An Inhaler Tracking System Based on Acoustic Analysis:Hardware and Software

In treating asthma and chronic obstructive pulmonary disorder (COPD), acquisition of authentic and effective feedback from patients on regimen adherence is difficult. Face-to-face and oral reporting methods do not satisfy current intelligent medication best practices. This paper presents a system to track and analyze daily inhaler usage. A portable electronic device that attaches to the inhaler uses an accelerometer and capacitive sensors to detect users’ motion and an embedded digital microphone to capture sounds while the inhaler is in use. In terms of analysis, sound features are extracted, and breath phases are identified by employing a hidden Markov model with a Gaussian mixture model. A feature template is also constructed and used to search for and identify “canister pressed” events. The system provides objective feedback, quantifying asthma, and COPD patients’ adherence to medication regimens. Although interest in asthma adherence to medication regimens is growing, there is still a relative paucity of research and, indeed, compliance devices in this area; the tracking system can help doctors better understand the patient’s condition and choose an appropriated treatment plan. At the same time, patients can also improve their self-management by system feedback

“Body as a Machine”: How Adolescents With Sickle Cell Disease Construct Their Fatigue Experiences

Research exploring illness experiences of young people with sickle cell disease (SCD) has, to date, ignored fatigue, despite the distinctive anemic nature of SCD. To examine adolescents with SCD fatigue experiences, we conducted narrative and picture-elicitation interviews with 24 adolescents in Ghana. A grounded theory, “body as a machine,” was constructed from the narratives. Fatigue represented the most restrictive and disruptive aspect of growing up with SCD. Its meaning and significance laid in what it symbolized. Fatigue represented a socially undesirable feature that was stigmatizing, due to the expectations of high physicality in adolescence. Fatigue was therefore a major threat to “normalcy.” The social significance of the physical body and its capacities shaped the adolescents’ fatigue experiences. Managing fatigue to construct/maintain socially acceptable identities dominated the adolescents’ lives. Consequently, there is a need for a recognition of the significance of fatigue to adequately support young people growing up with SCD

The development and evaluation of alternative communication strategies to facilitate interactions with Somali refugees in primary care: a preliminary study

The work reported in this paper forms part of a larger project to develop and evaluate alternative forms of communication to facilitate cross-cultural consultations in primary care. As a case study and proof-of-concept, work was conducted with Somali refugees who tend to experience significant communication difficulties in primary care consultations. The alternative communication methods developed in this study originate from the field of Augmentative and Alternative Communication (AAC). These methods may include non-verbal communication or aided communication using a mix of pictographic symbols, bilingual text and digitised (recorded) or synthetic speech. These can be delivered on a range of paper-based or computer-based devices. A paper-based and computer-based method was developed to assess whether a group of literate and illiterate Somalis were able to answer a set of questions using these tools. The purpose of this preliminary study was to assess whether either of these communication methods were suitable for further evaluation in primary care consultations. Twenty Somalis were presented with three communication tools and were asked a set of general questions in Somali which they had to answer using each tool: (1) a paper-based communication book containing symbols and bilingual text labels; (2) a laptop PC with mouse pad containing the same symbols, text labels and augmented with digitised Somali speech; (3) a tablet PC w ith touch screen containing the same software and digitised Somali speech. These two computer-based delivery platforms were compared for ease of use among a participant group who are likely to have little computing experience. Each task was timed and scored for level of correctness; feedback was gained from Somalis and experimenters' observations were noted. Participants clearly found the computerised devices with Somali speech output easier to use and more acceptable than the simpler paper-based device