51 research outputs found

    Spanish translation and adaptation of a family quality-of-life survey for families of people with neurodegenerative disease

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    Background: One of the main objectives of NEUROQUALYFAM Project is to assess the quality of life and the needs of support of families of people with a neurodegerative disease (ND) in Spain. For this purpose, The Family Quality of Life Survey‐Adapted for Main Caregivers of Persons with Dementia (FQoLS; DiZazzo‐Miller & Samuel, 2011) has been translated and adapted to the Spanish context. Method: The “International Test Commission guidelines for test translation and adaptation” were taken into account, thus considering the following phases: 1) Two initial and independent translations of FQoLS; 2) Review and synthesis of the translations; 3) Focus groups with families of people with a ND, as well as with health, social and third sector professionals, in order to assess the relevance, clarity and appropriateness of items; 4) Synthesis and agreement by a committee of experts; 5) Backtranslation and comparison with the original items; 6) Pilot study of the consensual version with a sample of families with an individual with a ND. Result: After the translation and adaptation process, the comprehension and appropriateness of items and response options in the preliminary version were verified. The application of the final version of the instrument and the assessment of its psychometric properties will be conducted in a subsequent phase of the study. Conclusion: Preliminary results indicate that the instrument has been successfully translated and adapted to the Spanish context. Moreover, this questionnaire seems to be a useful tool for assessing the quality of life of families of patients with ND as well as for designing intervention strategies aimed to optimize support resources and improve families’ health and wellbeing outcomes. Reference: DiZazzo‐Miller, R., Samuel, P.S. (2011). Family Quality of Life Survey: Main Caregivers of Persons with Dementia. Detroit, MI, USA: Wayne State University

    Factors predicting mental health in youth during the first COVID-19 lockdown in Spain

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    [EN]Background: The first COVID-19 lockdown decreed in Spain by the government resulted in a significant disruption in the daily lives of youth that may have affected their mental health. The aim of this study was to identify factors that influenced youth mental health during this period. Methods: Between March and May 2020, a sample of 1205 youths (age range 18–24 years) from across Spain completed a questionnaire that assessed sociodemographic, mental health, loneliness, coping with humour and healthy habits. Data were analysed using Structural Equation Modelling. Results: The proposed model showed good fit values, and significant variables explained 37% of mental health. Loneliness, coping humour, healthy and unhealthy habits, and gender significantly predicted youth mental health. Conclusions: The consequences of the pandemic and confinement derived from COVID-19 seemed to be especially severe for youth, increasing their mental health vulnerability. It is recommended that evaluating the long-term effects of confinement on this population, the mental health needs they may have and the support resources that would help meet them in situations of isolation, paying special attention to females

    Family quality of life in neurodegenerative diseases: exploring needs and supports in the cross-border area Spain-Portugal

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    [EN]Neurodegenerative diseases often have an impact on both patients and their family caregivers. Given that families are an important support resource for people with neurodegenerative diseases, it is important to ensure their own quality of life. This symposium aim to present the NEUROQUALYFAM project funded by Cross Border Cooperation Programme Spain–Portugal 2014–2020 (POCTEP). The main objective of this project is to improve the quality of life of family caregivers who care people with neurodegenerative disease at home through the assessment of their needs and support resources, and the subsequent design and optimization of high-quality resources and services that are family-centered

    Adult Attachment, Conflict Resolution Style and Relationship Quality among Spanish Young-adult Couples

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    The evidence of the interrelationships between adult attachment, conflict resolution style and relationship quality in couple relationships shows some inconsistencies and it is mostly based on English-speaking adult samples, as well as on individuals’ rather than on both couple members’ reports. Therefore, the aim was to examine the associations between adult attachment, conflict resolution style and relationship quality from a dyadic approach. A sample of 405 heterosexual young couples completed online the brief version of the Experiences in Close Relationships-Revised Questionnaire, the respondent version of the Conflict Resolution Styles Inventory, and a 4-item measure of relationship quality. Avoidance attachment showed a stronger negative correlation than anxiety with relationship quality. Withdrawal and conflict engagement styles were more highly correlated with avoidance and anxiety, respectively. At a dyadic level, relationship quality was negatively predicted by actor avoidance attachment and positively predicted by partner relationship quality. No actor or partner effects of conflict resolution style on relationship quality were observed. Overall, partners with higher attachment anxiety and avoidance reported more dysfunctional conflict resolution styles and less satisfaction with the relationship

    Domains and dimensions of Family Quality of Life among families with a member with neurodegenerative diseases

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    [EN]Background Family quality of life (FQoL) is a recent construct to be applied in neurodegenerative diseases (NDs). In this context, there is interest in advancing in the measurement of the FQOL as a first step to determine the supports that families need to perceive quality of life. The aim of this study was to test the validity of the Family Quality of Life Survey- Dementia (DiZazzo-Miller & Samuel, 2011) in order to assess FQoL among family members of individuals with NDs who live in the cross-border area of Spain-Portugal. Method Three hundred family members of people with NDs completed the FQoLS-NDs Survey (Badia et al., 2020). The mean age was 62.4 years (SD = 13.34). Most were males (70%), married (79.7%), not working (64.7%), with low income (66.1%), and had elementary/high studies (73.1%). The majority were the spouse/partner (40.9%) or son/daughter (51.7%) of the care-recipient and played the role of primary caregiver (93.3%). Sixty percent of care-recipients were females (M= 79.3 years; SD= 11.7). Sixty two percent presented dementia, 30.4 % Parkinson´s disease, and 7.6% multiple sclerosis. Construct validity was tested by correlation analysis to examine associations between domain level outcomes (i.e., health, financial well-being, family relationships, support from others, support from services, influence of values, careers, leisure and recreation, and community integration) and global FQoL. Likewise, t-tests were used to compare the outcome measures (attainment and satisfaction) within each of the nine family domains. Result Global attainment and satisfaction with FQOL-NDs was found to be significantly correlated with composite attainment and satisfaction from nine domains (r=.489, p<.001 and r=.536, p<.001, respectively). Attainment and satisfaction were positively correlated within the nine domains (ranging from r=.83 to r=-.69, p<.001). There was a significant difference between domain-level attainment and satisfaction ratings [t(299)=12.28, p<.001, h2=.34]: the mean level of satisfaction experienced (M=3.71, SD=0.49) was significantly higher than that of attainment (M=3.52, SD=0.49). Conclusion This study demonstrates that FQOL-NDs has good validity properties and it is a useful tool to establish FQOL profiles for family caregivers of people with NDs
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