The Patient-Centric Blockchain

A revolution is brewing in the healthcare marketplace. In the early nineties, the World Wide Web initiated a new era for the use of the Internet in the consumption of healthcare services. This eventually led to the Big Data movement (Erevelles et al. 2016), which initiated a non-linear transformation in healthcare analytics and developed into a dominant paradigm in the healthcare marketplace. However, the World Wide Web architecture was never designed to support a marketplace in healthcare or, for that matter, a marketplace of any other kind. It was primarily designed for the sharing of information and was even referred to as the “information superhighway” in its early days. Despite this, over the years, the World Wide Web has evolved into a foundation (Erevelles et al. 2003) for the healthcare marketplace, widely utilized by the healthcare community. This has resulted in major breakdowns in patient trust, security, and privacy, among other problems, which additionally, have contributed to already sharply rising healthcare costs. For the first time, with the emergence of the blockchain, the healthcare community may finally have a platform specifically designed for the sharing of value (Erevelles et al. 2022). Healthcare is critical for almost everyone and faces potentially catastrophic crises. Blockchain’s value proposition is strong and distinct: greater trust, security, privacy, authenticity, and disintermediation in the healthcare marketplace. Yet, despite its potential impact, relatively little academic thought has been given to consumer-focused solutions in the healthcare marketplace. To fill this gap, the authors propose a game-theoretic framework for a patient-centric blockchain, and present an initial theoretical framework, with key foundational premises and propositions, that may help in the evolution of a blockchain-centric healthcare marketplace. This research makes multiple unique research contributions to the literature involving blockchain and healthcare consumption. First, we propose a framework for a patient-centric healthcare blockchain and present a theoretical foundation for healthcare consumption using blockchain technology. Second, we develop a set of propositions based on blockchain-centric logic that could provide theoretical guidelines that could help researchers identify potential research problems and develop solutions for these problems in the future. Third, we propose a hybrid blockchain-based healthcare framework as an initial practical step for the implementation of healthcare blockchains in the shorter term. This research is likely the first to develop a theoretical framework for blockchain-centric logic in a healthcare setting, as well as to identify related technological, behavioral, and managerial issues in the processes involved. Without a doubt, considerable further research is needed to better explore various important theoretical and behavioral questions that may arise. It would be reasonable to conclude, however, that this research provides a crucial first step for the further development of a critical technology that is expected to radically transform healthcare marketplaces and patient behavior in the future

Visions and Challenges in Managing and Preserving Data to Measure Quality of Life

Health-related data analysis plays an important role in self-knowledge, disease prevention, diagnosis, and quality of life assessment. With the advent of data-driven solutions, a myriad of apps and Internet of Things (IoT) devices (wearables, home-medical sensors, etc) facilitates data collection and provide cloud storage with a central administration. More recently, blockchain and other distributed ledgers became available as alternative storage options based on decentralised organisation systems. We bring attention to the human data bleeding problem and argue that neither centralised nor decentralised system organisations are a magic bullet for data-driven innovation if individual, community and societal values are ignored. The motivation for this position paper is to elaborate on strategies to protect privacy as well as to encourage data sharing and support open data without requiring a complex access protocol for researchers. Our main contribution is to outline the design of a self-regulated Open Health Archive (OHA) system with focus on quality of life (QoL) data.Comment: DSS 2018: Data-Driven Self-Regulating System

The Serums Tool-Chain:Ensuring Security and Privacy of Medical Data in Smart Patient-Centric Healthcare Systems

Digital technology is permeating all aspects of human society and life. This leads to humans becoming highly dependent on digital devices, including upon digital: assistance, intelligence, and decisions. A major concern of this digital dependence is the lack of human oversight or intervention in many of the ways humans use this technology. This dependence and reliance on digital technology raises concerns in how humans trust such systems, and how to ensure digital technology behaves appropriately. This works considers recent developments and projects that combine digital technology and artificial intelligence with human society. The focus is on critical scenarios where failure of digital technology can lead to significant harm or even death. We explore how to build trust for users of digital technology in such scenarios and considering many different challenges for digital technology. The approaches applied and proposed here address user trust along many dimensions and aim to build collaborative and empowering use of digital technologies in critical aspects of human society

Link Before You Share: Managing Privacy Policies through Blockchain

With the advent of numerous online content providers, utilities and applications, each with their own specific version of privacy policies and its associated overhead, it is becoming increasingly difficult for concerned users to manage and track the confidential information that they share with the providers. Users consent to providers to gather and share their Personally Identifiable Information (PII). We have developed a novel framework to automatically track details about how a users' PII data is stored, used and shared by the provider. We have integrated our Data Privacy ontology with the properties of blockchain, to develop an automated access control and audit mechanism that enforces users' data privacy policies when sharing their data across third parties. We have also validated this framework by implementing a working system LinkShare. In this paper, we describe our framework on detail along with the LinkShare system. Our approach can be adopted by Big Data users to automatically apply their privacy policy on data operations and track the flow of that data across various stakeholders.Comment: 10 pages, 6 figures, Published in: 4th International Workshop on Privacy and Security of Big Data (PSBD 2017) in conjunction with 2017 IEEE International Conference on Big Data (IEEE BigData 2017) December 14, 2017, Boston, MA, US

Blockchain, Leadership And Management: Business AS Usual Or Radical Disruption?

The Internet provided the world with interconnection. However, it did not provide it with trust. Trust is lacking everywhere in our society and is the reason for the existence of powerful intermediaries aggregating power. Trust is what prevents the digital world to take over. This has consequences for organisations: they are inefficient because time, energy, money and passion are wasted on verifying everything happens as decided. Managers play the role of intermediaries in such case: they connect experts with each others and instruct them of what to do. As a result, in our expert society, people's engagement is low because no one is there to inspire and empower them. In other words, our society faces an unprecedented lack of leadership. Provided all those shortcomings, the study imagines the potential repercussions, especially in the context of management, of implementing a blockchain infrastructure in any type of organisation. Indeed, the blockchain technology seems to be able to remedy to those issues, for this distributed and immutable ledger provides security, decentralisation and transparency. In the context of a blockchain economy, the findings show that value creation will be rearranged, with experts directly collaborating with each others, and hierarchy being eliminated. This could, in turn, render managers obsolete, as a blockchain infrastructure will automate most of the tasks. As a result, only a strong, action-oriented, leadership would maintain the organisation together. This leadership-in-action would consist in igniting people to take action; coach members of the organisations so that their contribution makes sense in the greater context of life