180 research outputs found
Cancer Related Fatigue and Quality of Life in Patients with Advanced Prostate Cancer Undergoing Chemotherapy
Cancer related fatigue (CRF) is a common and debilitating symptom that can influence quality of life (QoL) in cancer patients. The increase in survival times stresses for a better understanding of how CRF affects patientsâ QoL. This was a cross-sectional descriptive study with 148 randomly recruited prostate cancer patients aiming to explore CRF and its impact on QoL. Assessments included the Cancer Fatigue Scale, EORTC QLQ-C30, and EORTC QLQ-PR25. Additionally, 15 in-depth structured interviews were performed. Quantitative data were analyzed with simple and multiple regression analysis and independent samples -test. Qualitative data were analyzed with the use of thematic content analysis. The 66.9% of the patients experienced CRF with higher levels being recorded for the affective subscale. Statistically significant differences were found between the patients reporting CRF and lower levels of QoL (mean = 49.1) and those that did not report fatigue and had higher levels of QoL (mean = 72.1). The interviews emphasized CRFâs profound impact on the patientsâ lives that was reflected on the following themes: âdependency on others,â âloss of power over decision making,â and âdaily living disruption.â Cancer related fatigue is a significant problem for patients with advanced prostate cancer and one that affects their QoL in various ways.</p
Empowerment of women through an innovative e-mentoring community platform: implications and lessons learned
This article presents an overview of an e-mentoring community platform that intends to promote womenâs empowerment. Women face the so-called glass ceiling effect, the barrier that keeps them from rising to the upper rungs of the corporate ladder, regardless of their qualifications or achievements. We aim to eliminate the stereotypical profile of women as excluded from economic, political, and professional life and promote womenâs empowerment, equality, and social coherence. To this aim, we aspire to develop Womenpower, an innovative e-mentoring community platform that intends to link women mentors and mentees in the areas of academia, business, and healthcare. Given the nature of this endeavor, there is a need to approach the development of the e-mentoring platform as a horizontal process and democratize the design, allowing for different perspectives of stakeholders to be heard and determine the design decisions. This article delineates the approach adopted for democratizing the design process and maximizing intended usersâ involvement in the development process. Finally, we conclude with implications for researchers and practitioners in Community Informatics and recommendations for promoting the participation of women in the fields of academia, business, and healthcare
Empowerment of women through an innovative e-mentoring community platform: implications and lessons learned
This article presents an overview of an e-mentoring community platform that intends to promote womenâs empowerment. Women face the so-called glass ceiling effect, the barrier that keeps them from rising to the upper rungs of the corporate ladder, regardless of their qualifications or achievements. We aim to eliminate the stereotypical profile of women as excluded from economic, political, and professional life and promote womenâs empowerment, equality, and social coherence. To this aim, we aspire to develop Womenpower, an innovative e-mentoring community platform that intends to link women mentors and mentees in the areas of academia, business, and healthcare. Given the nature of this endeavor, there is a need to approach the development of the e-mentoring platform as a horizontal process and democratize the design, allowing for different perspectives of stakeholders to be heard and determine the design decisions. This article delineates the approach adopted for democratizing the design process and maximizing intended usersâ involvement in the development process. Finally, we conclude with implications for researchers and practitioners in Community Informatics and recommendations for promoting the participation of women in the fields of academia, business, and healthcare
Understanding and preventing femicide using a cultural and ecological approach
Femicide â the killing of a woman or girl, in particular by a
man (often an intimate partner), on account of her gender â is
not only a complex phenomenon but also a leading cause of
premature death among women globally (Corradi et al, 2016;
Vives-Cases et al, 2016). To effectively manage or prevent cases
of femicide â and other forms of violence against women â it
is therefore necessary to comprehend the sociocultural and
ecological parameters that may influence it (Vives-Cases et
al, 2016). While viewing femicide from a cultural perspective
increases its complexity, it is nevertheless essential to consider not
only how Western and non-Western cultures influence myriad
individual, organizational, communal and societal attitudes
regarding male violence against women, but also how these
attitudes can in turn determine public policies and the stateâs
actions in relation to such violence (Flood and Pease, 2009; Gill
et al, 2016; Vives-Cases et al, 2016). In taking such a cultural
and ecological perspective, this chapter seeks to explore and
understand femicide in European countries.peer-reviewe
Exploring the data on femicide across Europe
In recent years, the notion of femicide has expanded in social,
criminological and epidemiological research to grasp the basic
differences underpinning the killing of a female, as opposed to
a male, victim. While femicide research in Australia and the
US has been a consolidated trend in criminology and feminist
studies since the 1990s (Stout, 1992; Mouzos, 1999; Campbell
et al, 2003; Frye et al, 2005), its development in Europe has
been much more recent and represents the outcome, primarily,
of top-down social pressure. The combined effect of the recent
proceedings of the âFemicide across Europeâ COST network
(active in 30 European countries from 2013 to 2017), together
with awareness-raising by the media in many countries and the
Resolution adopted by the United Nations General Assembly
on 11 February 2014 (United Nations, 2014), inter alia, have
acted as catalysts for change, contributing significantly to
fostering femicide research in Europe. An extensive analysis of
the definition of femicide is presented in Chapter 2 of this book.peer-reviewe
Developing and Assessing the Effectiveness of a Nurse-Led Home-Based Educational Programme for Managing Breathlessness in Lung Cancer Patients. A Feasibility Study
Introduction:Breathlessness is the most common and refractory symptom in lung cancer patients. Even though various educational programmes have been developed, only a few were intended for implementation in the home setting for its management. Aim:Feasibility of a study for implementing a nurse-led educational programme for breathlessness management of lung cancer patients at home. Method:A randomized feasibility study was undertaken between February 2017 and October 2018. Patients were recruited through referral from oncologists from two oncology centers in Cyprus under certain inclusion and exclusion criteria. Patients were randomized in the intervention or control group via a computer programme, and their named family caregivers (f.c.) were allocated in the same group. Participants were not blinded to group assignment. The intervention consisted of a PowerPoint presentation and implementation of three non-pharmacological interventions. The control group received usual care. Patients were assessed for breathlessness, anxiety, and depression levels, whereas f.c. were assessed for anxiety, depression, and burden levels. F.c. also assessed patients' dyspnea level. The duration of the study process for both the intervention and control group was over a period of 4 weeks. Results:Twenty-four patients and their f.c. (n= 24) were allocated equally in the intervention and control group. Five patients withdrew, and the final sample entered analysis was 19 patients and 19 family caregivers. In the intervention groupn= 11 + 11, and in the control groupn= 8 + 8. In the intervention group patients' breathlessness and anxiety levels showed improvement and their f.c.s in the anxiety and burden levels. Major consideration was the sample size and the recruitment of the patients by the referring oncologists. Attrition was minor during the study process. No harm was recorded by the participants of the study. Conclusions:The study provided evidence of the feasibility of the implementation of the educational programme. For the future definitive study major consideration should be patients' recruitment method in order to achieve adequate sample size. Moreover, qualitative data should be collected in relation to the intervention and the involvement of f.c. The feasibility study was registered to the Cyprus Bioethics Committee with the registration number 2016/16. There was no funding of the study.</div
Empowering refugee families in transit: the development of a culturally competent and compassionate training and support package
Background: Refugee parents who fled conflicts suffered violence and traumas and face huge challenges in supporting the health and welfare of their children whilst in transit.
Aims: To describe the development of a culturally competent and compassionate Training and Support Package (TSP) for nurses, social and health care workers and volunteers, with a focus on parenting needs among unsettled refugees fleeing conflict.
Methods: The multi-method approach included: a scoping review covering parenting needs of refugees fleeing conflict zones; collection of stories from refugee parents, healthcare workers and volunteers via a mobile application; discussions between team members; a piloted and evaluated curriculum.
Results: High levels of family distress and deterioration of parental identity were identified. Informed by these results, the curriculum is articulated along twenty bite-sized learning units, covering four age stages of childhood as well as targeting adultsâ wellbeing. Pilot training was evaluated positively confirming feasibility and usefulness of TSP.
Conclusions: Unsettled refugee parents fleeing conflicts face psychosocial and practical difficulties negatively affecting their parenting skills. Care workforce should be trained in order to provide culturally competent and compassionate support to help these families. Open access digital platforms are promising as autodidactic and self-help tools amongst hard-to-reach populations
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