Profiles of engagement in online communities of citizen science participation

Citizen participation in online communities of scientific investigations has recently become more popular. Enhancing the engagement of citizens within these communities is a focus of attention for researchers and practitioners who want to amplify the impact on learning, science and society. This study investigates the relationship between engagement factors and behaviour patterns in an online community that requires high levels of citizen participation. While other studies explore engagement in communities where citizens contribute data, the current research investigates a community to support citizens in facilitating their own scientific investigations. Data were collected from log files and questionnaires, and multiple measures of engagement were examined: engagement metrics, roles, motivation, attitude, satisfaction and belonging to the community. The results allowed comparison of the engagement levels among different types of citizen participation communities and categorised members in engagement profiles, according to their behaviour patterns. Findings indicate a need for differing design approaches based on the type of citizen participation community and individual engagement profiles

Parent and Family Functioning in Pediatric Inflammatory Bowel Disease

Although the impact of pediatric inflammatory bowel disease (IBD) extends beyond the patient to their parents and families, the focus of previous literature has largely been on investigating the patient’s medical and psychosocial functioning, with less consideration of the family system. Having a comprehensive understanding of parent and family functioning within the context of pediatric IBD is important given the role parents and family members have in the successful management of the disease and caring of the child. The current review paper aggregates the empirical research regarding parent and family functioning, including comparisons to normative samples, other illness groups, and how functioning relates to child psychosocial and health outcomes. Extant literature on parents and families in pediatric IBD has largely focused on the variables of parenting stress, parent psychosocial functioning, parent quality of life, and family functioning. Summary findings elucidate the complex relationships between parents, families, and children affected by IBD and highlight the importance of assessing parent and family functioning within pediatric IBD. The current review also offers implications for clinical practice, notes the limitations of the present literature, and provides recommendations for future research