73 research outputs found

    Care-tographies:Finding Failure in Navigational Settings

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    Effect of Expansion and Tumor Challenge on Chemokine Receptor Expression in Cord Blood-Derived CAR-NK Cells

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    https://openworks.mdanderson.org/sumexp23/1055/thumbnail.jp

    Playful mapping in the digital age:The Playful Mapping Collective

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    From Mah-Jong, to the introduction of Prussian war-games, through to the emergence of location-based play: maps and play share a long and diverse history. This monograph shows how mapping and playing unfold in the digital age, when the relations between these apparently separate tropes are increasingly woven together. Fluid networks of interaction have encouraged a proliferation of hybrid forms of mapping and playing and a rich plethora of contemporary case-studies, ranging from fieldwork, golf, activism and automotive navigation, to pervasive and desktop-based games evidences this trend. Examining these cases shows how mapping and playing can form productive synergies, but also encourages new ways of being, knowing and shaping our everyday lives. The chapters in this book explore how play can be more than just an object or practice, and instead focus on its potential as a method for understanding maps and spatiality. They show how playing and mapping can be liberating, dangerous, subversive and performative

    "Girls are like Glass": Situated Knowledges of Syrian Refugee Women on Datafication and Transparency

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    This chapter focuses on Syrian refugee women as data subjects in the bureaucratic system of the Dutch immigration services (IND). In an increasingly datafied society many aspects of governance are becoming subject to some form of datafication. The same goes for the decision-making process of the immigration services. Recent research on these processes has mainly focussed on data practices by the European Union in order to protect "Fortress Europe" or use by Syrian refugees themselves of social media and telephone. Media and social research on immigration practices has mainly focussed on inequality and the representation of refugees, in society, in policy-making and in the process of integration. This chapter combines a top-down perspective (data system) with a bottom-up perspective (data subjects) on the IND’s data system by integrating an analysis of data and information about Syrian refugee women present in the IND system with the experiences of the women that provided the information. The result is a moving as well as very informative collection of responses, experiences and insights of five Syrian women refugee women who are in, or have been through the IND’s decision-making process and who speak back to the system, producing alternative knowledge and representations to the dominant and mainstream stories of migration and integration in the Netherlands

    Feasibility study for supporting medication adherence for adults with cystic fibrosis: mixed-methods process evaluation

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    Objectives: To undertake a process evaluation of an adherence support intervention for people with cystic fibrosis (PWCF), to assess its feasibility and acceptability. Setting: Two UK cystic fibrosis (CF) units. Participants: Fourteen adult PWCF; three professionals delivering adherence support (‘interventionists’); five multi-disciplinary CF team members. Interventions: Nebuliser with data recording and transfer capability, linked to a software platform, and strategies to support adherence to nebulised treatments facilitated by interventionists over 5 months (± 1 month). Primary and secondary measures: Feasibility and acceptability of the intervention, assessed through semistructured interviews, questionnaires, fidelity assessments and click analytics. Results: Interventionists were complimentary about the intervention and training. Key barriers to intervention feasibility and acceptability were identified. Interventionists had difficulty finding clinic space and time in normal working hours to conduct review visits. As a result, fewer than expected intervention visits were conducted and interviews indicated this may explain low adherence in some intervention arm participants. Adherence levels appeared to be >100% for some patients, due to inaccurate prescription data, particularly in patients with complex treatment regimens. Flatlines in adherence data at the start of the study were linked to device connectivity problems. Content and delivery quality fidelity were 100% and 60%–92%, respectively, indicating that interventionists needed to focus more on intervention ‘active ingredients’ during sessions. Conclusions: The process evaluation led to 14 key changes to intervention procedures to overcome barriers to intervention success. With the identified changes, it is feasible and acceptable to support medication adherence with this intervention. Trial registration number: ISRCTN13076797; Results
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