Emotional support for lone mothers following diagnosis of additional needs in their child

Original article can be found at: http://www.informaworld.com/smpp/title~content=t713665951~db=all Copyright Informa. DOI: 10.1080/09503150903063994 [Full text of this article is not available in the UHRA]From a feminist perspective this article explores emotional support for lone mothers following diagnosis of additional needs in their child; this is in terms of previous and contemporary emotional support from informal and formal sources. Although a small sample, the pilot study findings illustrate that respondents received no formal, organised emotional support from social care and health professionals and have a continuous struggle to obtain services. None of them have received a carer's assessment or have a designated key worker, and all had to seek information relating to their child's additional needs and services themselves. The surviving fathers abrogate all responsibility for their children and all members of the paternal families are no source of support whatsoever. Valuable emotional support is provided by some members of the respondents' families and not from others. A number of friends terminated friendships following diagnosis, whilst others provide invaluable support. All respondents desired organised, formal, emotional support but had a preference for this to be provided by individuals who have personal experience of their situation, such as via trained volunteer befrienders, who also have children with additional needs.Peer reviewe

Ensembl Genomes 2018: an integrated omics infrastructure for non-vertebrate species

Ensembl Genomes (http://www.ensemblgenomes.org) is an integrating resource for genome-scale data from non-vertebrate species, complementing the resources for vertebrate genomics developed in the Ensembl project (http://www.ensembl.org). Together, the two resources provide a consistent set of programmatic and interactive interfaces to a rich range of data including genome sequence, gene models, transcript sequence, genetic variation, and comparative analysis. This paper provides an update to the previous publications about the resource, with a focus on recent developments and expansions. These include the incorporation of almost 20 000 additional genome sequences and over 35 000 tracks of RNA-Seq data, which have been aligned to genomic sequence and made available for visualization. Other advances since 2015 include the release of the database in Resource Description Framework (RDF) format, a large increase in community-derived curation, a new high-performance protein sequence search, additional cross-references, improved annotation of non-protein-coding genes, and the launch of pre-release and archival sites. Collectively, these changes are part of a continuing response to the increasing quantity of publicly-available genome-scale data, and the consequent need to archive, integrate, annotate and disseminate these using automated, scalable methods