Incorporation of Multiple Sources into IT - and Data Protection Concepts: Lessons Learned from the FARKOR Project

The IT- and data protection concept of the FAmiliäres Risiko für das KOloRektale Karzinom (FARKOR) project will be presented. FARKOR is a risk adapted screening-project in Bavaria, Germany focusing on young adults with familial colorectal cancer (CRC). For each participant, data from different sources have to be integrated: Treatment records centrally administered by the resident doctors association (KVB), data from health insurance companies (HIC), and patient reported lifestyle data. Patient privacy rights must be observed. Record Linkage is performed by a central independent trust center. Data are decrypted, integrated and analyzed in a secure part of the scientific evaluation center with no connection to the internet (SECSP). The presented concept guarantees participants privacy through different identifiers, separation of responsibilities, data pseudonymization, public-private key encryption of medical data and encrypted data transfer

Intercultural Communication in Action: Creating an Online Course for SIT Graduate Institute

Intercultural Communication (ICC) in Action is a new course designed for the SIT International Education Low-Residency (IELR) degree program. ICC in Action is an online course, designed for expatriate students living abroad, as well as for sojourners who spend a significant amount of time in a culture other than their own. The course expands the current options for fulfilling the SIT ICC course requirement, offering the unique opportunity for these students to draw on their day-to-day experiences in exploring concepts of ICC. It encourages students to develop awareness and understanding of their cultural background, as well as of their host culture, and explore the interactions between the two. ICC in Action is based on theories of Experiential Learning and Andragogy, drawing heavily on the theories of Kolb and Knowles. The curriculum is designed to incorporate best practices in online learning and instruction, as well as curricular concepts shared by many other ICC courses at SIT. It is a modular curriculum, offering students an array of concepts and topics to explore in depth. Through a combination of independent assignments and peer feedback, students develop their understanding of the abstract and complex nature of intercultural communications, and apply it on a practical level in their daily lives

Data for the elaboration of the CIPROS checklist with items for a patient registry software system: Examples and explanations

The data presented relates to the publication “Enhancing Requirements Engineering for Patient Registry Software Systems with Evidence-based Components” (Lindoerfer and Mansmann, 2017) [1], which describes the strategy behind the development of the CIPROS checklist. This manuscript also compares CIPROS with general requirements specification templates, and standards. The data is shortly described in Section 2.4 and presented in Appendix A. The examples represent the material extracted from the literature used in qualitative analysis. The explanations summarize the example contents from which the CIPROS checklist was created. Patient registries are a crucial part of medical research. High quality registries use efficient information systems software selected from a wide variety of existing software solutions. An efficient selection process requires focused selection criteria. The evidence-based CIPROS checklist [2] accelerates this requirements engineering process. CIPROS was developed in a multistep procedure: (1) A systematic literature review provided an exhaustive collection of relevant publications (64 articles), (2) a catalogue of relevant criteria was derived by a qualitative content analysis, and (3) the checklist containing 72 items was composed which provides a minimal appraisal standard. The data presented per checklist item provide the relevant textual information (examples) and a first qualitative summary (explanation). The examples and explanations provide the background information on CIPROS. They elucidate how to implement the checklist items in other projects. The literature list and the selected texts serve as a reference for scientists and system developers