A newly developed online peer support community for depression (Depression Connect):Qualitative study

Contains fulltext : 233420.pdf (Publisher’s version ) (Open Access)Background: Internet support groups enable users to provide peer support by exchanging knowledge about and experiences in coping with their illness. Several studies exploring the benefits of internet support groups for depression have found positive effects on recovery-oriented values, including empowerment. However, to date, little attention has been paid to user narratives. Objective: This study aims to capture the user perspective on an online peer support community for depression with a focus on the modes of user engagement and the benefits users derive from participation in the forum. Methods: In this qualitative study, we conducted 15 semistructured interviews with users of Depression Connect, a newly developed online peer support community for individuals with depression. Combining a concept-driven and a data-driven approach, we aimed to gain insight into what users value in our Depression Connect platform and whether and how the platform promotes empowerment. We performed a thematic analysis to explore the merits and demerits reported by users by using theoretical concepts widely used in internet support group research. In the subsequent data-driven analysis, we sought to understand the relationship between different styles of user engagement and the participants' experiences with the use of Depression Connect. Data analysis consisted of open, axial, and selective coding. To include as diverse perspectives as possible, we opted for purposive sampling. To verify and validate the (interim) results, we included negative cases and performed member checks. Results: We found participation in Depression Connect contributes to a sense of belonging, emotional growth, self-efficacy, and empowerment. "Getting too caught up" was the most frequently reported negative aspect of using Depression Connect. The deployment and development of three participation styles (ie, reading, posting, and responding) affected the perceived benefits of Depression Connect use differentially, where the latter style was central to enhancing empowerment. "Being of value to others" boosted the users' belief in their personal strength. Finally, Depression Connect was predominantly used to supplement offline support and care for depression, and it mainly served as a safe environment where members could freely reflect on their coping mechanisms for depression and exchange and practice coping strategies. Conclusions: Our findings shed new light on user engagement processes on which internet support groups rely. The online community primarily served as a virtual meeting place to practice (social) skills for deployment in the offline world. It also allowed the members to learn from each other’s knowledge and experiences and explore newly gained insights and coping skills.18 p

Social Robots in Elderly Healthcare: A Burden or a Gift?

The healthcare sector is currently under enormous pressure and the COVID-19 pandemic does not improve this situation. The quality of healthcare will be negatively impacted when this pressure continues in the longer term. In 2050 it is expected that a total of 2.1 billion people will be aged 60+ years old. To overcome the increasing demand for healthcare by this age group, various studies are being conducted into various technological solutions, such as social robots. In this study, the Alpha Mini social robot was used in an experiment to research which tasks a social robot could assist with, to reduce the work pressure of healthcare professionals and to help the elderly live longer at their own homes. The experiment was carried out using interviews with healthcare professionals and informal caregivers about the demonstrated Alpha Mini. In addition to the experiment and interviews a survey was sent out to 237 healthcare organizations in the Netherlands to identify the 1) work pressure, 2) daily tasks, 3) social robot experiences, and 4) the features a social robot should have to gather requirements. The experiment failed due to work pressure at the healthcare organization. The survey resulted in 181 respondents. The results suggest that tasks such as reminders, setting alarms and physiotherapy have a great potential to help the healthcare professional in reducing their work pressure and tasks, and the elderly to be able to stay living longer at their own home

Look who is complaining:Psychological factors predicting subjective cognitive complaints in a large community sample of older adults

Subjective cognitive complaints (SCCs) are not directly related to objective impairments in cognition. This study examines the role of psychological factors in predicting SCCs in the domains of executive functioning, memory, and attention in older adults. A community sample of 1,219 Dutch adults, aged 40 year or older, completed the BRIEF-A, MSEQ, FEDA, NEO-FFI, DASS-21, and a demographic questionnaire. Participants were randomly divided into exploratory (n = 813) and confirmatory samples (n = 406). In the exploratory sample, we analyzed whether personality factors, symptoms of depression and anxiety, perceived stress, and demographics could predict SCCs in the different cognitive domains. For this purpose, a two-step regression approach with bootstrapping was used. To independently validate the results, these analyses were repeated in the confirmatory sample. Concerning executive functioning, complaints regarding the ability to regulate behavior and emotional responses were predicted by lower agreeableness levels and higher levels of neuroticism and perceived stress. Complaints regarding the ability to actively solve problems in different circumstances were predicted by a lower conscientiousness level, higher agreeableness level, and more depressive symptoms. Attentional complaints were predicted by lower levels of conscientiousness and extraversion, together with a higher level of neuroticism. For memory, no significant predictors were consistently found. Psychological factors are of influence on the subjective experience of cognitive complaints. In particular personality factors, perceived stress, and symptoms of depression, seem to predict SCCs in the domains of executive functioning and attention. Clinicians should take these factors into account in older adults who have SCCs

Stigmatisering van werknemers met een psychische aandoening en hoe HR dit tegen kan gaan

Het verzuim en de instroom in de WIA als gevolg van een psychische aandoening zijn hoog. Dat komt niet alleen door de aandoening, maar ook doordat werknemers met een psychische aandoening daar vaak niet open over durven te zijn. Ze zijn bijvoorbeeld bang dat collega’s en leidinggevenden hen buitensluiten of dat ze hun baan verliezen, als bekend wordt wat er aan de hand is. Deze angst is terecht want er bestaan veel vooroordelen over werken met een psychische aandoening en er is sprake van stigmatisering. Het gevolg van niet-open erover zijn is echter dat de werkgever er ook geen rekening mee kan houden. Veel medewerkers met een psychische aandoening staan er daardoor alleen voor, lopen op hun tenen of gaan onderpresteren. Eventuele klachten worden daardoor erger. Werkgevers en HR-professionals kunnen daar wat aan doen. In dit artikel bespreken Aukje Smit, Dorien Verhoeven en Tinka van Vuuren de vooroordelen, de benodigde maatregelen en de strategieën om werkgevers (en dus ook HR-professionals) in beweging te krijgen aan de hand van een literatuuronderzoek naar stigmatisering van werkenden met een psychische aandoenin

Replication Data for: Look who is complaining: Psychological factors predicting subjective cognitive complaints in a large community sample of older adults

This dataset contains questionnaire data from 1219 adults from the general Dutch population aged 40 years or older. The data was collected online between October 2016 and March 2018. The goal was to examine the role of psychological factors in predicting subjective cognitive complaints in the domains of executive functioning, memory, and attention. For this purpose the following questionnaires were collected: Behavior Rating Inventory Executive Function - Adult version (BRIEF-A), Dutch version of the Memory Self-Efficacy Scale (MSEQ), Questionnaire for Experiences of Attention Deficits (German: Fragebogen Erlebter Defizite der Aufmerksamkeit [FEDA]), NEO-Five Factor Inventory (NEO-FFI), Depression Anxiety Stress Scale (DASS-21), and a demographic questionnaire. The demographic questionnaire contained questions about age, gender, education level, having a job, having a partner, having children, having pets, income, and body mass index. Additionally, questions about sleep, self-rated health, and quality of life were included

Improving Outcome with CBTuhr: Cost-effectiveness and Profiling After 4-Years

Aims: The first aim was to determine the cost-effectiveness of CBTuhr to prevent first-episode psychosis in ultra-high risk (UHR) at 18 and 48 months. The second aim was to develop an optimized prediction model of a first-episode psychosis. Methods: 196 help-seeking UHR patients participated in the Early Detection Intervention (EDIE) study in the Netherlands. All individuals were treated with routine care (RC) for non-psychotic disorders. The experimental group received add-on CBTuhr to prevent psychosis. Results: The CBTuhr intervention was cost saving at 18 and 48 months follow-up. This was achieved by less hospital admissions and a reduction in other service costs. Societal costs were reduced because more treated patients were employed. Prognostic modelling identified 3 UHR risk classes with 4%, 13% and 70% risk for transition within 18 months. In the highest risk class, transition to psychosis emerged on average ≥ 8 months earlier than in the lowest risk class. Conclusions: Using prognostic modelling and proactive care can accomplish health gain at lower costs