The Cost of Pediatric Unrelated HSCT

Instituto de Oncologia Pediátrica, São Paulo, BrazilBone Marrow Transplantation, Instituto de Oncologia Pediátrica - GRAACC - Unifesp, São Paulo, BrazilInstituto de Oncologia Pediátrica - GRAACC - UnifespAssociação da Medula Óssea - AMEOCell Processing Laboratory, Instituto de Oncologia Pediátrica, São Paulo, BrazilTransplante de Medula Óssea, Instituto de Oncologia Pediatrica, São Paulo, SP, BrazilInstituto de ONcologia Pediátrica - GRAACC – UnifespBone Marrow Transplantation, Instituto de Oncologia Pediátrica - GRAACC - Unifesp, São Paulo, BrazilInstituto de Oncologia Pediátrica - GRAACC - UnifespTransplante de Medula Óssea, Instituto de Oncologia Pediatrica, São Paulo, SP, BrazilInstituto de Oncologia Pediátrica - GRAACC – UnifespWeb of Scienc

Dataset search: a survey

Generating value from data requires the ability to find, access and make sense of datasets. There are many efforts underway to encourage data sharing and reuse, from scientific publishers asking authors to submit data alongside manuscripts to data marketplaces, open data portals and data communities. Google recently beta-released a search service for datasets, which allows users to discover data stored in various online repositories via keyword queries. These developments foreshadow an emerging research field around dataset search or retrieval that broadly encompasses frameworks, methods and tools that help match a user data need against a collection of datasets. Here, we survey the state of the art of research and commercial systems and discuss what makes dataset search a field in its own right, with unique challenges and open questions. We look at approaches and implementations from related areas dataset search is drawing upon, including information retrieval, databases, entity-centric and tabular search in order to identify possible paths to tackle these questions as well as immediate next steps that will take the field forward

Dataset search: a survey

Generating value from data requires the ability to find, access and make sense of datasets. There are many efforts underway to encourage data sharing and reuse, from scientific publishers asking authors to submit data alongside manuscripts to data marketplaces, open data portals and data communities. Google recently beta-released a search service for datasets, which allows users to discover data stored in various online repositories via keyword queries. These developments foreshadow an emerging research field around dataset search or retrieval that broadly encompasses frameworks, methods and tools that help match a user data need against a collection of datasets. Here, we survey the state of the art of research and commercial systems and discuss what makes dataset search a field in its own right, with unique challenges and open questions. We look at approaches and implementations from related areas dataset search is drawing upon, including information retrieval, databases, entity-centric and tabular search in order to identify possible paths to tackle these questions as well as immediate next steps that will take the field forward

Enfermero Clinico Especialista: un modelo de practica avanzada de enfermeria en oncologia pediatrica en el Brasil

The objective of this paper is to report the experience of implementing a model of advanced nursing practice that integrates a clinical nurse specialist into the nursing staff. The authors describe the concept of this model and the process of its implementation in a pediatric oncology reference institution in the city of São Paulo, Brazil. The main result achieved in evaluating the clinical nurse specialist was strengthening of the role of the nurse as a reference professional for the articulation of the various demands of care in assisting the child, adolescent or young adult with cancer and his/her family. The satisfaction of these users due to the closer relationship between the patient, family and clinical nurse in all stages of the caring process also stands out.El objetivo de este artículo es relatar la experiencia de implantación de un modelo de práctica avanzada en enfermería, por medio de la incorporación del enfermero clínico especialista en la composición del cuadro de personal de enfermería. Las autoras presentan el concepto de este modelo y describen el proceso de implantación en una institución de referencia para el cuidado de niños y adolescentes con cáncer de la ciudad de São Paulo, Brasil. Las enfermeras clínicas especialistas evalúan que el principal resultado de la adopción de este modelo fue el fortalecimiento del rol del enfermero como profesional de referencia para la articulación de las diferentes demandas de cuidado para la atención a los niños, adolescentes y adultos jóvenes con cáncer y su familia. También se destaca la satisfacción de los usuarios por el estrechamiento de la relación paciente, familia y enfermero clínico, en todas las etapas del proceso de cuidar.O objetivo deste artigo é relatar a experiência de implantação do modelo de prática avançada de enfermagem por meio da incorporação do enfermeiro clínico especialista na composição do quadro de enfermagem. As autoras apresentam o conceito desse modelo e descrevem seu processo de implantação em uma instituição de referência no cuidado à criança e ao adolescente com câncer da cidade de São Paulo, Brasil. Na avaliação das enfermeiras clínicas especialistas, o principal resultado obtido com a adoção do modelo refere-se ao fortalecimento do papel do enfermeiro como profissional de referência para a articulação das diferentes demandas de cuidado à criança, ao adolescente e ao adulto jovem com câncer e sua família. Também destacam a satisfação dos usuários com o estreitamento da relação paciente, família e enfermeira clínica, em todas as etapas do processo de cuidar.Instituto de Oncologia Pediatrica Universidade Federal de São Paulo (UNIFESP) Escola Paulista de EnfermagemUniversidade Federal de São Paulo (UNIFESP) Instituto de Oncologia PediatricaUniversidade Federal de São Paulo (UNIFESP) Escola Paulista de EnfermagemInstituto de Oncologia Pediatrica UNIFESP, Escola Paulista de Enfermagem (EPE)UNIFESP, Instituto de Oncologia PediatricaUNIFESP, EPESciEL