9 research outputs found
Chronic urticaria patients are interested in apps to monitor their disease activity and control: A UCARE CURICT analysis
Background: Information/communication technologies such as mobile phone applications (apps) would enable chronic urticaria (CU) patients to self-evaluate their disease activity and control. Yet, recently Antó et al (2021) reported a global paucity of such apps for patients with CU. In this analysis, we assessed patient interest in using apps to monitor CU disease activity and control using questions from the chronic urticaria information and communication technologies (CURICT) study. Methods: The methodology for CURICT has been reported. Briefly, a 23-item questionnaire was completed by 1841 CU patients from 17 UCAREs across 17 countries. Here, we analyzed patient responses to the CURICT questions on the use of apps for urticaria-related purposes. Results: As previously published, the majority of respondents had chronic spontaneous urticaria (CSU; 63%; 18% chronic inducible urticaria (CIndU) [CIndu]; 19% with both), were female (70%) and in urban areas (75%). Over half of patients were very/extremely interested in an app to monitor disease activity (51%) and control (53%), while only ∼1/10 were not. Patients with both urticaria types versus those with CSU only (odds ratio [OR], 1.36 [1.03–1.79]) and females versus males (OR [95% CI], 1.47 [1.17–1.85]) were more likely to be very to extremely interested in an app to assess disease control. Conclusions: Overall, half of the patients with CU were very to extremely interested in using an app to assess their disease activity and control. Development of well-designed apps, specific to disease types (CSU, CIndU, CSU + CIndU, etc), validated by experts across platforms would help improve the management and possibly outcomes of CU treatment while providing important patient information to be used in future research. © 2021 The Authors. Clinical and Translational Allergy published by John Wiley & Sons Ltd on behalf of European Academy of Allergy and Clinical Immunology
Caracterização etnopedológica de Planossolos utilizados em cerâmica artesanal no Agreste Paraibano Ethnopedological studies on solonetz and Planosols used in pottery craftwork in the Agreste region, State of Paraiba
Técnicas adaptadas da etnociência clássica foram utilizadas para descrever e avaliar os conhecimentos de um grupo de artesãos camponeses do Agreste Paraibano sobre alguns solos que eles usam como recurso cerâmico. Cinco perfis de solo foram descritos por agrônomos-pesquisadores (abordagem eticista) e por camponeses (abordagem emicista), em locais onde a população local extrai material para cerâmica. Amostras coletadas em ambas as abordagens foram usadas para caracterização morfológica e analítica desses solos. Os camponeses pesquisados foram capazes de distinguir, identificar e nomear diversos materiais de solo, arranjados em estratos ao longo dos perfis de solo, de modo comparável ao arranjo dos horizontes pedogenéticos. A visão, o tato e o paladar foram empregados pelos artesãos na avaliação da qualidade do solo para cerâmica. Quatro perfis descritos junto às fontes de material cerâmico foram classificados como Planossolo Nátrico e um como Planossolo Háplico. A realização de pesquisas etnopedológicas em diferentes contextos sociais e pedológicos pode contribuir para o avanço da ciência do solo, sendo também uma oportunidade para melhor compreender as formas camponesas de conhecimento e manejo de solos.<br>Classic ethnoscientific techniques were adapted to describe and analyze the knowledge of peasant potters about soils they use for making pottery in a rural village in the Agreste region, State of Paraiba, northeastern Brazil. Five soil profiles from pits where local people obtain pottery clay were formally described by researchers (etic approach) and by peasant artisans (emic approach). Samples collected during both the emic and etic approaches were used for the morphological and analytical soil characterization. The peasant potters were able to distinguish, identify, and name soil materials arranged in layers along the soil profiles, somehow comparable to the arrangement of the pedogenetic horizons. Vision, touch and taste are used by local potters to evaluate the quality of pottery clay. Among the soil profiles described near clay pits, four were classified as Haplic Solonetz, and one as Eutric Planosol, according to the FAO/UNESCO legend. Ethnopedological studies in different social and pedological environments could contribute to the advancement of soil science and are an opportunity for an improvement in the understanding and appreciation of soil knowledge and management by peasant potters
The usage, quality and relevance of information and communications technologies in patients with chronic urticaria: A UCARE study
Background: Chronic urticaria (CU) is characterized by itchy recurrent wheals, angioedema, or both for 6 weeks or longer. CU can greatly impact patients' physical and emotional quality of life. Patients with chronic conditions are increasingly seeking information from information and communications technologies (ICTs) to manage their health. The objective of this study was to assess the frequency of usage and preference of ICTs from the perspective of patients with CU. Methods: In this cross-sectional study, 1800 patients were recruited from primary healthcare centers, university hospitals or specialized clinics that form part of the UCARE (Urticaria Centers of Reference and Excellence) network throughout 16 countries. Patients were >12 years old and had physician-diagnosed chronic spontaneous urticaria (CSU) or chronic inducible urticaria (CIndU). Patients completed a 23-item questionnaire containing questions about ICT usage, including the type, frequency, preference, and quality, answers to which were recorded in a standardized database at each center. For analysis, ICTs were categorized into 3 groups as follows: one-to-one: SMS, WhatsApp, Skype, and email; one-to-many: YouTube, web browsers, and blogs or forums; many-to-many: Instagram, Twitter, Facebook, and LinkedIn. Results: Overall, 99.6% of CU patients had access to ICT platforms and 96.7% had internet access. Daily, 85.4% patients used one-to-one ICT platforms most often, followed by one-to-many ICTs (75.5%) and many-to-many ICTs (59.2%). The daily ICT usage was highest for web browsers (72.7%) and WhatsApp (70.0%). The general usage of ICT platforms increased in patients with higher levels of education. One-to-many was the preferred ICT category for obtaining general health information (78.3%) and for CU-related information (75.4%). A web browser (77.6%) was by far the most commonly used ICT to obtain general health information, followed by YouTube (25.8%) and Facebook (16.3%). Similarly, for CU-specific information, 3 out of 4 patients (74.6%) used a web browser, 20.9% used YouTube, and 13.6% used Facebook. One in 5 (21.6%) patients did not use any form of ICT for obtaining information on CU. The quality of the information obtained from one-to-many ICTs was rated much more often as very interesting and of good quality for general health information (53.5%) and CU-related information (51.5%) as compared to the other categories. Conclusions: Usage of ICTs for health and CU-specific information is extremely high in all countries analyzed, with web browsers being the preferred ICT platform. © 202
The usage, quality and relevance of information and communications technologies in patients with chronic urticaria: a UCARE study
Background: Chronic urticaria (CU) is characterized by itchy recurrent wheals, angioedema, or both for 6 weeks or longer. CU can greatly impact patients' physical and emotional quality of life. Patients with chronic conditions are increasingly seeking information from information and communications technologies (ICTs) to manage their health. The objective of this study was to assess the frequency of usage and preference of ICTs from the perspective of patients with CU. Methods: In this cross-sectional study, 1800 patients were recruited from primary healthcare centers, university hospitals or specialized clinics that form part of the UCARE (Urticaria Centers of Reference and Excellence) network throughout 16 countries. Patients were >12 years old and had physician-diagnosed chronic spontaneous urticaria (CSU) or chronic inducible urticaria (CIndU). Patients completed a 23-item questionnaire containing questions about ICT usage, including the type, frequency, preference, and quality, answers to which were recorded in a standardized database at each center. For analysis, ICTs were categorized into 3 groups as follows: one-to-one: SMS, WhatsApp, Skype, and email; one-to-many: YouTube, web browsers, and blogs or forums; many-to-many: Instagram, Twitter, Facebook, and LinkedIn. Results: Overall, 99.6% of CU patients had access to ICT platforms and 96.7% had internet access. Daily, 85.4% patients used one-to-one ICT platforms most often, followed by one-to-many ICTs (75.5%) and many-to-many ICTs (59.2%). The daily ICT usage was highest for web browsers (72.7%) and WhatsApp (70.0%). The general usage of ICT platforms increased in patients with higher levels of education. One-to-many was the preferred ICT category for obtaining general health information (78.3%) and for CU-related information (75.4%). A web browser (77.6%) was by far the most commonly used ICT to obtain general health information, followed by YouTube (25.8%) and Facebook (16.3%). Similarly, for CU-specific information, 3 out of 4 patients (74.6%) used a web browser, 20.9% used YouTube, and 13.6% used Facebook. One in 5 (21.6%) patients did not use any form of ICT for obtaining information on CU. The quality of the information obtained from one-to-many ICTs was rated much more often as very interesting and of good quality for general health information (53.5%) and CU-related information (51.5%) as compared to the other categories. Conclusions: Usage of ICTs for health and CU-specific information is extremely high in all countries analyzed, with web browsers being the preferred ICT platform
