10 research outputs found

    La carta de Jerusalén: un nuevo paradigma en el cuidado de los niños y adolescentes alérgicos en las escuelas de Latinoamérica

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    De acuerdo con la Organización Mundial de la Salud, las enfermedades alérgicas ocupan el sexto lugar entre las enfermedades infantiles y representan un tercio de las enfermedades crónicas en los niños. En 1 de cada 5 niños, la enfermedad alérgica se manifiesta en la edad escolar

    Erratum to: Scaling up strategies of the chronic respiratory disease programme of the European Innovation Partnership on Active and Healthy Ageing (Action Plan B3: Area 5)

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    Strategies and checklist for designing and conducting palliative care research with family carers: EAPC international expert elicitation study

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    Background: Palliative care services seek to improve the wellbeing of family carers of people living with serious and life-limiting illness. To help achieve this goal, systematic reviews have recommended priority areas for family carer research and the need to improve the quality of study design. Policy makers have also advocated for enhanced family carer support. However, there are specific methodological considerations and challenges in designing and conducting carer research conducted during the course of the serious illness trajectory and in bereavement. Aim: To develop strategies to improve the design and conduct of research with family carers. Design: Expert elicitation study using an adapted version of the ‘Identify, Discuss, Estimate and Aggregate’ elicitation protocol, supplemented with strategies from peer-reviewed literature. Setting/participants: Nine members of the management committee of the European Association for Palliative Care’s Reference group on family carer research, comprising international senior research academics in family caregiving. Results: A compilation of recommended strategies and checklist was created to: (a) help researchers plan research involving family carers focussing on: preparation, conduct and dissemination and (b) assist ethics committees and funding bodies to evaluate proposals. Conclusions: The strategies and checklist for conducting research with family carers may enhance methodologically rigorous research. Consequently, researchers, practitioners and policy makers will not only gain a more comprehensive understanding of the unmet needs of family carers but also promote the development of empirically sound interventions

    Sleep disorders in Latin-American children with asthma and/or allergic rhinitis and normal controls

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    Background: Asthma and/or allergic rhinitis have been associated with sleep disorders. The aim of this study was to evaluate sleep disorders in Latin-American children (4-10 years) from nine countries, with persistent asthma (A) and/or allergic rhinitis (AR) and in normal controls (C). Methods: Parents from 454 C children and 700 A and/or AR children followed up in allergy reference clinics completed the Children's Sleep Habits Questionnaire (CSHQ) which is aretrospective one-week questionnaire composed of 33 questions composed of seven subscales (bedtime resistance, sleep duration, sleep anxiety, night wakings, parasomnias, sleep disordered breathing and daytime sleepiness). The total scale of CSHQ and the subscales were compared between groups C and A+AR, A (n = 285) vs. AR (n = 390), and between controlled A (CA, n=103) vs. partially controlled/uncontrolled A (UA, n=182). Results: The comparison between C and A+AR showed no significant differences in age (6.7 years vs. 7.0 years, respectively), mean Body Mass Index and total scale of CSHQ (53.3 vs. 63.2, respectively) and the subscales were significantly higher in the A+AR group. Comparison between groups A and AR, except for sleep anxiety, showed significantly higher values for CSHQ total scale (66.9 vs. 61.0, respectively) and subscales for group A. The UA group showed significantly higher values for total CSHQ scale and subscales in comparison to CA (71.1 vs. 59.4, respectively). Conclusions: Latin-American children with asthma and/or allergic rhinitis showed sleep disorders identified by the CSHQ when compared to normal controls. Despite being treated, asthma causes sleep impairment, especially when uncontrolled. (C) 2016 SEICAP. Published by Elsevier Espana, S.L.U. All rights reserved.Unipampa Fed Univ, Uruguaiana, Rio Grande Sul, BrazilUniv Fed Sao Paulo, Div Allergy & Clin Immunol, Sao Paulo, BrazilUniv Fed Parana, Dept Pediat, Curitiba, Parana, BrazilDr Avelino L Castelan Pediat Hosp, Chaco, ArgentinaHosp Univ Metropolitano, Barranquilla, ColombiaHosp Univ Gen Calixto Garcia, Havana, CubaCtr Asma & Alergia, Tegucigalpa, HondurasCtr Med San Angel, Xalapa, Veracruz, MexicoClin Alergia & Asma, Asuncion, ParaguayCtr Med Avanzada Dr Abel Gonzalez, Santo Domingo, Dominican RepHosp Pediat Pereira Rossell, Montevideo, UruguayClin Reg Este, Cordoba, ArgentinaCtr Nacl Biopreparados, Havana, CubaCtr Pesquisa Consultorios Med Familia, Havana, CubaHosp Univ Infantil, Santiago De Cuba, CubaHosp ISSSTE, Allergy Serv, Mexico City, Veracruz, MexicoUniv Nacl Este, Asuncion, ParaguayABC Fdn, Sch Med, Santo Andre, BrazilUniv Fed Sao Paulo, Div Allergy & Clin Immunol, Sao Paulo, BrazilWeb of Scienc
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