A recurring rollercoaster ride: A qualitative study of the emotional experiences of parents of children with juvenile idiopathic arthritis

Background: Despite the wealth of clinical research carried out in children with juvenile idiopathic arthritis (JIA), little is known about the emotional experiences of their parents. This article describes the predominant emotional experiences reported by parents of children with JIA in two Canadian cities. Methods: Research participants included 15 experienced parents and 8 novice parents (\u3c6 months since children\u27s JIA diagnosis). Their children were 2 to 16 years old with various JIA categories. A qualitative dataset including audio recordings and verbatim transcripts of three focus groups, and written reports of 59 reciprocal interviews (parents interviewing each other) were examined by a multidisciplinary research team following a four-step qualitative analytical process. Results: Parents of children with JIA experienced recurrent mixed negative and positive emotions that varied over time. Between disease onset and diagnosis, mounting anxiety, fear and confusion were the predominant emotions. Shortly after diagnosis there were shock, disbelief, and fear, with a sense of having being blindsided by the disease. At times of disease quiescence there was hope and gratitude, but also fatigue and frustration with ongoing treatment and fear of flares. During periods of increasing or ongoing symptoms there was admiration and sympathy for the courageous way children coped with JIA, as well as sorrow and frustration for ongoing pain and limitations. There were at times, frustration and indignation with peers and teachers unable to understand the child\u27s fluctuations in physical activity and schoolwork. Throughout the disease, parents felt an underlying anxiety and powerlessness. Conclusions: Parents of children with JIA described complex emotional journeys akin to the recurring ups and downs of rollercoaster rides, instead of ordered emotional phases ending in resolution. This has implications for healthcare providers who need to be aware of the complexity of these emotional journeys to support parents more effectively, thereby helping improve patient outcomes

Elaboración y comercialización de muebles a base de Bambú a Barcelona, España.

El proyecto consistió en diseñar un plan de elaboración y comercialización de muebles de bambú hacia el mercado de la ciudad de Barcelona, España, con dos diseños a exportar; muebles armados y plegables. En este proyecto se demuestra el procedimiento de la elaboración de los muebles a exportar y el proceso del curado del bambú para que este sea de calidad, así como los beneficios que ofrece esta planta. Se proyectó una estimación de ingresos a 3 años en base a la inflación de México, en el cual se observó que el producto es rentable. La empresa “Arte y Diseño en Bambú” S. A DE C.V. tiene el compromiso de seguir innovando muebles de bambú y seguir siendo una empresa líder en el mercado nacional e internacional para la venta de muebles calidad

La influencia del inglés en textos literarios de la frontera México-Estadounidense

1 archivo PDF (10 páginas

"We are trans women" : on-street sex work and transgender politics in Mexico City

This dissertation is a feminist ethnography about on-street sex work and transgender politics in contemporary Mexico. It focuses on the socioeconomic and symbolic tensions existing between trans activists and trans vendors, mostly of sexual services, in Mexico City. It is based on ethnographic research consisting of participant-observation, formal interviews, informal conversations, and travel companionships with low-income female-gendered transpeople and self-identified trans activists in places of work, homes, social gatherings, and activist events about sexual diversity. The fieldwork for this study was conducted between 2010 and 2011, with shorter research periods spanning 2009 to 2014. The research also draws on bill proposals and official stenographic transcripts of socio-legal discussions held in Mexico City’s Legislative Assembly between 2001 and 2013. This study shows that, while not all transpeople are sex workers, a sizeable number of low-income trans women work as sexual labourers on the streets of Mexico City. Trans women have gained increasing visibility in on-street sex trade areas. Impoverished transpeople suffer the symbolic and material expressions of a generalized disrespect and disregard affecting on-street sex workers and low-income female-gendered transpeople. A sexual labour framework is thus critical to understand the ways in which social class and informal on-street vending shape the circumstances, livelihoods, and aspirations of low-income trans women. Their daily realities are shaped but not subsumed or exhausted by gender expressions and subjectivities or sex–gender systems alone. A class and labour lens, in addition to a gender lens, is necessary to shed light on the often-overlooked dimensions of socioeconomic standing and employment background that frame the lives of trans activists and trans sex workers. This project applies an intersecting critical trans and sexual labour analysis to understand the socioeconomic concerns and livelihoods of female-gendered transpeople. It contributes to the ethnographies of Mexico by underscoring regional and class diversity in the experiences and circumstances facing Mexicans. Lastly, this work helps refine feminist anthropology by demonstrating the utility of classic concepts to understand shifting intersecting realities and, more broadly, by refusing to conflate trans and sex work issues in Mexico with those found in other contexts.Arts, Faculty ofAnthropology, Department ofGraduat

Young oung Women and Feminism: Indifference or Commitment?

In this article we analyze the relationship between feminism and young women in Mexico. Our central purpose consists of analyzing whether there are young feminist women and, if so, what their participation and role in the Mexican feminist and women’s movements are. We argue that while feminism has undoubtedly impacted young women’s lives, only a small number of them self-identifies as feminists. This situation is disquieting; however, by participating either in local political movements or in the academia, some young women do commit themselves with feminisms, and thus, strengthen and/or generate autonomous and independent projects that allow them to express their points of view, among other means, by creating networks

A recurring rollercoaster ride: a qualitative study of the emotional experiences of parents of children with juvenile idiopathic arthritis

Background: Despite the wealth of clinical research carried out in children with juvenile idiopathic arthritis (JIA), little is known about the emotional experiences of their parents. This article describes the predominant emotional experiences reported by parents of children with JIA in two Canadian cities. Methods Research participants included 15 experienced parents and 8 novice parents (<6 months since children’s JIA diagnosis). Their children were 2 to 16 years old with various JIA categories. A qualitative dataset including audio recordings and verbatim transcripts of three focus groups, and written reports of 59 reciprocal interviews (parents interviewing each other) were examined by a multidisciplinary research team following a four-step qualitative analytical process. Results Parents of children with JIA experienced recurrent mixed negative and positive emotions that varied over time. Between disease onset and diagnosis, mounting anxiety, fear and confusion were the predominant emotions. Shortly after diagnosis there were shock, disbelief, and fear, with a sense of having being blindsided by the disease. At times of disease quiescence there was hope and gratitude, but also fatigue and frustration with ongoing treatment and fear of flares. During periods of increasing or ongoing symptoms there was admiration and sympathy for the courageous way children coped with JIA, as well as sorrow and frustration for ongoing pain and limitations. There were at times, frustration and indignation with peers and teachers unable to understand the child’s fluctuations in physical activity and schoolwork. Throughout the disease, parents felt an underlying anxiety and powerlessness. Conclusions Parents of children with JIA described complex emotional journeys akin to the recurring ups and downs of rollercoaster rides, instead of ordered emotional phases ending in resolution. This has implications for healthcare providers who need to be aware of the complexity of these emotional journeys to support parents more effectively, thereby helping improve patient outcomes.Arts, Faculty ofMedicine, Faculty ofNon UBCAnthropology, Department ofPediatrics, Department ofReviewedFacult