminuição da qualidade de vida. Apesarde ter cura, é problema de saúde pública, necessitando de atenção para controle e eliminação.Objective: To analyze the quality of life of people affected by leprosy in self-care supportgroups.Method: A quantitative and descriptive study conducted with 43 participants in reference unitswith self-care support groups for people affected by leprosy in Recife and its MetropolitanArea. Data collection took place between January and July 2018 with the application ofthe WHOQOL-BREF instrument to assess quality of life. The distribution of the continuousnumerical variables was analyzed by the Kolmogorov-Smirnov test; the categorical variableswere presented by absolute and relative (%) frequency.Results: The overall quality of life score was 56.4 and the domain scores were average, rangingbetween 50 and 60. The domains with the lowest scores were found to be the physical andenvironmental relationship domainsConclusion: People affected by leprosy have a decreased quality of life. Although curable, itis a public health problem and requires attention for control and elimination.Objetivo: analizar la calidad de vida de personas con lepra que acuden a grupos de apoyopara el autocuidado.Método: estudio cuantitativo y descriptivo realizado con 43 participantes en unidades dereferencia que poseían grupos de apoyo para el autocuidado de la lepra, en Recife y en suRegión Metropolitana. Los datos se recolectaron entre enero y julio de 2018 con la aplicacióndel instrumento de evaluación de la calidad de vida llamado WHOQOL-bref. La distribuciónde las variables numéricas continuas se analizó con la prueba de Kolmogorov-Smirnov; lascategóricas se presentaron por medio de frecuencias absolutas y relativas (%).Resultados: el puntaje global de la calidad de vida fue 56,4 y los de los dominios resultaronmedianos, con un margen de50 a 60. Se verificó que los dominios con los puntajes más bajosfueron los dominios físico y de relaciones ambientales.Conclusión: las personas con lepra presentan una reducción en su calidad de vida. Pese a tenercura, es un problema de salud pública, que requiere atención para su control y eliminación

The Brazilian Registry of Adult Patient Undergoing Cardiovascular Surgery, the BYPASS Project: Results of the First 1,722 Patients

Objective: To report the early results of the BYPASS project - the Brazilian registrY of adult Patient undergoing cArdiovaScular Surgery - a national, observational, prospective, and longitudinal follow-up registry, aiming to chart a profile of patients undergoing cardiovascular surgery in Brazil, assessing the data harvested from the initial 1,722 patients. Methods: Data collection involved institutions throughout the whole country, comprising 17 centers in 4 regions: Southeast (8), Northeast (5), South (3), and Center-West (1). The study population consists of patients over 18 years of age, and the types of operations recorded were: coronary artery bypass graft (CABG), mitral valve, aortic valve (either conventional or transcatheter), surgical correction of atrial fibrillation, cardiac transplantation, mechanical circulatory support and congenital heart diseases in adults. Results: 83.1% of patients came from the public health system (SUS), 9.6% from the supplemental (private insurance) healthcare systemsand 7.3% from private (out-of-pocket) clinic. Male patients comprised 66%, 30% were diabetics, 46% had dyslipidemia, 28% previously sustained a myocardial infarction, and 9.4% underwent prior cardiovascular surgery. Patients underwent coronary artery bypass surgery were 54.1% and 31.5% to valve surgery, either isolated or combined. The overall postoperative mortality up to the 7th postoperative day was 4%for CABG was 2.6%, and for valve operations, 4.4%. Conclusion: This first report outlines the consecution of the Brazilian surgical cardiac database, intended to serve primarily as a tool for providing information for clinical improvement and patient safety and constitute a basis for production of research protocols.Univ Fed Sao Paulo UNIFESP EPM, Hosp Sao Paulo, Sao Paulo, SP, BrazilHosp Caridade Sao Vicente Paulo, Jundiai, SP, BrazilInst Med Integral Prof Fernando Figueira IMIP, Recife, PE, BrazilHosp Base FUNFARME & FAMERP, Sao Jose Do Rio Preto, SP, BrazilIMC, Sao Jose Do Rio Preto, SP, BrazilIrmandade Santa Casa Sao Paulo INCT HPV, Fac Ciencias Med Santa Casa Sao Paulo, Sao Paulo, SP, BrazilFundacao Univ Cardiol, Inst Cardiol Rio Grande do Sul, Porto Alegre, RS, BrazilInst Coracao Natal, Natal, RN, BrazilInst Cardiol Dist Fed, Brasilia, DF, BrazilUniv Fed Maranhao HU UFMA, Univ Hosp, Sao Luis, MA, BrazilHosp Evangelico, Cachoeiro De Itapemirim, ES, BrazilHosp Coracao Sergipe, Aracaju, SE, BrazilHosp Nossa Senhora Salete, Inst Cirurgia Cardiovasc ICCV, Cascavel, PR, BrazilHosp Wilson Rosado, Mossoro, RN, BrazilHosp Bosque Saude, Sao Paulo, SP, BrazilHosp Univ Santa Maria, Santa Maria, RS, BrazilHosp Coracao HCor, Sao Paulo, SP, BrazilHosp Coracao IP HCor, Ins Pesquisa, Sao Paulo, SP, BrazilInst Coracao InCor, Sao Paulo, SP, BrazilUniv Fed Sao Paulo UNIFESP EPM, Hosp Sao Paulo, Sao Paulo, SP, BrazilWeb of Scienc

Evaluation of the physical limitations, psychosocial aspects and quality of life of people affected by leprosy / Avaliação das limitações físicas, aspectos psicossociais e qualidade de vida de pessoas atingidas pela hanseníase

Objetivo: Avaliar os aspectos referentes as limitações físicas, psicossociais e qualidade de vida das pessoas atingidas pela hanseníase. Método: Estudo quantitativo, transversal. Foram aplicadas as escalas Screening Activity Limitation and Safety Awareness (SALSA), Participação Social e World Health Organization Quality of Life (WHOQOL-bref) com 31 sujeitos. Resultado: Evidenciou-se que a maioria dos participantes apresentava algum grau de restrição física e social. Correlacionando com o grau de incapacidade, destaca-se que os pacientes que apresentaram restrições, também possuíam grau II de incapacidade. Quanto à qualidade de vida, o domínio psicológico e o de relações sociais apresentaram as médias mais altas, enquanto o físico e o ambiental tiveram as mais baixas. Conclusão: Afirma-se a necessidade de priorização e intensificação das ações de prevenção de incapacidades da hanseníase.Descritores: Hanseníase, autocuidado, qualidade de vida

Coronary Artery Bypass Surgery in Brazil: Analysis of the National Reality Through the BYPASS Registry

Abstract Introduction: Coronary artery bypass grafting (CABG) is the most frequently performed heart surgery in Brazil. Recent international guidelines recommend that national societies establish a database on the practice and results of CABG. In anticipation of the recommendation, the BYPASS Registry was introduced in 2015. Objective: To analyze the profile, risk factors and outcomes of patients undergoing CABG in Brazil, as well as to examine the predominant surgical strategy, based on the data included in the BYPASS Registry. Methods: A cross-sectional study of 2292 patients undergoing CABG surgery and cataloged in the BYPASS Registry up to November 2018. Demographic data, clinical presentation, operative variables, and postoperative hospital outcomes were analyzed. Results: Patients referred to CABG in Brazil are predominantly male (71%), with prior myocardial infarction in 41.1% of cases, diabetes in 42.5%, and ejection fraction lower than 40% in 9.7%. The Heart Team indicated surgery in 32.9% of the cases. Most of the patients underwent cardiopulmonary bypass (87%), and cardioplegia was the strategy of myocardial protection chosen in 95.2% of the cases. The left internal thoracic artery was used as a graft in 91% of the cases; the right internal thoracic artery, in 5.6%; and the radial artery in 1.1%. The saphenous vein graft was used in 84.1% of the patients, being the only graft employed in 7.7% of the patients. The median number of coronary vessels treated was 3. Operative mortality was 2.8%, and the incidence of cerebrovascular accident was 1.2%. Conclusion: CABG data in Brazil provided by the BYPASS Registry analysis are representative of our national reality and practice. This database constitutes an important reference for indications and comparisons of therapeutic procedures, as well as to propose subsequent models to improve patient safety and the quality of surgical practice in the country