135 research outputs found

    “Yo Soy Su Mama”: Latinx Mothers Raising Emergent Bilinguals Labeled as Dis/abled

    Full text link
    Parental involvement in the United States has been identified in both academic and mainstream literature as a defining marker in academic achievement. Yet most of the literature regarding parents and schools are written about them without including their voice or their stories. Through the use of ethnographic case studies, this dissertation presents the experiences of immigrant, monolingual Spanish-speaking Latinx women raising emergent bilingual children who are labeled as dis/abled. This research is guided by an intersectional framework and the following questions: 1. What are the mothering experiences of Spanish-speaking Latinx mothers of emergent bilingual children labeled dis/abled? 2. What values, perspectives and ideologies do mothers hold about bilingualism and dis/abilities and how are those reflected in their lives at home and at school? This study uses the participants’ testimonios to reveal the myriad of ways in which they support, love and care for their children through means that may not be in keeping with traditional values but are no less meaningful. These include, but are not limited to, hiring tutors, enrolling them in afterschool programs and religious education, using technology, and engaging in direct home language instruction. This study also showcases the ways in which school-based decisions regarding the language of instruction impact family dynamics. Additionally, the challenges that mothers undertake as caregivers, wives, daughters, sisters and women are shared. Some of these challenges range from limited English proficiency and work-life balance to domestic abuse and long-term separation from other children. This study brings to light the complex lives mothers’ lead and the ways in which they strive to meet the needs of their children regardless of the financial, physical and emotional costs to them. This dissertation concludes with recommendations on how to better support these mothers and their children within schools. Particular attention is given to the expansion of educational settings that address students learning needs alongside family language needs. Lastly, recommendations are made as to how to engage mothers more directly within schools in ways that are mutually beneficial

    Cardiovascular Risk Factor Knowledge, Risk Perception, and Actual Risk in HIV-Infected Patients: A Dissertation

    Get PDF
    Background: Cardiovascular disease (CVD) has emerged as a major cause of morbidity and mortality in HIV-infected adults. Research in noninfected populations suggests that knowledge of CVD risk factors significantly influences perception of risk. Understanding the level of risk factor knowledge and risk perception can inform the development of innovative interventions to reduce risk. The purpose of this study was to describe cardiovascular risk factor knowledge and risk perception in a cohort of HIV-infected adults. Specific aims included (a) describing the estimated risk of CVD, the perceived risk of CVD, and the level of CVD risk factor knowledge; (b) describing the relationship between estimated and perceived risk, and (c) examining the influence of risk factor knowledge on perceived risk of CVD. The Health Belief Model was the theoretical framework that guided the study. Methods: A prospective observational cohort; cross-sectional design. A convenience sample of 130 HIV-infected adults was recruited from two hospital-based HIV clinics. Each participant had one study visit in which all data were collected by direct interview. Results: Results: Mean age of enrollees was 48 years (SD 8.4); 62% were male; 41.5% White, 32% Black, 23% Hispanic; 56% current smokers; mean years since HIV diagnosis were 14.7; mean BMI 27 (SD 5.5); 48.5% had prehypertension. Higher scores on the Heart Disease Fact Questionnaire indicate a higher degree of knowledge. In this sample, the Mean was 19, (S.D. 3.5; range 6–25), indicating a fair degree of knowledge. Estimated and perceived risk were significantly, though weakly, correlated r (126) = .24, p = .01. Controlling for age, risk factor knowledge was not predictive of perceived risk (F[1,117] = 0.13, p \u3e .05). Conclusions: HIV-infected adults are at increased risk for cardiovascular disease. Traditional CVD risk factors such as smoking, prehypertension, and being overweight are highly prevalent. Despite having a fair level of risk factor knowledge, knowledge did not influence perception of risk for CVD. Research to improve risk perception and to develop innovative interventions that reduce CVD risk is needed for this population

    Objects: Entropy and Temporality

    Get PDF
    The transparent qualities of glass lend to the creation of elements that suggest presence and absence. I often use glass as a surrogate for lost time or space in an object, comparable to the human prosthetic and the notion of a phantom limb. Recent objects of exploration have included broken bottles, fallen tree limbs, and a human skull. The practical knowledge I gained while working in a conservation lab has directly influenced the methodology for treating these objects of disrepair. My primary impetus is a desire to construct what has been lost during an objects existence and reveal sublime qualities. Looking for the spaces in-between things, I create sculpture and installations that transcend static objects beyond their corporeal existence, engage in the process of entropy, and negate it

    Brain Injury Rehabilitation Outcome Measurement: Challenges and Future Directions

    Get PDF
    The Brain Injury Association of America (BIAA) published a position paper (http:// www.biausa.org/biaa-position-papers.htm) that describes the state of outcomes research in the field of brain injury and identifies the factors to consider when evaluating existing studies and embarking on future outcomes research. This commentary summarizes that article by highlighting 3 major challenges for outcome measurement in brain injury rehabilitation. It also presents opportunities for improving outcomes research through improved research design, standardization of measurement tools across the continuum with utilization of national databases, and an evidence-based approach to providing care to help move brain injury rehabilitation outcome measurement in a positive direction

    Factors influencing post-acute brain injury rehabilitation treatment outcome

    Get PDF
    Brain injury has a tremendous effect on the United States. The medical system has a continuum of care available but many of these services are extremely expensive. Despite the effectiveness of residential post-acute brain injury rehabilitation (PABIR) resistance to provide adequate funding remains because of a dearth of randomized controlled trial (RCT) studies demonstrating effectiveness. Some research suggests observational trials are typically more representative of community samples and yield conclusions similar to RCT studies. This study uses a large multi-state naturalistic community-based sample of individuals who received residential PABIR. The purposes of this study were to (1) use logistic regression to identify a model that considered the relationships among the predictor variables to explain treatment outcome for individuals receiving residential PABIR and (2) better understand how self-awareness influences treatment outcome. The final model contained five independent variables (substance use at time of admit, functioning level at time of admit, change in awareness between discharge and admit, admit before or after 6 months post-injury (TPI), and length of stay (LOS) in the program less than or greater than 2 months). The model was statistically significant, ÷2 (5, N=434) = 194.751, p \u3c .001, accounting for 36.2% (Cox & Snell R square) to 61.3% (Nagelkerke R square) of the variance in success rate, and correctly classified 89.4% of cases. Four of the five predictor variables (current substance use, change in awareness, LOS 2 months and TPI 6 months) made statistically significant contributions to the model. The strongest predictor of successful treatment outcome was change in awareness recording an odds ratio of 29.9 indicating that individuals who improved in self-awareness by at least one level were nearly 30 times more likely to be in the successful outcome group, controlling for other factors in the model. Participants were also more likely to be in the successful outcome group if they admitted within 6-months post-injury (5.5x) and stayed longer than 2-months (4.4x). Findings also suggest that active substance use at time of admission did not prevent people from being successful. Importance and implications of these findings are discussed

    What Families, Clinicians and Payors Need to Know About Transitional Rehabilitation

    Get PDF
    When a person sustains a traumatic brain injury (TBI), he and his family are thrust into a health care system that is unfamiliar and difficult to navigate. Too often, patients do not have access to the full continuum of treatment - especially transitional rehabilitation (TR). This article addresses why that is so and ways to change it
    corecore