Letter to Pearl Von Allmen regarding the AALL Directory, November 13, 1973

A letter from Jessie Matthews to Pearl Von Allmen regarding the compilation of the 1974 AALL Directory

Retaining Gifted Individuals for the Sustainability of Rural Communities

Retaining Gifted Individuals for the Sustainability of Rural Communities examined the supports and barriers to young gifted adults’ choices regarding living in rural communities. The narrative methodology revealed the perceptions of remote rural community members through single, face-to-face interviews to understand the challenges and opportunities young gifted individuals encounter. Through community member interviews, participants echoed sentiments indicating supports, barriers, and the power of place play a significant role in gifted individuals’ desire to remain in their local community. The findings suggested through celebrating place, engagement in the local community, and encouragement to solve local problems, gifted individuals will engage in redefining and redesigning their local community, creating a place where they want to remain and invest in the community for the sustainability of the area. The findings illuminated the need for further research on gifted education within rural areas to enhance the sustainability and success of those areas

Birch Bay Village Lakes 2008 Final Report

The Institute for Watershed Studies was contracted by the Birch Bay Village Lakes Committee to conduct water testing at two sites in Kwann Lake and two sites in Thunderbird Lake (Figure 1, page 3). Water samples were collected in August, October and December 2007, and February, April and June 2008. Temperature and dissolved oxygen concentrations were measured in the field at the surface (0.3 m) and at 1 meter depth intervals using a YSI field meter. Both lakes are very shallow, so the deepest collection depth at any site was 3 meters

Birch Bay Village Lakes 2009 Final Report

The Institute for Watershed Studies was contracted by the Birch Bay Village Lakes Committee to continue water testing at two sites in Kwann Lake and two sites in Thunderbird Lake (Figure 1, page 4). The sampling effort was initiated in August 2007 and the results were summarized in the Birch Bay Village Lakes 2008 Final Report. The 2009 final report summarizes all results collected from August 2007 through August 2009

Judy Reservoir Monitoring Project 2010 Final Report

The purpose of this study was to identify and count the phytoplankton in water samples collected from Judy Reservoir, and measure other standard biological and chemical parameters. Water quality data and algae counts have been collected on a weekly basis since October 2006; annual data summaries were sent to the Skagit Public Utility District No. 1 in 2007 and 2008. (rev. Feb 18, 2010

Population vs Individual Prediction of Poor Health from Results of Adverse Childhood Experiences Screening

Importance: Adverse childhood experiences (ACEs) are well-established risk factors for health problems in a population. However, it is not known whether screening for ACEs can accurately identify individuals who develop later health problems. Objective: To test the predictive accuracy of ACE screening for later health problems. Design, Setting, and Participants: This study comprised 2 birth cohorts: the Environmental Risk (E-Risk) Longitudinal Twin Study observed 2232 participants born during the period from 1994 to 1995 until they were aged 18 years (2012-2014); the Dunedin Multidisciplinary Health and Development Study observed 1037 participants born during the period from 1972 to 1973 until they were aged 45 years (2017-2019). Statistical analysis was performed from May 28, 2018, to July 29, 2020. Exposures: ACEs were measured prospectively in childhood through repeated interviews and observations in both cohorts. ACEs were also measured retrospectively in the Dunedin cohort through interviews at 38 years. Main Outcomes and Measures: Health outcomes were assessed at 18 years in E-Risk and at 45 years in the Dunedin cohort. Mental health problems were assessed through clinical interviews using the Diagnostic Interview Schedule. Physical health problems were assessed through interviews, anthropometric measurements, and blood collection. Results: Of 2232 E-Risk participants, 2009 (1051 girls [52%]) were included in the analysis. Of 1037 Dunedin cohort participants, 918 (460 boys [50%]) were included in the analysis. In E-Risk, children with higher ACE scores had greater risk of later health problems (any mental health problem: relative risk, 1.14 [95% CI, 1.10-1.18] per each additional ACE; any physical health problem: relative risk, 1.09 [95% CI, 1.07-1.12] per each additional ACE). ACE scores were associated with health problems independent of other information typically available to clinicians (ie, sex, socioeconomic disadvantage, and history of health problems). However, ACE scores had poor accuracy in predicting an individual's risk of later health problems (any mental health problem: area under the receiver operating characteristic curve, 0.58 [95% CI, 0.56-0.61]; any physical health problem: area under the receiver operating characteristic curve, 0.60 [95% CI, 0.58-0.63]; chance prediction: area under the receiver operating characteristic curve, 0.50). Findings were consistent in the Dunedin cohort using both prospective and retrospective ACE measures. Conclusions and Relevance: This study suggests that, although ACE scores can forecast mean group differences in health, they have poor accuracy in predicting an individual's risk of later health problems. Therefore, targeting interventions based on ACE screening is likely to be ineffective in preventing poor health outcomes

Exploring the nature of perceived treatment burden: a study to compare treatment burden measures in adults with cystic fibrosis

Background: Despite the importance of reducing treatment burden for people with cystic fibrosis (CF), it has not been fully understood as a concept. This study aims to quantify the treatment burden perceived by CF adults and explore the association between different validated treatment burden measures. Methods: This is a cross-sectional observational study of CF adults attending a single large UK adult center. Participants completed an online survey that contained three different treatment burden scales; CF Questionnaire-Revised (CFQ-R) subscale, CF Quality of Life (CFQoL) subscale, and the generic multimorbidity treatment burden questionnaire (MTBQ). Results: Among 101 participants, the median reported treatment burden by the CFQ-R subscale was 55.5 (IQR 33.3 – 66.6), the CFQoL subscale was 66.6 (IQR 46.6 – 86.6), and the MTBQ reversed global score was 84.6 (IQR 73.1 – 92.3). No correlation was found between respondents’ demographic or clinical variables and treatment burden measured via any of the three measures. All treatment burden measures showed correlations against each other. More treatments were associated with high treatment burden as measured by the CFQ-R, CFQoL subscales, and the MTBQ. However, longer treatment time and more complex treatment plans were correlated with high treatment burden as measured by the CFQ-R and CFQoL subscales, but not with the MTBQ. Conclusions: Treatment burden is a substantial issue in CF. Currently, the only available way to evaluate it is with the CF-specific quality of life measure treatment burden subscales (CFQ-R and CFQoL); both indicated that treatment burden increases with more treatments, longer treatment time, and more complex treatments

Treatment preference amongst people with cystic fibrosis: the importance of reducing treatment burden

BACKGROUND: There is a growing consensus that the perspective of the patient should be considered in the evaluation of novel interventions. RESEARCH QUESTION: What treatment outcomes matter to people with cystic fibrosis (CF), and what trade-offs would they make to realise these outcomes? STUDY DESIGN AND METHODS: Adults attending a specialist CF centre were invited to complete an online discrete choice experiment (DCE). The DCE required participants to evaluate hypothetical CF treatment profiles, defined by impact on lung function, pulmonary exacerbations, abdominal symptoms, life expectancy, quality of life, inhaled medicines usage, and physiotherapy requirement. Choice data were analysed using multinomial logit and latent class models. RESULTS: 103 people with CF completed the survey (median age 35 years (range 18-76); 52% female; mean ppFEV1 69% (SD 22)). On average, an improvement in life expectancy by 10 years or more had the greatest impact on treatment preference, followed by a 15% increase in lung function. However, it was shown that people would trade substantial reductions in these key outcomes to reduce treatment time or burden. Preference profiles were not uniform across the sample: three distinct subgroups were identified, each placing markedly different importance on the relative importance of both life expectancy and lung function compared to other attributes. INTERPRETATION: The relative importance of treatment burden to people with CF, compared to life expectancy and lung function suggests it should be routinely captured in clinical trials as an important secondary outcome measure. When considering the patient perspective, it is important that decision makers recognise that the values of people with CF are not homogenous

Exploring the nature of perceived treatment burden: a study to compare treatment burden measures in adults with cystic fibrosis [version 1; peer review: 2 approved]

Background: Despite the importance of reducing treatment burden for people with cystic fibrosis (CF), it has not been fully understood as a concept. This study aims to quantify the treatment burden perceived by CF adults and explore the association between different validated treatment burden measures. Methods: This is a cross-sectional observational study of CF adults attending a single large UK adult center. Participants completed an online survey that contained three different treatment burden scales; CF Questionnaire-Revised (CFQ-R) subscale, CF Quality of Life (CFQoL) subscale, and the generic multimorbidity treatment burden questionnaire (MTBQ). Results: Among 101 participants, the median reported treatment burden by the CFQ-R subscale was 55.5 (IQR 33.3 – 66.6), the CFQoL subscale was 66.6 (IQR 46.6 – 86.6), and the MTBQ reversed global score was 84.6 (IQR 73.1 – 92.3). No correlation was found between respondents’ demographic or clinical variables and treatment burden measured via any of the three measures. All treatment burden measures showed correlations against each other. More treatments were associated with high treatment burden as measured by the CFQ-R, CFQoL subscales, and the MTBQ. However, longer treatment time and more complex treatment plans were correlated with high treatment burden as measured by the CFQ-R and CFQoL subscales, but not with the MTBQ. Conclusions: Treatment burden is a substantial issue in CF. Currently, the only available way to evaluate it is with the CF-specific quality of life measure treatment burden subscales (CFQ-R and CFQoL); both indicated that treatment burden increases with more treatments, longer treatment time, and more complex treatments

Gemini Near Infrared Spectrograph -- Distant Quasar Survey: Augmented Spectroscopic Catalog and a Prescription for Correcting UV-Based Quasar Redshifts

Quasars at $z~{\gtrsim}~1$ most often have redshifts measured from rest-frame ultraviolet emission lines. One of the most common such lines, C IV ${\lambda}1549$, shows blueshifts up to ${\approx}~5000~\rm{km~s^{-1}}$, and in rare cases even higher. This blueshifting results in highly uncertain redshifts when compared to redshift determinations from rest-frame optical emission lines, e.g., from the narrow [O III] ${\lambda}5007$ feature. We present spectroscopic measurements for 260 sources at $1.55~{\lesssim}~z~{\lesssim}~3.50$ having $-28.0~{\lesssim}~M_i~{\lesssim}~-30.0$ mag from the Gemini Near Infrared Spectrograph - Distant Quasar Survey (GNIRS-DQS) catalog, augmenting the previous iteration which contained 226 of the 260 sources whose measurements are improved upon in this work. We obtain reliable systemic redshifts based on [O III] ${\lambda}5007$ for a subset of 121 sources which we use to calibrate prescriptions for correcting UV-based redshifts. These prescriptions are based on a regression analysis involving C IV full-width-at-half-maximum intensity and equivalent width, along with the UV continuum luminosity at a rest-frame wavelength of 1350 A. Applying these corrections can improve the accuracy and the precision in the C IV-based redshift by up to ${\sim}~850~\rm{km~s^{-1}}$ and ${\sim}~150~\rm{km~s^{-1}}$, respectively, which correspond to ${\sim}~8.5$ Mpc and ${\sim}~1.5$ Mpc in comoving distance at $z~=~2.5$. Our prescriptions also improve the accuracy of the best available multi-feature redshift determination algorithm by ${\sim}~100~\rm{km~s^{-1}}$, indicating that the spectroscopic properties of the C IV emission line can provide robust redshift estimates for high-redshift quasars. We discuss the prospects of our prescriptions for cosmological and quasar studies utilizing upcoming large spectroscopic surveys.Comment: 20 pages (AASTeX 6.3.1), 8 figures, accepted for publication in Ap