11 research outputs found
Do privacy and security regulations need a status update? Perspectives from an intergenerational survey
<div><p>Background</p><p>The importance of health privacy protections in the era of the “Facebook Generation” has been called into question. The ease with which younger people share personal information about themselves has led to the assumption that they are less concerned than older generations about the privacy of their information, including health information. We explored whether survey respondents’ views toward health privacy suggest that efforts to strengthen privacy protections as health information is moved online are unnecessary.</p><p>Methods</p><p>Using Amazon’s Mechanical Turk (MTurk), which is well-known for recruitment for survey research, we distributed a 45-item survey to individuals in the U.S. to assess their perspectives toward privacy and security of online and health information, social media behaviors, use of health and fitness devices, and demographic information.</p><p>Results</p><p>1310 participants (mean age: 36 years, 50% female, 78% non-Hispanic white, 54% college graduates or higher) were categorized by generations: Millennials, Generation X, and Baby Boomers. In multivariate regression models, we found that generational cohort was an independent predictor of level of concern about privacy and security of both online and health information. Younger generations were significantly less likely to be concerned than older generations (all <i>P</i> < 0.05). Time spent online and social media use were <i>not</i> predictors of level of concern about privacy or security of online or health information (all <i>P</i> > 0.05).</p><p>Limitations</p><p>This study is limited by the non-representativeness of our sample.</p><p>Conclusions</p><p>Though Millennials reported lower levels of concern about privacy and security, this was not related to internet or social media behaviors, and majorities within all generations reported concern about both the privacy and security of their health information. Thus, there is no intergenerational imperative to relax privacy and security standards, and it would be advisable to take privacy and security of health information more seriously.</p></div
Principles of Anatomy and Physiology, 3rd Asia-Pacific Edition
Anatomy and Physiology is a complex subject spanning many health science disciplines. Instructors are faced with the challenge of making A&P relatable to students of all fields with relevant content for our region.Principles of Anatomy and Physiology, 3rd Asia-Pacific Edition is brought to you by a team of local authors who have set the bar in delivering highly local content and exploring local contemporary case studies that relate to students’ specialisations. Feedback from A&P lecturers has inspired the development of Tortora’s brand-new imported media library that easily integrates into your LMS. This engaging resource includes bite-size Lightboard Videos by local academics and interactive exercises. Academic integrity is a burning sectoral issue, which is why this edition brings you a new multimedia testbank, letting you set formative and summative assessments with various question types
Concern about privacy & security of general online vs. health information.
<p>Younger Millennials 18–27 years old, Older Millennials 28–35 years old, Generation X 36–51 years old, Baby Boomers 52–70 years old. Concern about privacy and security of information was measured on a 1–10 scale, anchored by 1 = Not at all concerned to 10 = Extremely concerned.</p
Privacy & security of general online information vs. health information.
<p>Concern about privacy and security of information was measured on a 1–10 scale. Percentages represent respondents who selected 6–10, indicating concern. Control of privacy of information was measured on a Likert scale with response options of No control, Not much control, A lot of control, and Complete control. Percentages reflect respondents who selected A lot to Complete control. Security of information was measured on a Likert scale with response options of Not at all secure, Not very secure, Somewhat secure, and Very secure. Percentages reflect respondents who selected Somewhat to Very secure. *Significant at P < 0.05.</p
Discordant results between conventional newborn screening and genomic sequencing in the BabySeq Project
Abstract Purpose Newborn screening (NBS) is performed to identify neonates at risk for actionable, severe, early-onset disorders, many of which are genetic. The BabySeq Project randomized neonates to receive conventional NBS or NBS plus exome sequencing (ES) capable of detecting sequence variants that may also diagnose monogenic disease or indicate genetic disease risk. We therefore evaluated how ES and conventional NBS results differ in this population. Methods We compared results of NBS (including hearing screens) and ES for 159 infants in the BabySeq Project. Infants were considered "NBS positive" if any abnormal result was found indicating disease risk and "ES positive" if ES identified a monogenic disease risk or a genetic diagnosis. Results Most infants (132/159, 84%) were NBS and ES negative. Only one infant was positive for the same disorder by both modalities. Nine infants were NBS positive/ES negative, though seven of these were subsequently determined to be false positives. Fifteen infants were ES positive/NBS negative, all of which represented risk of genetic conditions that are not included in NBS programs. No genetic explanation was identified for eight infants referred on the hearing screen. Conclusion These differences highlight the complementarity of information that may be gleaned from NBS and ES in the newborn period
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Defining the volume of consultations for musculoskeletal infection encountered by pediatric orthopaedic services in the United States.
OBJECTIVE:Adequate resources are required to rapidly diagnose and treat pediatric musculoskeletal infection (MSKI). The workload MSKI consults contribute to pediatric orthopaedic services is unknown as prior epidemiologic studies are variable and negative work-ups are not included in national discharge databases. The hypothesis was tested that MSKI consults constitute a substantial volume of total consultations for pediatric orthopaedic services across the United States. STUDY DESIGN:Eighteen institutions from the Children's ORthopaedic Trauma and Infection Consortium for Evidence-based Study (CORTICES) group retrospectively reviewed a minimum of 1 year of hospital data, reporting the total number of surgeons, total consultations, and MSKI-related consultations. Consultations were classified by the location of consultation (emergency department or inpatient). Culture positivity rate and pathogens were also reported. RESULTS:87,449 total orthopaedic consultations and 7,814 MSKI-related consultations performed by 229 pediatric orthopaedic surgeons were reviewed. There was an average of 13 orthopaedic surgeons per site each performing an average of 154 consultations per year. On average, 9% of consultations were MSKI related and 37% of these consults yielded positive cultures. Finally, a weak inverse monotonic relationship was noted between percent culture positivity and percent of total orthopedic consults for MSKI. CONCLUSION:At large, academic pediatric tertiary care centers, pediatric orthopaedic services consult on an average of ~3,000 'rule-out' MSKI cases annually. These patients account for nearly 1 in 10 orthopaedic consultations, of which 1 in 3 are culture positive. Considering that 2 in 3 consultations were culture negative, estimating resources required for pediatric orthopaedic consult services to work up and treat children based on culture positive administrative discharge data underestimates clinical need. Finally, ascertainment bias must be considered when comparing differences in culture rates from different institution's pediatric orthopaedics services, given the variability in when orthopaedic physicians become involved in a MSKI workup