Privacy and Accountability in Black-Box Medicine

Black-box medicine—the use of big data and sophisticated machine learning techniques for health-care applications—could be the future of personalized medicine. Black-box medicine promises to make it easier to diagnose rare diseases and conditions, identify the most promising treatments, and allocate scarce resources among different patients. But to succeed, it must overcome two separate, but related, problems: patient privacy and algorithmic accountability. Privacy is a problem because researchers need access to huge amounts of patient health information to generate useful medical predictions. And accountability is a problem because black-box algorithms must be verified by outsiders to ensure they are accurate and unbiased, but this means giving outsiders access to this health information. This article examines the tension between the twin goals of privacy and accountability and develops a framework for balancing that tension. It proposes three pillars for an effective system of privacy-preserving accountability: substantive limitations on the collection, use, and disclosure of patient information; independent gatekeepers regulating information sharing between those developing and verifying black-box algorithms; and information-security requirements to prevent unintentional disclosures of patient information. The article examines and draws on a similar debate in the field of clinical trials, where disclosing information from past trials can lead to new treatments but also threatens patient privacy

Viewpoint | Personal Data and the Internet of Things: It is time to care about digital provenance

The Internet of Things promises a connected environment reacting to and addressing our every need, but based on the assumption that all of our movements and words can be recorded and analysed to achieve this end. Ubiquitous surveillance is also a precondition for most dystopian societies, both real and fictional. How our personal data is processed and consumed in an ever more connected world must imperatively be made transparent, and more effective technical solutions than those currently on offer, to manage personal data must urgently be investigated.Comment: 3 pages, 0 figures, preprint for Communication of the AC

A fog based middleware for automated compliance with OECD privacy principles in Internet of Healthcare Things

Cloud-based healthcare service with the Internet of Healthcare Things (IoHT) is a model for healthcare delivery for urban areas and vulnerable population that utilizes the digital communications and the IoHT to provide flexible opportunities to transform all the health data into workable, personalized health insights, and help attain wellness outside the traditional hospital setting. This model of healthcare Web services acts like a living organism, taking advantage of the opportunities afforded by running in cloud infrastructure to connect patients and providers anywhere and anytime to improve the quality of care, with the IoHT, acting as a central nervous system for this model that measures patients' vital statistics, constantly logging their health data, and report any abnormalities to the relevant healthcare provider. However, it is crucial to preserve the privacy of patients while utilizing this model so as to maintain their satisfaction and trust in the offered services. With the increasing number of cases for privacy breaches of healthcare data, different countries and corporations have issued privacy laws and regulations to define the best practices for the protection of personal health information. The health insurance portability and accountability act and the privacy principles established by the Organization for Economic Cooperation and Development (OECD) are examples of such regulation frameworks. In this paper, we assert that utilizing the cloud-based healthcare services to generate accurate health insights are feasible, while preserving the privacy of the end-users' sensitive health information, which will be residing on a clear form only on his/her own personal gateway. To support this claim, the personal gateways at the end-users' side will act as intermediate nodes (called fog nodes) between the IoHT devices and the cloud-based healthcare services. In such solution, these fog nodes will host a holistic privacy middleware that executes a two-stage concealment process within a distributed data collection protocol that utilizes the hierarchical nature of the IoHT devices. This will unburden the constrained IoHT devices from performing intensive privacy preserving processes. Additionally, the proposed solution complies with one of the common privacy regulation frameworks for fair information practice in a natural and functional way-which is OECD privacy principles. We depicted how the proposed approach can be integrated into a scenario related to preserving the privacy of the users' health data that is utilized by a cloud-based healthcare recommender service in order to generate accurate referrals. Our holistic approach induces a straightforward solution with accurate results, which are beneficial to both end-users and service providers

PRECEPT:a framework for ethical digital forensics investigations

Purpose: Cyber-enabled crimes are on the increase, and law enforcement has had to expand many of their detecting activities into the digital domain. As such, the field of digital forensics has become far more sophisticated over the years and is now able to uncover even more evidence that can be used to support prosecution of cyber criminals in a court of law. Governments, too, have embraced the ability to track suspicious individuals in the online world. Forensics investigators are driven to gather data exhaustively, being under pressure to provide law enforcement with sufficient evidence to secure a conviction. Yet, there are concerns about the ethics and justice of untrammeled investigations on a number of levels. On an organizational level, unconstrained investigations could interfere with, and damage, the organization’s right to control the disclosure of their intellectual capital. On an individual level, those being investigated could easily have their legal privacy rights violated by forensics investigations. On a societal level, there might be a sense of injustice at the perceived inequality of current practice in this domain. This paper argues the need for a practical, ethically-grounded approach to digital forensic investigations, one that acknowledges and respects the privacy rights of individuals and the intellectual capital disclosure rights of organisations, as well as acknowledging the needs of law enforcement. We derive a set of ethical guidelines, then map these onto a forensics investigation framework. We subjected the framework to expert review in two stages, refining the framework after each stage. We conclude by proposing the refined ethically-grounded digital forensics investigation framework. Our treatise is primarily UK based, but the concepts presented here have international relevance and applicability.Design methodology: In this paper, the lens of justice theory is used to explore the tension that exists between the needs of digital forensic investigations into cybercrimes on the one hand, and, on the other, individuals’ rights to privacy and organizations’ rights to control intellectual capital disclosure.Findings: The investigation revealed a potential inequality between the practices of digital forensics investigators and the rights of other stakeholders. That being so, the need for a more ethically-informed approach to digital forensics investigations, as a remedy, is highlighted, and a framework proposed to provide this.Practical Implications: Our proposed ethically-informed framework for guiding digital forensics investigations suggest a way of re-establishing the equality of the stakeholders in this arena, and ensuring that the potential for a sense of injustice is reduced.Originality/value: Justice theory is used to highlight the difficulties in squaring the circle between the rights and expectations of all stakeholders in the digital forensics arena. The outcome is the forensics investigation guideline, PRECEpt: Privacy-Respecting EthiCal framEwork, which provides the basis for a re-aligning of the balance between the requirements and expectations of digital forensic investigators on the one hand, and individual and organizational expectations and rights, on the other

PRECEPT: A Framework for Ethical Digital Forensics Investigations.

The file attached to this record is the author's final peer reviewed version. The Publisher's final version can be found by following the DOI link.Cyber-enabled crimes are on the increase, and law enforcement has had to expand many of their detecting activities into the digital domain. As such, the field of digital forensics has become far more sophisticated over the years and is now able to uncover even more evidence that can be used to support prosecution of cyber criminals in a court of law. Governments, too, have embraced the ability to track suspicious individuals in the online world. Forensics investigators are driven to gather data exhaustively, being under pressure to provide law enforcement with sufficient evidence to secure a conviction. Yet, there are concerns about the ethics and justice of untrammeled investigations on a number of levels. On an organizational level, unconstrained investigations could interfere with, and damage, the organization’s right to control the disclosure of their intellectual capital. On an individual level, those being investigated could easily have their legal privacy rights violated by forensics investigations. On a societal level, there might be a sense of injustice at the perceived inequality of current practice in this domain. This paper argues the need for a practical, ethically-grounded approach to digital forensic investigations, one that acknowledges and respects the privacy rights of individuals and the intellectual capital disclosure rights of organisations, as well as acknowledging the needs of law enforcement. We derive a set of ethical guidelines, then map these onto a forensics investigation framework. We subjected the framework to expert review in two stages, refining the framework after each stage. We conclude by proposing the refined ethically-grounded digital forensics investigation framework. Our treatise is primarily UK based, but the concepts presented here have international relevance and applicability. In this paper, the lens of justice theory is used to explore the tension that exists between the needs of digital forensic investigations into cybercrimes on the one hand, and, on the other, individuals’ rights to privacy and organizations’ rights to control intellectual capital disclosure. The investigation revealed a potential inequality between the practices of digital forensics investigators and the rights of other stakeholders. That being so, the need for a more ethically-informed approach to digital forensics investigations, as a remedy, is highlighted, and a framework proposed to provide this. Our proposed ethically-informed framework for guiding digital forensics investigations suggest a way of re-establishing the equality of the stakeholders in this arena, and ensuring that the potential for a sense of injustice is reduced. Justice theory is used to highlight the difficulties in squaring the circle between the rights and expectations of all stakeholders in the digital forensics arena. The outcome is the forensics investigation guideline, PRECEpt: Privacy-Respecting EthiCal framEwork, which provides the basis for a re-aligning of the balance between the requirements and expectations of digital forensic investigators on the one hand, and individual and organizational expectations and rights, on the other