137 research outputs found

    Repeated use of rich pictures to explore changes in subjective experiences over time of patients with advanced cancer

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    BACKGROUND: The combination of verbal and visual tools may help unravel the experiences of advanced cancer patients. However, most previous studies have focused on a specific symptom, at only one moment in time. We recently found that a specific visual tool, originating from systems thinking, that is, rich pictures (RPs), could provide a more comprehensive view of the experiences of patients with advanced cancer. AIMS: To examine whether the repeated use of RPs can make changes in subjective experiences of patients living with advanced cancer visible over time. METHODS AND RESULTS: We performed a prospective study with a generic qualitative approach that was mostly informed by the process of grounded theory. We invited patients to make an RP twice, at the start of the study, and again after 2 months. Both RP drawing sessions were directly followed by a semi‐structured interview. Patients with all types of solid tumors, above the age of 18, and with a diagnosis of advanced, incurable cancer, were eligible. Eighteen patients participated and 15 patients were able to draw an RP twice. In eight RP‐sets, considerable differences between the first and second RP were noticeable. Two patterns were distinguished: (1) a change (decline or improvement) in physical health (five patients), and/or (2) a change in the way patients related to cancer (three patients). CONCLUSION: RPs are a valuable qualitative research method that can be used to explore the experiences of patients with advanced cancer, not only at a single point in time but also over time

    Response shift after coronary revascularization

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    Purpose The aims of this study were to investigate (1) the extent to which response shift occurs among patients with coronary artery disease (CAD) after coronary revascularization, (2) whether the assessment of changes in health-related quality of life (HRQoL), controlled for response shift, yield more valid estimates of changes in HRQoL, as indicated by stronger associations with criterion measures of change, than without controlling for response shift, and (3) if occurrences of response shift are related to patient characteristics. Methods Patients with CAD completed the SF-36 and the Seattle Angina Questionnaire (SAQ7) at baseline and 3 months after coronary revascularization. Sociodemographic, clinical and psychosocial variables were measured with the patient version of the New York Heart Association-class, Subjective Significance Questionnaire, Reconstruction of Life Events Questionnaire (RE-LIFE), and HEXACO personality inventory. Oort's Structural Equation Modeling (SEM) approach was used to investigate response shift. Results 191 patient completed questionnaires at baseline and at 3 months after treatment. The SF-36 showed recalibration and reprioritization response shift and the SAQ7 reconceptualization response shift. Controlling for these response shift effects did not result in more valid estimates of change. One significant association was found between reprioritization response shift and complete integration of having CAD into their life story, as indicated by the RE-LIFE. Conclusion Results indicate response shift in HRQoL following coronary revascularization. While we did not find an impact of response shift on the estimates of change, the SEM approach provides a more comprehensive insight into the different types of change in HRQoL following coronary revascularization.Biological, physical and clinical aspects of cancer treatment with ionising radiatio

    An den Grenzen des Begreifens

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    Contains fulltext : 156190pub.pdf (publisher's version ) (Open Access)2 p

    Ervaring van contingentie en spirituele zorg

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    Contains fulltext : 119798pub.pdf (publisher's version ) (Open Access)Ervaringen van contingentie confronteren mensen met het feit dat alles ook anders had kunnen zijn. De principiële onzekerheid die uit deze ervaring voortkomt leidt tot een interpretatiecrisis. Mensen beschikken dan niet meer over de mogelijkheid een voorval als vanzelfsprekend in het eigen leven te plaatsen. Een ervaring van contingentie is in die zin de ervaring van een gebrek aan mogelijkheden om de situatie waarmee men wordt geconfronteerd conform de lijnen van het eigen levensverhaal te interpreteren. Om binnen de geestelijke zorg mensen te begeleiden om deze ervaringen van contingentie helderder in beeld te krijgen, is een schema ontwikkeld dat de Aspecten en Dimensies van Contingente Levensgebeurtenissen (ADCL) verkent. Het ADCL-schema helpt de vier verschillende aspecten (positief, negatief, actief en passief) en dimensies (situationeel, existentieel en spiritueel of religieus) van contingente levenservaringen te onderscheiden.12 p

    Forest Managers' Spiritual Concerns

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    Contains fulltext : 71826pub.pdf (publisher's version ) (Closed access)24 p
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