15 research outputs found
Pflegende Angehörige : eine wichtige Ressource bei der Versorgung und Betreuung von pflegebedĂŒrftigen Menschen
Effects of interprofessional education for medical and nursing students: enablers, barriers and expectations for optimizing future interprofessional collaboration â a qualitative study
Abstract Background To ensure high quality patient care an effective interprofessional collaboration between healthcare professionals is required. Interprofessional education (IPE) has a positive impact on team work in daily health care practice. Nevertheless, there are various challenges for sustainable implementation of IPE. To identify enablers and barriers of IPE for medical and nursing students as well as to specify impacts of IPE for both professions, the âCooperative academical regional evidence-based Nursing Study in Mecklenburg-Western Pomeraniaâ (Care-N Study M-V) was conducted. The aim is to explore, how IPE has to be designed and implemented in medical and nursing training programs to optimize studentsâ impact for IPC. Methods A qualitative study was conducted using the Delphi method and included 25 experts. Experts were selected by following inclusion criteria: (a) ability to answer every research question, one question particularly competent, (b) interdisciplinarity, (c) sustainability and (d) status. They were purposely sampled. Recruitment was based on existing collaborations and a web based search. Results The experts find more enablers than barriers for IPE between medical and nursing students. Four primary arguments for IPE were mentioned: (1) development and promotion of interprofessional thinking and acting, (2) acquirement of shared knowledge, (3) promotion of beneficial information and knowledge exchange, and (4) promotion of mutual understanding. Major barriers of IPE are the coordination and harmonization of the curricula of the two professions. With respect to the effects of IPE for IPC, experts mentioned possible improvements on (a) patient level and (b) professional level. Experts expect an improved patient-centered care based on better mutual understanding and coordinated cooperation in interprofessional health care teams. To sustainably implement IPE for medical and nursing students, IPE needs endorsement by both, medical and nursing faculties. Conclusion In conclusion, IPE promotes interprofessional cooperation between the medical and the nursing profession. Skills in interprofessional communication and roles understanding will be primary preconditions to improve collaborative patient-centered care. The impact of IPE for patients and caregivers as well as for both professions now needs to be more specifically analysed in prospective intervention studies
Offene Versorgungsbedarfe pflegender Angehöriger von Menschen mit Demenz - PrimÀrÀrztliche Versorgung /Unmet needs of family dementia caregivers of persons with dementia - Primary medical care
Hintergrund
Aktuelle Studien zeigen, dass die Pflege von Menschen mit Demenz (MmD) mit erhöhten Belastungen und negativen Gesundheitsfolgen fĂŒr pflegende Angehörige assoziiert ist. Um adĂ€quate UnterstĂŒtzungsangebote fĂŒr pflegende Angehörige anbieten zu können, ist die Kenntnis und Identifizierung offener Versorgungsbedarfe der pflegenden Angehörigen in der hausĂ€rztlichen und fachĂ€rztlichen Grundversorgung notwendig.
Ziele der Arbeit
Ziel des Artikels ist es, eine Ăbersicht ĂŒber offene Versorgungsbedarfe pflegender Angehöriger von MmD sowie ĂŒber geeignete Assessments fĂŒr FachĂ€rzte in der Allgemeinmedizin, Neurologie, Psychiatrie, Psychotherapie sowie Psychosomatik zu geben.
Material und Methoden
Die Ăbersicht basiert auf bisherigen Reviews zu Versorgungsbedarfen pflegender Angehöriger von MmD sowie Ergebnissen der hausarztbasierten, clusterrandomisierten kontrollierten Interventionsstudie DelpHi-MV (Demenz: lebensweltorientierte und personenzentrierte Hilfen in Mecklenburg-Vorpommern; Reg.-Nr.: NCT01401582).
Ergebnisse
Der Artikel gibt eine Ăbersicht ĂŒber Versorgungsbedarfe pflegender Angehöriger von MmD, insbesondere in den Bereichen der sozialen Integration, psychischen Gesundheit, körperlichen Gesundheit sowie in sozialrechtlichen und finanziellen Fragen sowie ĂŒber verfĂŒgbare valide Messinstrumente.
Diskussion
Der Artikel illustriert die Bedeutsamkeit offener Versorgungsbedarfe pflegender Angehöriger von MmD und Möglichkeiten zu ihrer Identifizierung in der hausÀrztlichen und fachÀrztlichen Grundversorgung. Inwieweit derartige Identifizierungsmöglichkeiten systematisch in die Regelversorgung eingebettet und finanziert werden können, ist bislang noch offen
Supporting family dementia caregivers: testing the efficacy of dementia care management on multifaceted caregiversâ burden
Objectives: Current research suggests that dementia care management (DCM) can decrease burden and associated health impairments of caregivers. The objective of this secondary analysis is to investigate the impact of DCM on multifaceted caregiversâ burden dimensions by differentiating between objective and subjective burden.Methods: A sample of n = 317 dyads of caregivers and community-dwelling people with dementia (PwD) participated in a general practitioner-based, cluster-randomized intervention trial (Identifier:NCT01401582) with two arms and comprehensive data assessment at baseline and 12-month follow-up. Data provided by the caregiver included an inventory with 88 items in 20 different dimensions. Results: Caregivers in the intervention âDCMâ group showed decreased caregiver burden, especially in caregiversâ objective burden due to caring (i.e. emotional support), caregiversâ subjective burden due to behavior change (i.e. cognition, aggression and resistance, depression, late symptoms) and caregiversâ subjective burden due to perceived conflicts between needs and responsibilities to care (i.e. financial losses) compared to caregivers in the control âcare as usualâ group, which showed significant increased caregiver burden after 12 months.Conclusion: Our findings support evidence for the effectiveness of DCM to lower family dementia caregivers' burden in multifaceted dimensions
Effectiveness of a digitally supported care management programme to reduce unmet needs of family caregivers of people with dementia: study protocol for a cluster randomised controlled trial (GAIN)
Abstract Background Up to two-thirds of dementia care is provided by family caregivers who often experience high burden, little support and adverse health outcomes. Enabling and supporting family caregivers to provide care at home prevents early institutionalisation of the person with dementia and alleviates the economic burden of dementia in the long term. General practitioners (GPs), as the first point of contact, have a key role in identifying and managing burden and care needs of family caregivers. However, in routine care, this opportunity is often limited by time constraints and even if caregiver needs are recognised, detailed information about regionally available support and advice on healthcare services is often lacking. Methods This is a cluster randomised, controlled trial investigating the clinical use and cost-effectiveness of a digitally supported care management programme for caregivers of people with dementia (PwD). Five hundred family caregivers will be randomised at GP offices, specialist practices and memory clinics, with about n=250 participants per arm. Participants are eligible if they are the primary family caregiver of a PwD, are at least 18 years of age and provide informed consent. Participants in the intervention group will receive an individualised care management plan, which will be carried out by qualified study nurses in collaboration with the treating GP. All participants will receive a baseline assessment and a 6-months follow-up assessment. Participants in the wait-list control group will receive usual care. Starting at the 6 monthsâ follow-up, the former controls will also receive an individualised management plan. Primary outcomes are the number of unmet needs (incl. the Camberwell Assessment of Need for the Elderly, CANE) and health-related quality of life (EQ-5D-5L) at 6 months. Secondary outcomes include caregiver burden (Zarit Burden Interview, ZBI), social support (Lubben Social Network Scale, LSNS), the use of medical and non-medical services (Questionnaire for the Use of Medical and Non-Medical Services, FIMA) and resource utilisation (Resource Utilisation in Dementia, RUD). The primary analysis will be based on intention-to-treat. Between- and within-group analyses and a cost-effectiveness analysis will be conducted to estimate the effect of the tablet PC-based care management programme. This trial is funded by the German Federal Joint Committee (G-BA) Innovation Fund. Discussion The findings of this trial will be useful in informing and improving current healthcare system structures and processes to support family dementia caregivers within routine care practices. Trial registration ClinicalTrials.gov NCT04037501 . Registered on 30 July 2019
Correction to: Effectiveness of a digitally supported care management programme to reduce unmet needs of family caregivers of people with dementia : study protocol for a cluster randomised controlled trial (GAIN)
Following the publication of the original article [1], we were notified that the affiliations for some of the authors needed amendment. The original article has been corrected.
Background: Up to two-thirds of dementia care is provided by family caregivers who often experience high burden, little support and adverse health outcomes. Enabling and supporting family caregivers to provide care at home prevents early institutionalisation of the person with dementia and alleviates the economic burden of dementia in the long term. General practitioners (GPs), as the first point of contact, have a key role in identifying and managing burden and care needs of family caregivers. However, in routine care, this opportunity is often limited by time constraints and even if caregiver needs are recognised, detailed information about regionally available support and advice on healthcare services is often lacking. Methods: This is a cluster randomised, controlled trial investigating the clinical use and cost-effectiveness of a digitally supported care management programme for caregivers of people with dementia (PwD). Five hundred family caregivers will be randomised at GP offices, specialist practices and memory clinics, with about n=250 participants per arm. Participants are eligible if they are the primary family caregiver of a PwD, are at least 18 years of age and provide informed consent. Participants in the intervention group will receive an individualised care management plan, which will be carried out by qualified study nurses in collaboration with the treating GP. All participants will receive a baseline assessment and a 6-months follow-up assessment. Participants in the wait-list control group will receive usual care. Starting at the 6 monthsâ follow-up, the former controls will also receive an individualised management plan. Primary outcomes are the number of unmet needs (incl. the Camberwell Assessment of Need for the Elderly, CANE) and health-related quality of life (EQ-5D-5L) at 6 months. Secondary outcomes include caregiver burden (Zarit Burden Interview, ZBI), social support (Lubben Social Network Scale, LSNS), the use of medical and non-medical services (Questionnaire for the Use of Medical and Non-Medical Services, FIMA) and resource utilisation (Resource Utilisation in Dementia, RUD). The primary analysis will be based on intention-to-treat. Between- and within-group analyses and a cost-effectiveness analysis will be conducted to estimate the effect of the tablet PC-based care management programme. This trial is funded by the German Federal Joint Committee (G-BA) Innovation Fund. Discussion: The findings of this trial will be useful in informing and improving current healthcare system structures and processes to support family dementia caregivers within routine care practices. Trial registration: ClinicalTrials.gov NCT04037501. Registered on 30 July 2019
Attitudes towards advanced nursing roles in primary dementia care â Results of an observational study in Germany
Abstract
Aims
To demonstrate the attitudes of general practitioners (GPs), nurses, persons with dementia, and caregiver towards suitable tasks and qualification needs for and the acceptance and impact of advanced nursing roles in German dementia primary care.
Design
Observational study using a questionnaire survey with 225 GPs, 232 nurses, 211 persons with dementia, and 197 caregivers, conducted between December 2017âAugust 2018.
Methods
A questionnaire was generated that includes specific assessment, prescription, and monitoring tasks of advanced nursing roles in dementia primary care as well as qualification requirements for and the acceptance and the impact of advanced nursing roles. Data were analysed using descriptive statistics. Group differences were assessed using the Fisher's exact test.
Results
Advanced nursing roles were highly appreciated across all groups. Assessment and monitoring tasks were rated as highly suitable, and prescription authorities as moderately suitable. Nurses felt less confident in assessment and monitoring, but more confident in prescribing as practitioners expected. Patients and caregivers would appreciate a takeover of tasks by nurses; nurses and practitioners preferred a delegation. A dementiaâspecific qualification was rated as best suitable for advanced nursing roles, followed by âno specific qualificationâ if medical tasks that only can be carried out by practitioners were delegated and an academic degree if tasks were substituted. Advanced nursing roles were rated as beneficial, strengthening the confidence in nursing care and improving the cooperation between professionals and the treatment. Practitioners assumed that advanced nursing roles would improve job satisfaction of nurses, which was not confirmed by nurses.
Conclusion
There is an extended consensus towards the enlargement of advanced nursing roles, represented by high endorsement, acceptance, and willingness to reorganize tasks.
Impact
Results debunk the common notion that German practitioners would be reluctant towards advanced nursing roles and a takeover of current practitioner tasks, supporting the implementation of advanced nursing roles in Germany
Intersectoral care management for older people with cognitive impairment during and after hospital stays [intersec-CM] : study protocol for a process evaluation within a randomised controlled trial
Background: In the healthcare system in Germany, different institutions and actors play specific roles in the discharge and transition of patients from hospitals into primary care (SachverstÀndigenrat zur Begutachtung der Entwicklung im Gesundheitswesen, Wettbewerb an der Schnittstelle zwischen ambulanter und stationÀrer Gesundheitsversorgung, 2012). However, there are shortcomings in these intersectoral transitions. Especially in older people with cognitive impairment (PCI), discharge management often lacks coordination and cooperation between healthcare providers. This frequently results in higher rates of unscheduled readmission. The project intersec-CM is a randomised controlled trial (RCT) that aims to explore up to what extent an intersectoral care management (ICM) can improve this transition. This ICM is delivered by nurses with special training in care management. The objective of this paper is to describe a mixed-methods process evaluation of the intersectoral care management intervention and the factors that facilitate and inhibit its implementation. Methods: Different study designs for process evaluations from previous literature were collected and analysed according to the dimension implementation fidelity, satisfaction with the intervention, feasible transfer into routine care, optimum point of time, frequency and execution of the intervention, and context factors. Results: The actor-network theory was chosen as the theoretic framework for the process evaluation. Based on this theory, a mixed-methods design was developed to combine and integrate qualitative and quantitative evaluation methods. The qualitative part includes semi-structured interviews using topic guides (phase 1) and later in-depth interviews with narrative portions (phase 3), which will be analysed by using the qualitative content analysis according to Kuckartz. The quantitative survey (phase 2) is conducted with standardised questionnaires. Discussion: Challenges in data collection include the development of interview guidelines, which require different terminologies depending on every specific actor targeted in the intervention. Conducting the interviews, there is a risk of misunderstanding the older PCI by the interviewer and vice versa. However, the combination of qualitative and quantitative approaches as different techniques of process evaluation may help to capture, integrate and analyse data on different dimensions of the intervention. Conclusions: The results of our process evaluation may serve as an implementation guideline for intersectoral care management in the German healthcare system. Furthermore, the approach to evaluate the process of a complex intervention in health care for older PCI may serve as a stimulus to broaden the evidence base also of other complex intervention studies to improve health care for this vulnerable group. The study was ethically approved by the Ethics Committee of the Ernst-Moritz-Arndt University of Greifswald. The study has been registered at the U.S. National Library of Medicine. Trial registration: ClinicalTrials.gov NCT03359408. Registered on 2 December 2017. The approximate date when recruitment to the process evaluation of the study will be completed is 31 May 2021
Identifying Unmet Needs of Family Dementia Caregivers: Results of the Baseline Assessment of a Cluster-Randomized Controlled Intervention Trial
Background:
Caregivers providing informal care for people with dementia (PwD) often report unmet needs, burden, and health impairments. Optimal support for family dementia caregivers will likely benefit from better understanding and assessment of the prevalence and types of caregiversâ unmet needs and associated socio-demographic and clinical characteristics.
Objective:
The present study investigates 1) the number and types of caregiversâ unmet needs, 2) socio-demographic and clinical characteristics of both PwD and caregivers, and 3) caregiversâ burden and health-related outcomes that are related to caregiversâ unmet needs.
Methods:
The present analyses are based on cross-sectional data of n?=?226 dyads of caregivers and their community-dwelling PwD participating in a comprehensive standardized, computer-based caregiversâ needs assessment within a general practitioner (GP)-based, cluster-randomized intervention trial.
Results:
A total of n?=?505 unmet needs were identified for n?=?171 caregivers from the intervention group at baseline. Only 24.3% caregivers reported no unmet need (n?=?55), whereas 75.7% caregivers had at least one unmet need (n?=?171). Caregivers had on average 2.19 unmet needs (mean?=?2.19, SD?=?2.15). Specifically, 53.1% of caregivers had one up to three unmet needs (n?=?120), 18.6% (n?=?42) had three up to six unmet needs, and 4.0% (n?=?9) had more than six unmet needs.
Discussion:
Our results underline the importance of a comprehensive needs assessment for family dementia caregivers to develop and implement concepts that can provide family dementia caregivers with optimal support