Increased risk of impaired treatment satisfaction among girls/women and young people with suboptimal HbA1c: Results of a nationwide type 1 diabetes study

Background!#!This study aims to analyze the patient-reported outcome (PRO) of treatment satisfaction in a sample of children, adolescents and young adults with long-duration type 1 diabetes and to determine potential risk factors for poor treatment satisfaction and the intraindividual changes over a 3-year period.!##!Methods!#!This study used data from two population-based questionnaire surveys conducted in 2015-2016 and 2018-2019. The participants were 11 to 27 years old and had a type 1 diabetes duration of 10 years or longer in 2015-2016 (n = 575). Factors that were potentially associated with poor treatment satisfaction (moderate, poor or very poor) compared to the reference group (very good or good treatment satisfaction) were analyzed by log binomial regression adjusted for sex and age group.!##!Results!#!In 2015-2016 (2018-2019), 26% (33%) of the respondents rated their diabetes treatment/consultation as 'very good', 53% (46%) as 'good', and 20% (21%) as 'poor'. Based on the 2018-2019 data, girls/women had an increased risk of poor treatment satisfaction (RR!##!Conclusions!#!Most study participants were satisfied with their diabetes treatment. However, we identified risk groups that would benefit from targeted interventions to improve this important PRO

Paratiisi : Opinnäytetyönä oma cd-levy

Opinnäytetyönä tehtiin Paratiisi-niminen CD-levy, joka sisältää perinteistä tanssimusiikkia. Levyllä on kolme soolo-kappaletta harmonikalla ja kolme kappaletta bändin kanssa soitettuna. Kappaleiden alkuperäinen tulkinta on pyritty säilyttämään mahdollisimman hyvin. CD:stä on tarkoitus painattaa lisää levyjä ja myydä niitä keikoilla käyntikorttei-na. Opinnäytetyöhön sisältyi kokonaisuuden suunnittelu, kappaleiden harjoittelua ja tuottajana toimimista. Opinnäytetyön raportissa on kerrottu lyhyesti Suomen iskelmämusiikin historiasta. Kirjallisessa osuudessa kerrotaan myös työn etenemisestä eli suunnittelemisesta, kappalevalinnoista, kappaleiden harjoittelemisesta, äänittämisestä ja levyn miksaamisesta. Lopuksi on päätäntäluku, jossa kerrotaan työn onnistumisesta ja siitä, mitä olisi voinut pro-duktion aikana tehdä toisin.The goal of the thesis was to make a CD-record called Paratiisi (Paradise). The CD included three solo accordion pieces and three pieces played with a band. The goal was to preserve as much of the original interpretation as pos-sible. There is an intention to print more records of the album and sell them at gigs as business cards. Thesis in-cluded planning, rehearsing pieces, and acting as a producer. The written part of the thesis includes a brief overview of the history of Finnish popular music. The working process is also included in the written part of the thesis which includes: the design, the song choices, practicing, recording and mixing. Finally there is a conclusion, a discussion about the success of the work and what could have been done differently

Mental health problems among adolescents with early-onset and long-duration type 1 diabetes and their association with quality of life: a population-based survey.

OBJECTIVE: To evaluate mental health problems and associations between mental health problems and health-related quality of life in adolescents with type 1 diabetes in comparison with the general population. METHOD: A total of 629 11- to 17-year-olds with early-onset and long-lasting type 1 diabetes and their parents completed comprehensive questionnaires. Mental health was assessed using the parent- and self-report versions of the Strengths and Difficulties Questionnaire (SDQ). The Revised Children's Quality of Life Questionnaire (KINDL-R) was used to measure quality of life. The comparison group (n = 6,813) was a representative sample from the German KiGGS study. RESULTS: The proportion of youths with mental health problems (defined as abnormal SDQ total difficulties score) was, based on self-reports, 4.4% in the patient group and 2.9% in the general population (adjusted OR = 1.61, p = 0.044); and based on proxy reports, 7.9% in the patient group and 7.2% in the general population (OR = 1.05, p = 0.788). Youths with type 1 diabetes and self-reported mental health problems scored worse in the KINDL-R subscales of physical well-being (adjusted average difference β = -16.74, p<0.001) and family (β = -11.09, p = 0.017), and in the KINDL-R total score (β = -8.09, p<0.001), than peers with self-reported mental health problems. The quality of life of diabetic adolescents and proxy-reported mental health problems did not differ from peers with proxy-reported mental health problems adjusted for confounders. CONCLUSIONS: Compared with the general population with mental health problems, the quality of life of adolescents with type 1 diabetes who report mental health problems is more severely impaired. This observation calls for early prevention and intervention as part of pediatric diabetes long-term care

QoL in patients with type 1 diabetes compared to KiGGS participants differentiated by proxy-reported mental health problems.

<p>QoL in patients with type 1 diabetes compared to KiGGS participants differentiated by proxy-reported mental health problems.</p

Self-reported QoL in patients with type 1 diabetes compared to KiGGS by self-reported mental health problems.

<p>* Defined as a SDQ score for self-reported total difficulties <20 and ≥20, respectively.</p>†<p>Two-sided t-test.</p>‡<p>Estimated average differences between the diabetes study and the KiGGS (reference group) adjusted for age group and sex (Model 2.1).</p>§<p>Estimated average differences between the diabetes study and the KiGGS (reference group) adjusted for age group, sex, socioeconomic status, immigration background, region of residence, family structure, weight status, and hospitalization during past twelve months (Model 2.2).</p

Information needs in people with diabetes mellitus: a systematic review

Abstract Background The purpose of this study was to identify and analyse currently available knowledge on information needs of people with diabetes mellitus, also considering possible differences between subgroups and associated factors. Methods Twelve databases including MEDLINE, EMBASE and the Cochrane Library were searched up until June 2015. Publications that addressed self-reported information needs of people with diabetes mellitus were included. Each study was assessed by using critical appraisal tools, e.g. from the UK National Institute for Health and Care Excellence. Extraction and content analysis were performed systematically. Results In total, 1993 publications were identified and 26 were finally included. Nine main categories of information needs were identified, including ‘treatment-process’, ‘course of disease’, ‘abnormalities of glucose metabolism’ and ‘diabetes through the life cycle’. Differences between patient subgroups, such as type of diabetes or age, were sparsely analysed. Some studies analysed associations between information needs and factors such as participation preferences or information seeking. They found, for example, that information needs on social support or life tasks were associated with information seeking in Internet forums. Conclusion Information needs in people with diabetes mellitus, appear to be high, yet poorly investigated. Research is needed regarding differences between diverse diabetes populations, including gender aspects or changes in information needs during the disease course. Systematic review registration The review protocol has been registered at Prospero (CRD42015029610)

Proportion of adolescents with abnormal SDQ scores in patients with type 1 diabetes compared to KiGGS participants.

<p>* Based on self-reports/proxy reports, abnormal was defined as a score for total difficulties ≥20/≥17, for emotional symptoms ≥7/≥5, for conduct problems ≥5/≥4, for hyperactivity-inattention ≥7/≥7, for peer problems ≥6/≥4, for prosocial behavior <5/<5, and for impact ≥2/≥2 <a href="http://www.plosone.org/article/info:doi/10.1371/journal.pone.0092473#pone.0092473-Goodman3" target="_blank">[25]</a>.</p>†<p>Chi-squared test.</p>‡<p>Diabetes study versus the reference group KiGGS adjusted for age group and sex (Model 1.1).</p>§<p>Diabetes study versus the reference group KiGGS adjusted for age group, sex, socioeconomic status, immigration background, region of residence, family structure, proxy-informant (except self-reports), weight status, and hospitalization during past 12 months (Model 1.2).</p

Self-reported QoL in patients with type 1 diabetes compared to KiGGS by proxy-reported mental health problems.

<p>* Defined as a SDQ score for proxy-reported total difficulties <17 and ≥17, respectively.</p>†<p>Two-sided t-test.</p>‡<p>Estimated average differences between the diabetes study and the KiGGS (reference group) adjusted for age group and sex (Model 2.1).</p>§<p>Estimated average differences between the diabetes study and the KiGGS (reference group) adjusted for age group, sex, socioeconomic status, immigration background, region of residence, family structure, weight status, and hospitalization during past twelve months (Model 2.2).</p

QoL in patients with type 1 diabetes compared to KiGGS participants differentiated by self-reported mental health problems.

<p>* Clinically important differences between the patient group and the reference group.</p