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1 research outputs found
The EuRRECa project as a model for data access and governance policies for rare disease registries that collect clinical outcomes
Author
Ahmed Syed Faisal
Ali Salma R.
+14 more
Appelman-Dijkstra Natasha M.
Bertherat Jerome
Bryce Jillian
Cools Martine
Dekkers Olaf M.
Hiort Olaf
Kodra Yllka
Pereira Alberto M.
Persani Luca
Smyth Arelene
Smythe Christopher
Tan Li En
Taruscio Domenica
van den Akker Erica L.T.
Publication venue
'MDPI AG'
Publication date
01/01/2020
Field of study
Get PDF
No abstract available
Multidisciplinary Digital Publishing Institute
Ghent University Academic Bibliography
EUR Research Repository
Leiden University Scholary Publications
Enlighten
Erasmus University Digital Repository