The functional activities manipulation and adaptation (FAMA) approach in cerebral palsy: a treatment proposal with emphasis on motor learning

There are different approaches used by physiotherapists in the treatment of cerebral palsy (CP), but the majorities are based on theoretical and conceptual knowledge gained from the development of motor control. This work aims to present an approach for the treatment of cerebral palsy based on the knowledge of motor learning. When determining the advancements in studies on motor learning and that such knowledge can somehow assist the physiotherapist in the organization of their clinical intervention, the idea arose of developing a treatment approach that is based on the use of this knowledge of motor learning in the treatment of CP. The Functional Activities Manipulation and Adaptation (FAMA) approach is a physiotherapeutic proposal in the treatment of CP that uses the nominal language of the ICF and, to arrange treatment, uses clinical experience with the best evidence available and the needs of the patient. Its main objective is to provide functionality for mobility, through the knowledge of motor learning, focusing on the classification of functional skills, structures and factors that influence practice. Motor learning is the greatest difference of the FAMA approach, where the knowledge acquired through motor learning seeks to organize the physiotherapy treatment for CP.There are different approaches used by physiotherapists in the treatment of cerebral palsy (CP), but the majorities are based on theoretical and conceptual knowledge gained from the development of motor control. This work aims to present an approach for the treatment of cerebral palsy based on the knowledge of motor learning. When determining the advancements in studies on motor learning and that such knowledge can somehow assist the physiotherapist in the organization of their clinical intervention, the idea arose of developing a treatment approach that is based on the use of this knowledge of motor learning in the treatment of CP. The Functional Activities Manipulation and Adaptation (FAMA) approach is a physiotherapeutic proposal in the treatment of CP that uses the nominal language of the ICF and, to arrange treatment, uses clinical experience with the best evidence available and the needs of the patient. Its main objective is to provide functionality for mobility, through the knowledge of motor learning, focusing on the classification of functional skills, structures and factors that influence practice. Motor learning is the greatest difference of the FAMA approach, where the knowledge acquired through motor learning seeks to organize the physiotherapy treatment for CP

Atividade física e esporte por meio de jogos eletrônicos na Paralisia Cerebral.

Extrato de relatório.A Paralisia Cerebral (PC) tem como principal característica alterações na postura e no movimento que causam dificuldades ao individuo para realizar movimentos básicos fundamentais. Desta forma, o indivíduo com PC necessita de oportunidades diferenciadas para a prática de atividades física e esporte, sendo que uma possibilidade bastante viável é a utilização de consoles de jogos eletrônicos, os quais estão sendo investigados como uma forma adaptada de propiciar função e vivência de movimento similar a diferentes esportes.Rede CEDES / M

PROJECT MANAGEMENT IN HEALTH AND MEDICAL RESEARCH

Not applicabl

Paralisia Cerebral: Fundamentos para Pais e Cuidadores

One aspect that cannot be ignored is the impact of cerebral palsy in the internal dynamics of the family, due to the fact that its members are confronted with a different reality which requires adaptations and changes daily. The way parents, caregivers and family members adjust is crucial for the future of the child and of the people involved. Due to the difficulties of parents and caregivers of children with cerebral palsy in acquiring knowledge about the definitions, classifications and differences caused by disability, this work aims to present theoretical and practical explanations about cerebral palsy. Therefore, an explanatory text was organized with the main reasons that cause changes in posture and movement of children with disabilities, because it is known that the knowledge of parents can interfere in the care and education, whereas parents play an essential role as educators of their children, especially during the early formative years, and that this will provide all opportunities for participation, learning and growth.Um aspecto que não pode ser ignorado é o impacto da paralisia cerebral na dinâmica interna da família, devido ao fato de que seus membros são confrontados com uma realidade diferente que exige adaptações e modificações diárias. A forma como os pais, cuidadores e membros da família se ajustam é crucial para o futuro da criança e das pessoas envolvidas. Devido às dificuldades dos pais e cuidadores de crianças com paralisia cerebral em adquirir conhecimentos sobre as definições, classificações e diferenças causadas pela deficiência, este trabalho tem como objetivo apresentar esclarecimentos teóricos e práticos sobre paralisia cerebral. Para tanto, organizou-se um texto explicativo dos principais motivos que causam as alterações na postura e movimento das crianças com deficiência, pois é sabido que o conhecimento dos pais pode interferir no cuidado e na educação, considerando que os pais desempenham um papel essencial como educadores de seus filhos, especialmente durante os primeiros anos de formação, e que isso proporcionará a todos oportunidades de participação, aprendizado e crescimento

Caracterização das habilidades funcionais na síndrome de Rett

O objetivo deste estudo foi identificar as áreas de maior comprometimento nas habilidades funcionais na síndrome de Rett (SR). Foram avaliadas 64 pacientes que preenchiam os critérios para a forma clássica da doença, com idade entre 2 e 26 anos. Foi aplicado o Inventário de avaliação pediátrica de incapacidade (PEDI) que contém 197 itens nas áreas de autocuidado, mobilidade e função social. Dentre as 73 atividades da área de autocuidado, 52 (71,2%) não foram realizadas por qualquer paciente; na mobilidade, dentre as 59 atividades propostas, 8 (13,5%); e na área de função social, dentre as 65 atividades, 50 (76,9%) não foram realizadas por paciente alguma. O desempenho médio ajustado em escala de 0 a 100 para a área de autocuidado foi de 8,9/100, variando de 0 a 19; na área de mobilidade, foi de 30,2/100, variando de 1 a 44; e na de função social, 5,2/100, com variação de 0 a 14. Foi possível verificar fortes correlações entre a área de autocuidado e as de mobilidade e função social; no entanto, entre as áreas de mobilidade e função social não foi detectada correlação significativa. Infelizmente, devido à gravidade da síndrome, o menor comprometimento da mobilidade, comparado ao das áreas de autocuidado e função social, não traz vantagens adaptativas ou maior independência às pacientes com SR.The purpose of this study was to determine the areas of greater impairment in functional abilities of patients with Rett syndrome. Sixty-four patients aged 2 to 26 years old, who filled out criteria for the classic form of the disease, were assessed by the Pediatric Evaluation of Disability Inventory (PEDI) of which 197 items are grouped in the areas of self-care, mobility, and social function. From the 73 activities in self-care area, 52 (71.2%) were not accomplished by any patient; in mobility area, among the 59 proposed activities, 8 (13.5%); and in social function area, from 65 activities, 50 (76.9%) could not be accomplished. Adjusted mean results in a 0-to-100 scale were: self-care, 8.9/100, varying from 0 to 19; mobility, 30.2/100, varying from 1 to 44; and social function, 5.2/100, varying from 0 to 14. Strong correlations were found between self-care area and mobility and social function areas, but no significant correlation between the latter. Unfortunately, due to the serious impairment of the disease, the fact that mobility is affected to a lesser degree, as compared to self-care and social function, does not bring Rett syndrome patients any adaptive advantage nor greater independence

VALIDITY OF SOFTWARE FOR MEASUREMENT OF TOTAL REACTION TIME WITH SIMPLE STIMULUS -TRT_S 2012

Objective: Determine the validity of the TRT_S2012 software in to assess the total reaction time (TRT) with a simple visual stimulus (TRTSimple) and mental fatigue from TRT (TRTFatigue). Methods: Three types of validation were applied: a) concurrent, for determining the correlation between the TRT_S2012 Software and Vienna Test System (VTS), b) content of a sample of adults, and c)mechanical, using a robot that performs a mechanic motion to respond to a light stimulus.The study included 216 young adults, college students aged 17 – 45 years (x = 24.0 ± 6.0) and a robot. Descriptive and inferential statistics were used for performance on TRT obtained by young adults and robot in two software. Results: The intra-class correlation in the adults TRT showed strong correlation between VTS and TRTSimple (R = .72). Identification of the proposed initial stimulus in TRTFatigue presented intermediate correlation with VTS (R = .56) and the final stimulus presented low correlation with VTS (R=.35).The robot TRT showed standard deviation ranging .5 ms (on average) between the highest and lowest.The standard error of the mean ranged from .23 to .28 and the distributions were homogeneous between 8.2 to 9.7%. Conclusion: The results confirmed the validity of the software TRT_S2012 2012. It is a reliable cognitive test that can be applied to young adults for measuring the TRT with simple visual stimuli and for evaluating the influence of mental fatigue from the TRT. however, the delays caused by the computer resources used should be considered and measured with a resource like the robot. We conclude that the TRT_S2012 software is valid for assessing the TRT and cognitive fatigue in healthy adults

Avaliação motora e funcional de pacientes com paraplegia espástica, atrofia óptica e neuropatia (SPOAN)

Spastic paraplegia, optic atrophy, and neuropathy (SPOAN) is an autosomal recessive complicated form of hereditary spastic paraplegia, which is clinically defined by congenital optic atrophy, infancy-onset progressive spastic paraplegia and peripheral neuropathy. In this study, which included 61 individuals (age 5-72 years, 42 females) affected by SPOAN, a comprehensive motor and functional evaluation was performed, using modified Barthel index, modified Ashworth scale, hand grip strength measured with a hydraulic dynamometer and two hereditary spastic paraplegia scales. Modified Barthel index, which evaluate several functional aspects, was more sensitive to disclose disease progression than the spastic paraplegia scales. Spasticity showed a bimodal distribution, with both grades 1 (minimum) and 4 (maximum). Hand grip strength showed a moderate inverse correlation with age. Combination of early onset spastic paraplegia and progressive polyneuropathy make SPOAN disability overwhelming.A paraplegia espástica, atrofia óptica e neuropatia (SPOAN) é uma forma complicada de paraplegia espástica de herança autossômica recessiva, caracterizada por atrofia óptica congênita, paraplegia espástica progressiva de início na infância e neuropatia periférica. Este estudo avaliou o desempenho motor e funcional de 61 indivíduos com SPOAN (5 a 72 anos), por meio do índice de Barthel modificado, a escala modificada de Ashworth, da avaliação da força de preensão das mãos com dinamômetro hidráulico de Jamar e escalas de paraplegia espástica hereditária. O índice de Barthel modificado, que investiga aspectos funcionais, mostrou-se mais sensível para avaliar a progressão da doença do que as escalas de paraplegia espástica. A espasticidade apresentou distribuição bimodal, com o grau 1 (mínimo) e 4 (máximo). A força de preensão mostrou correlação inversa moderada com a idade. A combinação de paraplegia espástica de início precoce com polineuropatia progressiva faz da SPOAN uma condição incapacitante

Motor Learning and Virtual Reality in Down Syndrome; a Literature Review

 Down syndrome (DS) is caused by trisomy of human chromosome 21 (Hsa21) and results in a large number of phenotypes including learning difficulties, cardiac defects and distinguishing facial features. The purpose of this study was to analyse research findings about “motor learning†and “virtual reality†in patients with DS. Relevant studies were identified by searching PubMed, Web of Science and BVS. Using key words, we searched for articles that included Down syndrome, virtual reality, and motor learning. Only studies on humans were eligible. The search  identified seven relevant papers. Most studies showed that individuals with Down syndrome are able to learn new tasks, and that improvements can be enhanced via the use of virtual reality. We conclude that individuals with Down syndrome respond positively and effectively, with improvements in sensory motor control, when stimulated with tasks that are complementary to conventional therapy, including therapy involving virtual reality