17 research outputs found
Guidelines for Disclosing Genetic Information to Family Members: from Development to Use
[À l'origine dans / Was originally part of : CRDP - Droit, biotechnologie et rapport au milieu
Guidelines for Disclosing Genetic Information to Family Members: From Development to Use
The Nature of Devolution in Scotland and Northern Ireland: Key Issues of Responsibility and Control
Euroscreen 2: towards community policy on insurance, commercialization and public awareness.
Item does not contain fulltextThe project Euroscreen 2 has examined genetic screening and testing with particular reference to implications for insurance, commercialization through marketing of genetic tests direct to the public, and issues surrounding raising public awareness of these and other developments in genetics, including the practical experiment of a Gene Shop. This paper provides a snapshot of the three year project. The study group's work included monitoring developments in different European countries and exploring possibilities for regulation in insurance and commercialization together with public attitudes to regulation. The success or failure of different strategies is not independent of public awareness. Exploration of policy, however, also requires examination of fundamental concepts such as solidarity and geneticization
Euroscreen 2: Zu einer gemeinsamen Versicherungs- und Kommerzialisierungspolitik und zu einer Politik des öffentlichen Bewusstseins über Genetik
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Human genetic research: emerging trends in ethics.
Genetic research has moved from Mendelian genetics to sequence maps to the study of natural human genetic variation at the level of the genome. This past decade of discovery has been accompanied by a shift in emphasis towards the ethical principles of reciprocity, mutuality, solidarity, citizenry and universality