A critical reflexive model: Working with life stories in health promotion education

In this paper a critical reflexive model is described and applied to life stories of tertiary education students doing a masters in health promotion. At the heart of the process is the dialogical space where relational reflexivity is facilitated and around which the narrative story is developed. Examples from tertiary education are given to illustrate how working reflexively with life stories increases critical thinking and a sense of identity, belonging and agency. The approach is holistic in that it connects new knowledge to lived experience. It is based on a social constructionist worldview that uses a narrative lens which recognises that our knowledge is continuously constructed in context and in interaction with others. One way to understand ourselves and others is to understand our own and each other’s stories. The model which facilitates this process involves four iterative loops: deconstructing power in the collective; mapping values and identity; negotiating agency; and rendering accountable performance

The social construction of identity in HIV/AIDS home-based care volunteers in rural KwaZulu-Natal, South Africa

Home-based care volunteer (HBCV) identity and how it is shaped was the main focus of the study. Fifteen HBCVs were interviewed about their work and personal life stories and then interviewed reflectively using a narrative interviewing style. Specific attention was paid to contextual meta-narratives and social field narratives in understanding the women’s stories. Findings indicate that social field narratives of the women’s stories were dominated by negative aspects of gender, poverty and socio-political factors. These were seen to coincide with the ‘feminisation of responsibility’ in this context effectively coercing the women into agency which manifested as theirhome-based care work. Meta-narratives influencing the women’s lives were dominated by stories of communal motherhood, aspirations to service-oriented work and religious beliefs and commitment. The question of how it is possible for women who are seemingly constrained by oppressive narratives to voluntarily engage in community participation was answered in the women’s personal life stories about being compassionate, hopeful, helpful and ambitious and having initiative. These characteristicscollectively pointed to personal agency. Exploring connections between the different aspects of identity and context revealed that the women made sense of their community participation through their personal identities as strong and loving mothers. Connections between volunteer personal identity, agency and volunteer group identity were explored to make sense of the link between HBCV identity and volunteerism. The mother identity, encompassing personal agency (strength or power) and love (themeta-narrative of communal motherly love), was salient in influencing community participation of the group

The experience of HIV reactive patients in rural Malawi - Part I

Malawi has a population of 9 million people with AIDS the leading cause of death in the 20 - 40 age group. The HIV positive prevalence rate, estimated at 23% in urban areas and 8% in rural areas, is one of the highest in the world (AIDSEC, 1994:1). Evaluation of counselling practices showed poor results with counsellors feeling ineffective and inadequate. Patients are mostly tested on medical indication but patients who do not see the benefit of knowing their HIV status increasingly refuse testing. The counselling practise as it is known in the Western world is a foreign concept for patients living in rural Malawi. The high stigma of AIDS complicates support of the patients. The goal of the research study was to describe a model of counselling that would meet the needs of an AIDS patient in rural community in Malawi. A qualitative research design that was explorative, descriptive and contextually specific to rural Malawi was used for the study. In order to describe a counselling model it was important to understand the illness experience of HIV reactive patients. The patients are seen in group context congruent with the African culture and therefore the experience of the primary care giver of AIDS patients is explored as the other major factor in the phenomenon examined. One phase of the research is described in this article namely exploring and describing the experience of the HIV reactive patient in rural Malawi. Results show that patients are in an advanced stage of AIDS when they are diagnosed and complain of weakness and an inability to do work, including an inability to do their daily chores. This causes a feeling of desperateness that is worsened by the perception that support systems are inadequate. Support systems are mostly identified as parents, partners and siblings to assist mainly with the physical care and financial support. Despite the fact that the family is very important to patients there is a reluctance to acknowledge their HIV status. Patients fear being rejected once it is known that they have AIDS - not only because AIDS is a sexually transmitted disease, but also because it is perceived that financial and other support will be withheld if it is known that patients have AIDS and will therefore die and not be able to return the support provided. Patients feel they have no future once a diagnosis of AIDS has been made which results in refusal of testing, as they do not see the benefit of knowing their HIV status. Assessing the coping ability of the patient within the household as part of an overall assessment is one proposed strategy that could be taken. Secondly the patient is encouraged to take a more active role in the counselling process, which could be achieved by narration. The family should be incorporated into the counselling process as early as possible

Real men, sick wives and others; dramatic explorations of men and their potential as caregivers in the context of HIV/AIDS in rural KwaZulu Natal

Please help us populate SUNScholar with the post print version of this article. It can be e-mailed to: [email protected] En WysbegeerteSosiologie & Sosiale Antropologi

Youth participation in the fight against AIDS in South Africa: from policy to practice

Effective youth participation in social development and civic life can enhance young peoples' health and well-being. Yet many obstacles stand in the way of such involvement. Drawing on 105 interviews, 52 focus groups and fieldworker diaries, this paper reports on a study of a rural South African project which sought to promote effective youth participation in HIV/AIDS management. The paper highlights three major obstacles which might be tackled more explicitly in future projects: (i) reluctance by community adults to recognise the potential value of youth inputs, and an unwillingness to regard youth as equals in project structures; (ii) lack of support for meaningful youth participation by external health and welfare agencies involved in the project; and (iii) the failure of the project to provide meaningful incentives to encourage youth involvement. The paper highlights five psycho-social preconditions for participation in AIDS projects (knowledge, social spaces for critical thinking, a sense of ownership, confidence and appropriate bridging relationships). We believe this framework provides a useful and generalisable way of conceptualising the preconditions for effective 'participatory competence' in youth projects beyond the specialist HIV/AIDS arena

Frustrated potential, false promise or complicated possibilities?: empowerment and participation amongst female health volunteers in South Africa

We present a longitudinal case study of lay women's participation in a project seeking to facilitate home-based care of people dying of AIDS in a rural community in South Africa, drawing on four sets of interviews conducted with volunteers over a five-year period. We link participation in the project to three dimensions of women's agency: their knowledge and skills, their confidence; and their personal experiences of efficacy. We show that whilst the experience of participation enhanced each of these dimensions of volunteers’ agency at various stages of the project, the empowerment that did take place appeared to be limited to women's project-related roles, rather than generalising to other areas of their lives beyond the project. The project had limited impact on women's ability to negotiate condom use with husbands, to assert themselves in relation to male project leaders and to become more involved in wider community decision-making and leadership. We discuss three possible interpretations of our findings: (i) that greater empowerment might have occurred had the project run for a longer time period; (ii) that whilst such projects play a vital role in providing services, the more general ‘empowerment via participation’ agenda is a false promise in highly marginalised communities; or (iii) that whilst generalised positive impacts of such projects on volunteers are hard to track, such projects do open up glimpses of increased agency for many women. These might have positive but unpredictable results in ways that defy formulation in linear conceptualisations of social transformation and development, understood in terms of clearly observable and measurable inputs and outputs

Disrupting cycles of violence in Africa: unlocking complex dimensions of human security

AISA Policy Brief, no. 124, OctoberDisrupting the matrix of domination that feeds systemic inequality and poverty in violence ridden societies unlocks complex dimensions of human security. Self-reproducing cycles of chronic violence, driven by a multifaceted combination of structural and interpersonal factors, undermine any efforts to achieve such security. This policy brief discusses a range of negotiation processes that can mobilise communities to engage in social actions that supply in their own security and peace-making needs. The discussion generates crucial insights and knowledge that may inform and strengthen community-based 'whole-of-society' strategies for the prevention of violence and its gendered dynamics

Sources of Social Capital for Malawi People Living With HIV

With one of the highest rates of poverty and HIV in the world, Malawi faith-based organizations (FBOs), non-governmental organizations (NGOs), and community-based organizations (CBOs) are expected to provide tangible and emotional support to people living with HIV (PLWH). Using Lin’s social capital theoretical approach, we examine the perspective of PLWH regarding the adequacy of support responses. Forty-six rural Malawi HIV+ adults provided interviews that were recorded digitally, translated, and transcribed by Malawi research assistants. Atlas.ti was used to organize the data and to aid in the analytic process. Participants expressed disappointment in the lack of resources that could be accessed through the FBOs although their expectations may have been unrealistic. Outcomes from accessing and mobilizing the FBO network were negative in terms of stigmatization by FBO leaders and members, whereas outcomes related to CBOs and NGOs were generally positive in terms of empowerment through HIV information and attendance at support groups